change in meds, pd progression

[Jmellano]

diagnosed in 2015, My symptoms are:illegible handwriting,, bradykinesia, left foot cannot keep a clog on,Can't rollover in bed, balance issues, poor fine motor skills, can’t fold laundry, can’t put money into a wallet or items in a bag, swallowing issues, speech slurring, extreme fatigue, depression, lack of motivation and depression. I think I have most symptoms , although I don’t have sleep issues, constipation or tremor.

5/11 developed either akathisia or dyskinesia

Here are my current PD meds:

Carbidopa Levodopa (Started 5/11/24 try to eliminate dyskinesia/akathisia

25/100

1 tab 7am

Amantadine (started 5/27/24) try to eliminate dyskinesia

100mg

1 pill at 10am

Rytary

36.25 mg/145mg

7am (2)

10am (2)

2pm (2)

6pm (2)

8-9pm (2)

Rytary

Rytary 95 as of 6/3 taking this in place of a rytary 145 at 10am

I see doc this week to re eval my pd drugs. I am concerned he may prescribe more rytary or c/l as my bradyk , swallowing, speech and balance are worsening. Dyskinesia seems to have resolved due to amantadine, but other pd symptoms seem to be getting worse. I am worried about being over medicated with c/l , and especially after viewing the silver bullet presentation about that doctors perception of too much dopamine could be toxic.

Does anyone have any thoughts, options, recommendations for me?

[park_bear]

High-dose thiamine. Dosing instructions and other information at the links. Allow four months for full effect:

b1parkinsons.org/

healthunlocked.com/cure-par...

healthunlocked.com/cure-par...

facebook.com/groups/parkins...

A good source of thiamine HCl is here:

vitacost.com/vitacost-vitam...

[Jmellano in reply to park_bear]

Thanks park_bear, I have tried b1 but I struggled to find optimal dose . Any particular reason you think I may benefit from b1?

[park_bear in reply to Jmellano]

If you had trouble with it here is something else that has helped me and others - Cinnamon. Allow two months for full effect. My report healthunlocked.com/cure-par...

[Jmellano in reply to park_bear]

Thank you again park-bear. I love cinnamon! Your post that u referenced above has a lot of positive results reported with cinnamon. So I am thinking I should start with 6 grams , (approx 2 tsps )of Ceylon cinnamon powder preferably using a scale to determine 6 grams , Take 6 grams daily , mixed in my smoothie that has greens powder, collagen, protein powder, liquid vit c, almond milk , non dairy yogurt and frozen fruit. Hopefully, I might expect results in a few months. Does that sound right?

[park_bear in reply to Jmellano]

Sounds good! Let me know how it goes if you are so inclined!

[Jmellano in reply to park_bear]

i followed this cinnamon regimen for about 3 months, no change

[Fricnfrac in reply to park_bear]

Can you post another link please? It says this one has been deleted.... Thank you!

[park_bear in reply to Fricnfrac]

Unfortunately there's been a problem with the website which caused the deletion. When I'm able to get this back up I will let you know.

[Fricnfrac1999 in reply to park_bear]

Ahhh ok... Thank you again

[Jmellano]

will do. i willl order cinamon from amazon today. i am so weary of taking more drugs

[Jmellano]

Thabk you Thal for sharing your experiences, I hope we all find our holy grail that will defeat this ugky beast of a disease.