500 MG of thiamine joy

[tarverusmc]

My First day was amazing with my dose of 500 MG of Thiamine.

Still taking my PD meds, I felt totally normal with no tremors, having normal thoughts and communication, and my foot started to work again.

Today, with med's, I am at a state where I can type again, walk normal again, without any tremor's or any PD symptoms..

Wish me luck in the next coming days and just maybe, No More PD Meds....

PD meds list

25/100 Carbadopa Levadopa x10 daily

Encatapone X 3

.5 mg of cenamete x daily

Donald Tarver

2695680512

[AmyLindy]

Here’s to ya! And Q: Oral or injection of 500mg?

[tarverusmc in reply to AmyLindy]

thank you and semper fi navy girl.

tablets is what I started. my wife found and article and we have started a test of thiamine and now are searching for answer's.

100 p&t va

and currently in line for va surgery dbs.

may put a hold on that.

thanks again for your service

[AmyLindy]

& Semper Fi,

Navy Girl

[cshamb]

WONDERFUL NEWS. DO TAKE A CAPSULE OR IS THAT AN INJECTION. DR. C INSTRUCTED ME TO TAKE 4 GRAMS A DAY WHICH WOULD BE 8 CAPSULES. I JUST STARTED ABOUT 4 DAYS AGO.

THANK YOU

[tarverusmc in reply to cshamb]

great, we both are newbie's. I just email dr c. hopefully he will respond

I take 500 mg pill orally

[Mjm012649 in reply to tarverusmc]

What brand do you take?

[tarverusmc in reply to Mjm012649]

brand from vitamin store. nothing specific. now looking for cheaper alternative

[tarverusmc in reply to cshamb]

how r u doing

[JANVAN]

Is that correct ??

10 times Carbidopa/ Levodopa a day ??

[tarverusmc in reply to JANVAN]

one tablet 10 times yes

[tarverusmc in reply to tarverusmc]

I thought that was crazy amount. dr from u of m was looking for me to dekanezy (spelling)

[Hidden in reply to tarverusmc]

See Doctor Fahn, healthunlocked.com/parkinso...

[MBAnderson in reply to tarverusmc]

Do you mean U of Minnesota?

[tarverusmc in reply to MBAnderson]

michigan

[alaynedellow]

Well done- never give in theres always hope

[AmyLindy]

Are u 100% VA - SDV? Not sure what that line meant. I’m at 90% rated. Toxic water at Camp Lejeune back in the day could have been a contributor. I fall under that umbrella for

“Presumed service connection” on the disability scale... how about you (and any others reading this post)?

[MBAnderson in reply to AmyLindy]

I'm rated only 70% by the VA (and I was 50% before I had PD.) I think I got shortchanged. Next month I'm filing a "Decision Ready Claim" for 100%.

[tarverusmc in reply to MBAnderson]

rigidity, painful extremity, swallowing, curling of toes, multiple left right upper lower extremities, just a few of symptoms pd.

sleepless, depression, can individual adds up to 100%

[MBAnderson in reply to tarverusmc]

Then I definitely got shortchanged. I have found the VA healthcare to be excellent, but the claims processing side is terrible.

[tarverusmc in reply to MBAnderson]

severe....conic....debilitating....range of motion....ect

[tarverusmc in reply to tarverusmc]

honesty is the best policy. especially on your worst day

[tarverusmc in reply to AmyLindy]

sorry that drinking water was so dangerous. I was at cherry point and visiting weekends camp lejune drinking that water as well. on that list as well. my pd symptoms dates back to about 2006.

[AmyLindy]

SF, Amy

[Erniediaz1018]

Excellent I'm very happy for you. Thank you for sharing. Please let us know how it goes 😊

[Hidden]

tarverusmc,

If possible, could you please copy your post to the following thread where I am trying to get all of the results that people are getting using Dr. Costantini's thiamine protocol into one place so members can get a good idea of what results or lack of results people are getting with thiamine.

healthunlocked.com/parkinso...

Thank you!

Art

[Grumpy77 in reply to Hidden]

You could also ask admin to pin that thread to top, so it will easy to add relevant post to it. At the moment that thread is lost deep among others

[Hidden in reply to Grumpy77]

Yes, the information flow through this forum is very fast and things move along quickly and sometimes get lost in that high speed flow of information. Not sure how to get in touch with an administrator. I contacted HU before about another issue related to that post, but the person I contacted only worked on technical issues and they referred me somewhere else, but I was not able to figure out how or who to contact from that point.

Art

[M1tz1]

You're in my thoughts and my prayers.

[tarverusmc]

thank you

[AmyLindy]

Wow!!!

[Hiroko]

Semper Fidelis Devil Dog and best of luck.

[delboy381]

I wish you good luck I hope you can reverse yours symptoms .

[tarverusmc in reply to delboy381]

today is my fith day.

reduce 1/2 mirapex. and 8 pills not 10 pills of sinemet. daily

I did up bumped up my b1 thiamine to 2000mg.

recap

I'm doing well. stronger and able to run with my left side being very mobile. before disability.

I hope for the next 4 days to recover and reduce more PD meds

[Rujack]

How’s the thiamine working out?

[tarverusmc]

really well.

update is 1000mg breakfast

1000mg lunch

PD med regular.

no left leg pain

no left side tremors

mind and body is clear

relax and not anxious

no rigidity

no pd symptoms that I had before the thiamine protocol

two weeks with this dosage and i will try to reduce pd meds slowly

[Hidden in reply to tarverusmc]

I copy and pasted your post to the following thread so that others can get a broad idea of the effects of short term thiamine dosing in PWPs.

healthunlocked.com/parkinso...

Please update that post with your progress when you can! Thank you for sharing your progress!

Art

[jimcaster]

Hi! I'm curious to learn whether thiamine is still helping you. I've been taking thiamine for a month and am very encouraged. Less stiffness and slowness on right side, more energy, slightly better handwriting. How about you?