I AM SITTING HERE ON ANOTHER NITE THAT SLEEP DOESN'T WANT TO SHARE MY WORLD. THINKING OF PAST THANKSGIVINGS AND WHAT THE FUTURE ONES HOLD FOR ME. OTHER THAN MY SONS AND A SISTER THAT LIVES 1000 MILES AWAY, I HAVE NO CLOSE FAMILY. THANK GOD DAILY FOR A FRIEND THAT HE HAS SENT MY WAY TO BE MY ADVOCATE, BY READING, AND TALKING TO ME, LETTING ME EXPRESS ANY THING AND EVERYTHING THAT IS INSIDE ME OVER AND OVER. MANY DAYS CAN GO BY AND PD IS FAR AT THE BACK OF MY MIND A FORM OF DENIAL PROBABLY , THAN A DAY LIKE THIS COMES ALONG WHERE I AM TRIPPING MORE CAN'T KEEP THE TRAIN OF THOUGHTS IN LINE, YEA AND AN ADDED NEW FUN THING STARTED IN THE LAST FEW DAYS IS MY RIGHT FT KEEPS HAVING VERY PAINFUL SPASMS WHERE MY TOES LITERALLY CURL DOWN. TODAY WHILE DRIVING AND JUST A SHORT DISTANCE THIS STARTED AGAIN, I FINALLY HAD TO USE MY LEFT FOOT ON THE GAS PEDAL. IT IS WHEN THINGS LIKE THIS HAPPEN IT MAKES ME THINK GEE WONDER WHAT I WILL BE LIKE NEXT THANKSGIVING, BETTER, OR WORSE. TODAY I PLAYED WITH MY ADOPTDED GRANDDAUGHTER AND HAD SO MUCH FUN, SO GLAD THAT HER MOM NEEDED ME WATCH HER SINCE I DON'T GET AS MUCH AS I WANT SINCE SHE IS IN SCHOOL. THAN OUT OF THE BLUE A NEW FUN SOMETHING. I MEAN SOMTHING THAT MAKES U TAKE STOP AND TAKE AN INVENTORY OF YOUR WORLD LIKE WHERE WILL I BE NEXT THANKSGIVING. I PRAY THAT I WILL PLAYING WITH MY GRANDDAUGHTER AND MOVING AS I AM TODAY I KNOW THAT IS OUT OF MY HANDS . IN MY HEART I KNOW I WILL STAY A STEP AHEAD OF PD I JUST HOPE MY BODY CAN
BC
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blackcat
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Happy thanksgiving greetings from Ireland I find taking every day as it comes easier to deal with than looking out at what might be .I try and do my best every day to manage this "dis ease" in my body .My best today may not be the same as my best to morrow it just depends where I am at, and thats ok .Thanks for sharing your thoughts we are not alone .Mags
THANKS FOR THE KIND WORDS, I AM A PERSON THAT USUALLY DOES TAKE THINGS A MOMENT OR DAY AT A TIME. I GUESS TONITE SITTING REFLECTING ON FAMILY AND HOLIDAY MEMORIES THROWS US INTO ANOTHER MIND SET. WHEN I GET SOME SLEEP AND GET ON THE MOVE TODAY I WILL FALL INTO MY REGULAR MIND SET.
HOW BEAUTIFUL IS IT TO BE IN IRELAND. THE IRISH IN ME REALLY WANTS TO MAKE IT THERE.
HAVE A WONDERFUL DAY AND TELL ME A LITTLE ABOUT YOURSELF IF YOU ARE COMFORTABLE AND I WOULD LOVE TO HEAR A LITTLE ABOUT IRELAND
BC
Happy thanks giving from Scotland, i too cant sleep any more woke up at 3 am this morning don,t start meds till 8am shaking like a bag of bones listening to some music on itunes.
i don't wish any sleepless nite on anybody. happy turkey day to scotland u can't take your meds around the clock what do u take how long since dx" i know i am asking a lot of questions just curious
i was officially dx in 09 i am basically at a point of stage one/ early 2 bounce around understand the shakes not fun thanks for answeriing my blog look forward to hearing and sharing more with u soon
Happy Thanksgiving all. It would be nice to hear about Ireland, Scotland, anywhere. Just look out the window and describe. Me? I live in Oak Park, Illinois, just ten miles west of Chicago. It can be pretty here, but not at this time of year. The back windows reveal only our garage and the back of our neighbors' houses beyond the alley. The front gives you the front of more houses across the street. It's going to be a mild gray day. I'm excused from food prep until my morning meds kick in. (Should I fake it for awhile? I never do.) Today it's going to be just us four (my wife and two sons, 18 and 15) and we're looking forward to it. My wife is prone to fits of weeping though because we just started the divorce process (mostly at her urging) and don't know where we will each be or who we'll be with. Ah well, focus on today, right?
