Exploring Thiamine high dose HDT and alternatives. Also introducing myself to the group.

[HekateMoon]

Hi. Im a woman, 60 years old. I'm new to the group. Only started a few weeks ago and straight away started 500 mg Thiamine or Vitamine B1. I felt the results almost immediately as my muscles aren't as painful. Yesterday I up the dose to another pill for the night and rested quite well. My symptoms are tremor at rest on my left side, pain on my left ancle and foot, lack of balance, and tiredness. These started being visible dec 2018. I didnt see a neurologist till dec 2019 as my dr thought it was anxiety, which would have made sense at the time with three operations in three years, some loss in the family and a very difficult work environment. My neurologist was quite dismissive and told me to put my foot down and go home to relax. Where I live there is no more options for neurologists and i'm on social support so l started to explore alternatives. Diet, exercice, chi kung, acupuncture and finally found this forum and the Thiamine HDT forum in facebook. Also some educational resources. I noticed disease progression las year as my tremor was strong and more frequent but less on the days I excercice more. I also have ordered Mucuna. What is your experience with it? Does it ease the tremors? What dose would you recomend? How many of you are still with no medication? Very grateful to all. Be well. Regards. Chelo

[Gioc]

HI HekateMoon

Welcome to the forum.

Now you are in the right place to learn from the experience of others and in the end you will find all the answers you are looking for.

I have been using thiamine for 5 years without known side effects in conjunction with standard ldopa therapy for PD and nothing else.

I still work full time up and down in a flower store.

HDT is a simple thing to use and does not preclude l-dopa, the exact b1 dose can change from person to person.

My advice is to find your dose based on the symptoms of overdose or deficiency that you will soon recognize with experience.

In my case the tremor is reduced by thiamine and controlled by ldopa and increases with inflammation and stress.

But I leave it up to others, take the time to understand how this disease reacts or not to the various treatments because only then you will get all the possible benefits.

Greetings from Italy,

Gio

[HekateMoon in reply to Gioc]

Grazzie, Gio!

[Yeswithasmile]

Hi Chelo

I’m sorry to be so ignorant but can you explain what thiamine hdt is? I assume it’s a vit b supplement but what does the hdt stand for?

My husband was diagnosed around a year ago. He is on rasangline and roprinole and to be honest we have been lazy and just been guided by the drs. However it is clear that now we need to help ourselves. He is taking Q10 and multivits, cbd oil and high does omegas but a mild right hand tremor is steadily progressing.

I think it is also fairly evident now that he was suffering a long time before diagnosis as since taking roprinole his mood has lifted considerable and I can only put this down to that. He is much like he was when our kids we small and not as quiet, down and insecure. I had suggested depression for a number of years.

Anyhoo... the tremor isn’t improving so I h e started having a little look at things to try. Anything you have come across would be great.

It does sound like you are certainly helping yourself but I am so sorry that your symptoms were confused by the doctors. It’s disappointing to read that your neurologist was less than helpful but I am glad that you are now able to start to implement positive steps forward by the sounds of it.

😊

Edit: so sorry. It’s high dose thiamine 👍🏻 Just read that on another post!! Silly me.

[Somic67]

pls note this comment of mine. You are a beginner. You may be still on time to go natural and avoid meds.

see this

healthunlocked.com/parkinso...

and this: healthunlocked.com/parkinso...

someone will come in to say that this natural remedies are not science, or have no evidence or documented support. May be some of them yes but they are also cheap, reasonable and safe to try.

good reading.

[HekateMoon in reply to Somic67]

As allways, Sonic. Very kind and helpful.🙂

[Erniediaz1018]

Welcome. Whenever I speak to anyone about Parkinson’s I boast about being on this wonderful, very informative online community with over 14,000 members from around the world. I just looked at the numbers in members from when I joined to now, wow 😳 we have grown. Anyway check this post out

healthunlocked.com/parkinso...

[HekateMoon]

Thank you Ernie!

[chartist]

HM,

Welcome to the forum!

Here is a link to all of the information that Dr. Costantini, the founder of this protocol, left with this forum :

healthunlocked.com/parkinso...

If you have questions feel free to post them! There are a lot of people on this forum who use or are testing HDT/B1!

Art

[AmyLindy]

Welcome, HM /Chelo. You are in good hands w this group. I’m about your age and only 5 year’s into my PD journey. I found much more peace and confidence using low dose Sinemet over Mucuna. The HDT /B1 doesn’t hurt and probably helps, as does Mannitol (use search 🔍 for info). Exercise as hard and constantly as you can- while you can. It will delay progression & improve your mood especially if done w others. Isolation kills. Stay connected.

Amy