Botox for Drooling with PD?

[Kat343]

Hi, I've searched the site and didn't find anything on this, so forgive if its already been asked. HWP was placed on the atropine drops for drooling about 3 weeks ago, and no effect. His neurologist doc said if it didn't work , he could try botox injections. Has anyone done this, how did it work? What are the side effects, etc?

Apparently, the drops can have some major side effects and someone recommended clove oil on the roof of mouth, but what I read today, is that you should not use clove oil constantly , only up to 2 weeks (but it has other great benefits too!).

Any advice is very appreciated. Thank you.

[Kat343]

Ok of course, as soon as I posted this, I found a good post on Botox and Saliva. He does chew gum to help, and luckily does not drool at night possibly because he is a mouth breather so it dries up. However, I'd still appreciate any insights on the botox as well as any other suggestions!! Blessings to each of you, as someone said on the saliva post - we are al in this together!

[CRMACK1948 in reply to Kat343]

My husband had severe drooling,wetting his clothes and stopping his ability to speak,making going out socially a real trial for both of us.He started Botox injections almost 2 years ago,and it’s been a great success,with no side effects.The treatment took about 10 days to start noticeably working,but we would really recommend it.

[Kat343 in reply to CRMACK1948]

Thank you so much, I think he is leaning towards that. His drooling does not compare to what your husbands was, but it still makes a mess! Thank you again for responding.

[OKWY]

My husband started to get botox done for his drooling by his neurologist over a year ago. It starts to work slowly within a couple of weeks and makes it a lot better. He has had it done 3 times so far, about 4-6 months apart with no side effects at all. It doesn't stop the drooling 100%, but makes it much less severe and more manageable. I like the fact that the neurologist does it to this level only, so there are no side effects of dry mouth, which is not good for the oral biome. It's done to only one upper gland on each side, not the lower ones, so there's no risk of it getting close to swallowing muscles. Based on our experience and the skill of the neurologist (in Perth, Australia), we would recommend it and my husband will have it done again when the next appointment comes up.

Hope this helps and best of luck.

[Kat343 in reply to OKWY]

Yes, it did very much. Thank you for the info and I will request the neurologist to order the procedure. I appreciate your time, best of everything! Colorado, USA