Happy Thanksgiving. I find the not sleeping is one of the hardest symptom to deal with. Check out some of the past blogs on this issue. Some of the people have some very good advice and because of them I am now sleeping much better. When you feel really tired get comfortable and then start counting backwards from 100.It might take a few repetitons before you doze off. I have been doing this for about 2 weeks now and have only had 1 sleepless night.
Happy Thanks Giving BlackCat - I hope your hoilday goes well and that you do get to have a good day (PD Free)with the granddaughter you mentioned above _ I don't have PD however there is a special person in my life who has been DX with PD , who amazes me on a daily basis and I give thanks to God for this person everyday - such an inspiration to me even though this person doesn't see it - this person does so much for others even though they have this health issue among addtional conditions - I have learned so much from
this person on giving - This person to me is the definition of Thanks Giving - I am on this site and others to learn more of this disease and to suggest any thing that may aid in making everyday issues easier for this incredable person.
Just wanted to share this opinion and observation with folks that have PD - God Bless you all and may they find a cure for this disease!!!!
what a wonderful friend you and what a tribute u paid to your friend. i gather your friend doesn't believe in themselves as u do. i think this has a lot to do with probably their family life growing up and i know at times as a pd person it is difficult to not think of yourself as a stellar person. u describe them as a perosn who gives of themselves and their time, which i hink to them it must come naturally again possibly from the way they were raised. maybe also they don't think of it as exta or special giving but a joyous feeling because of being a pd person they can't do other things for people they would like. still bottom line, if every pd person had a friend and support system like u are offering, all of us would be gaining ground just from your concern and energy. God Bless you you are so special
your comment left me in a state of awe - you are truly a caring person - to go onto this site to learn about us makes me want to cry .. have a wionderful thanks giving xxxx
Happy Thanksgiving, and thanks for your comments. I have sleeping difficulties, too. Last night we had a power outage, after which I couldn't sleep until 5:30 a. m. I know you're not supposed to get on the computer when you can't sleep, but maybe in this case, realizing that others were in the same situation would have actually helped me go back to sleep. I find that sometimes, I have to count good days, and sometimes I have to split it into good hours or minutes or moments. Stay positive.
Happy Thanksgiving From Texas. Sleep does suck lately. feel out around 3am up at 6am and still awake. Wishing you the best... stay positive and focused.
Hi,
Hope you had a happy thanksgiving, no sleep for me last night its around 5am here in a very wet and stormy scotland.
i tryed to make my self a cup of tea however i spillt the boiling water over the floor and droped the milk but after nearly an hour i have the cup , made two as i am now a two for one , if you get my drift any way goint to go to facebook now
yes i did have a good day but really tired tonite. trying to get ready to go to my son's tomorrow in cincinnati my older lady friend who is lives by herself really had a good time with the 4 of us that made me extremely happy. she is so special and her family does not know she is alive and she is somuch fun. to them she is a $ sign : ( okay pies are in the oven pages are packed my beloved hot shower time and than in qbout a 4 hour drive i will be hugging my son and my daughter in law and my little audrey i know i will be stiff after the ride and i did have a not so good fall last nite so sore from that . but it will be good.
please tell me a little about your parkingsons and u as a person, and about where u are in scotland, i understand about the hour cup of coffee or tea, i am ready to see my neuro doc because i think i am making some changes, are u on meds or have u taken more surgical move
like all of you its 4am and now I;m awake but find my best time toget things done is in this time period I write compose creat things I use nin my job with the Park service.I make this a very productive time my hand shakes some but the mind is clear and after 1-2 hours I'm heading back to sellp muntil its time to wake up which ia usually 6am then bike if WX permits then
You have a beautiful way with words. You described what I often run from in my heart. I live with 3 of my grandchildren, two are 11 one is 6. I watch new things begin in my body that were'nt there before and I too wonder. I do whatever I can to slow the progression but new things keep cropping up. I don't say much, somehow that makes it real....somehow I feel protective of my daughter who is my caretaker. Sometimes there's not much to say about it. It is what it is and all I can do is fight with everything I'm given. Blessings.
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Greetings all and a Belated Happy New Year!
Thanksgiving Day Tremors!
Can Rytary make your anxiety worse or not work at all? Does anyone else suffer from severe anxiety? Experienced Dystonic type attacks?
I am a person, and a patient.... a mighty fine one
