Hi I have had Parkinson's for over 20 years and am on high dose of 'Madopar' with xado. I have had such bad dyskinesia that I am trying Mucuna with xado. Does anyone else take this medcation and can you tell me how you are getting on with it.
Many Thanks Lady Chatterley
What is xado?
Diagnosed 2012
My regimen:
The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...
Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.
New schedule, now I follow this regimen:
3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.
2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules
B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".
Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.I
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –
Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.
Join my facebook group:
"parkinson's thiamine hcl"
facebook.com/groups/2322600... …
Parkinson's Relief, Questions and Answers
Hi LadyChatterley. I don't want to change the course of this subject, but the purpose of your question is an attempt to ease the affects of the dyskinesia.
May I ask you please, while you are in the 'On' state, are you able to walk properly?
If so, have you tried, when you are in the 'On' state to walk as fast as you can?
I believe that it is never too late to build up your fitness levels to enable you to walk faster and for longer and while doing that you will probably be able to reduce your intake of Madopar etc. and slowly get better.
I could be wrong but is it not worth trying?
I walk very fast when the medication seems too much and cannot move when it does not work well or feel wooden and can only do slow movements
Hi LadyChatterley. Are you aware of what GDNF is? It is a natural protein that repairs the damage caused by Pd. It stands for Glial Derived Neurotrophic Factor. Glial cells are the cells damaged by Pd. Neurotrophic means 'Nerve Repair or Replacement'.
Why are we not told this by our neurologists? How can we get the brain to produce more GDNF? That is the 64 thousand dollar question.
I believe that when the brain thinks we are in danger, 'Fight or Flight' condition, it automatically produces it. I maybe wrong but since I have been doing FAST WALKING my symptoms have improved and I have live Pd medication-free since 2002.
Look at my website - reverseparkinsons.net and contact me. I will try to help you. free of charge. That's the best offer you have ever had.
They just continue to increase my dosage. I would be interested to what you have you have to say
I'm sorry to say that you are on a one-way trip and that is because Pd medication is not designed to slow down the progression of Pd. If you take more of it you will get worse quicker.
There is only one way I know to reverse that progression and that is by starting to do fast walking. EVERYBODY CAN START WALKING regardless of how far down the track you are, but the further you are the difficult it becomes.
Look at my website - reverseparkinsons. net and contact me, it cost nothing!
Hi there I am LadyChatterleys carer my lady squeals, talks like a five year old child and cries when the medication is wearing off and her description of coming down or being low on levodopa is a big black cloud comes over her. But what is the childish behaviour? has anyone heard of this behaviour before? I have cared for others with Parkinson's and not seen this behaviour before. Yet when I speak to my lady about this behaviour she immediately stops and talks in a normal tone of voice. Can anyone enlighten me please?
Just old age manifestation. Happens to some people. Let me guess, Lady Chatterly is over 80?
Darlene’s Parkinsons
Bipolar/parkinsons 
parkinsons 
TRAVELING WITH PARKINSONS
