DHA for dyskinesia also improving sleep?

[1LittleWillow]

I'm doing Dr. Mischley's DHA protocol for dyskinesia (healthunlocked.com/cure-par.... I started my second bottle of high-dose DHA this past Friday.

I feel like I'm experiencing almost exactly what she said she sees in her patients. I still have dyskinesia, but it's reduced by about 50%, and because it wasn't severe to begin with, it's barely noticeable now--mostly just a tight feeling in my left arm and a brief flexing of my left foot for a few minutes. I've even had a few days where I didn't notice it at all as my mucuna/carbidopa wore off. I'm going to finish this second month at the high dose, then switch to the standard daily dose and add the CDP choline and see what happens. I'm hoping that might allow me to further reduce my mucuna/carbidopa dose and totally eliminate the dyskinesia.

The other interesting thing I've been noticing is that for the past 2 weeks, I've been falling asleep almost as soon as I shut my eyes (still using THC edibles), which hasn't happened in several years (I'm 5 1/2 years post-diagnosis, 6 years from onset of very obvious symptoms). Even with THC, it usually takes me 2-3 hours to fall asleep. In addition, if I wake up to use the restroom now, I'm getting back to sleep effortlessly, AND I seem to be getting more REM sleep because I'm having a lot of normal dreams again (and yet no RBD, which I have had several times in the past). The constant dark circles under my eyes that I've had since early 2022 also look a little better.

I Googled, and it looks like DHA can positively impact sleep, so it's *possibly* a secondary benefit I didn't expect. FYI, I've made no other supplement or dietary changes this past month.

[JayPwP]

How much do you take and at what times? Which brand?

[1LittleWillow in reply to JayPwP]

Super DHA Forte Liquid by Pharmax/Genestra, it's about two grams DHA per teaspoon, and I take two teaspoons a day.

Editing to add (because I forgot to answer part of your question) that I take a teaspoon in the AM when I get up and then another teaspoon later in the day whenever I happen to remember. I don't really pay any attention to the time or how many hours it has been between doses.

[JayPwP in reply to 1LittleWillow]

Thank you 🙏

[Alphasyn in reply to 1LittleWillow]

Thanks for sharing! What is the best way or channel to buy it with delivery in Continental Europe?

[Allypally49 in reply to Alphasyn]

I got my supply from iHerb see attached photo, it offers a 20% discount on the ones I bought 2270mg DHA per teaspoon., 100ml bottle.Free delivery.

I bought more, but used a different email address to receive the discount

( it was only for new customers, when I first purchased it)

Are you in the UK?

DHA

[Ep0522]

Was wondering the same as JayPwP. Is it a liquid?

[1LittleWillow in reply to Ep0522]

See reply to Jay above.

[park_bear]

This is great, Little Willow! Thank you for taking the time to make this report!

For those who have not seen it, Laurie Mischley's video on the subject with transcript can be found here: healthunlocked.com/cure-par...

[1LittleWillow in reply to park_bear]

You're so welcome! This forum is my favorite place because everyone has been so helpful over the years. 😊

[LAJ12345]

does it taste fishy?

[Boscoejean in reply to LAJ12345]

in this video Dr. Mischley is explaining this strategy and she says it does taste fishy

youtube.com/watch?v=piDgzpD...(Not working as expected?)

[LAJ12345 in reply to Boscoejean]

Oh, hubby probably would refuse it.

[1LittleWillow in reply to LAJ12345]

My sense of taste isn't great, but the oil that I purchased does not taste fishy to me. They add orange oil to it, so that's really the only thing that I notice.

[LAJ12345 in reply to 1LittleWillow]

Thanks

[ssrs in reply to 1LittleWillow]

My Hwp said is doesn’t taste fishy to him, he tastes the orange flavor.

[GranolaLovverr in reply to LAJ12345]

You could try Nutravege's plant-based omega-3 liquid. No fishy taste!

[LAJ12345 in reply to GranolaLovverr]

Thanks

I just checked it out but it doesn’t seem to have the amounts of dha that the other one does.

[1LittleWillow in reply to GranolaLovverr]

The oil Dr. Mischley recommends is a highly concentrated form of DHA. It isn't a regular EFA supplement.

[Allypally49]

Thanks for that

[Rufous2]

That Super DHA Forte looks great. For those who prefer capsules here's another option; iherb.com/pr/now-foods-dha-...

[Smittybear7]

do you take the DHA before you go to bed? Interested in following you! What was your dyskinesia like? Thanks for your help.

[1LittleWillow in reply to Smittybear7]

I take the DHA liquid when I get up in the morning and then again in the late afternoon or early evening (whenever it's convenient). It seems like the sleep benefits started kicking in after three or four weeks on the DHA (can't quite remember). I'm continuing to sleep better and I'm still having lots of normal dreams without RBD.

The DHA hasn't eliminated my dyskinesia, but it seems to have decreased it significantly. It's all on my left/affected side. My left foot "taps" and rolls inward rhythmically, I get a lot of painful cramping in my leg if I'm trying to walk, and my left arm gets really tight-feeling and swings up behind my back like someone's trying to twist my arm.

Back in early December, I was out shopping and dyskinesia hit while I was in the store. It was so severe and painful that it was kind of scary trying to get out of the store and back to my car. I've been taking the DHA since December 15. The day before yesterday (January 24), I was shopping at Target and dyskinesia started. My left arm felt a little bit tight and I was was limping just a little on my left leg (it felt wonky but not painful), but that was about it. I was able to finish all of my shopping and it passed after about 10 minutes. Not perfect, but much better than it was.

[TL500 in reply to 1LittleWillow]

Do you also take choline like Dr Misley said in the video? If so, does it help with anything? Thanks

[1LittleWillow in reply to TL500]

I have not started that yet. I'm going to finish the second month of the DHA and then start the citicoline.

[TL500 in reply to 1LittleWillow]

It's for growing dopamine isn't it?

[1LittleWillow in reply to TL500]

Per Dr. Mischley's video, "...there's a supplement called citicoline or CDP choline and what it does we think that the mechanism is it makes you grow new dopamine receptors."

[TL500 in reply to 1LittleWillow]

Thanks

[TL500]

Can you share how long after taking DHA that you see the good result? Thanks

[1LittleWillow in reply to TL500]

It seems like I started seeing a decrease in dyskinesia and an improvement in sleep a few weeks after starting the DHA.

[TL500 in reply to 1LittleWillow]

Thanks

[Smittybear7]

Thank you. Following, Please continue to send info.