Parkinson’s - hope and frustration Breakthroughs always seem five years away

[Farooqji]

I have huge admiration for the top scientists pursuing new treatments for parkinsons and for ⁦ which is helping to fund them. But here I describe the frustration we Parkies feel about the fact a breakthrough is always 5 years away

Rory Cellan

rorycellanjones.substack.co...

[PDWarrior1900]

well you know why of course... it's more important to spend hundreds of BILLIONS of dollars protecting Ukraine's borders... than investing in a cure for AMERICANS suffering from PD (sorry if I'm getting "political" but I'm just as DISGUSTED as you are)

[Farooqji in reply to PDWarrior1900]

100% agree. The same applies to other countries as well

[PDWarrior1900 in reply to Farooqji]

here's another sad fact...

combine all federal and non-profits -- including university research, etc = ONLY 250 million spent yearly on researching treatments, cures for PD ... but but but.... Medicare spends .....

-------------------

from google:

The study also revealed that the federal government alone spends nearly $25 billion annually in caring for people with Parkinson's. About $2 billion of that is shouldered by Social Security, and the remaining $23 billion is in Medicare costs since an estimated 90 percent of people with PD receive Medicare benefits.Jun 13, 2019

-------------------

BOTTOM LINE;

for every dollar spent on 'research to cure PD' .... 250 dollars is being spent to treat those of us with PD.

If that isn't fricken stuuuuuuuuupid, i don't know what is...

[dkdc in reply to PDWarrior1900]

Cut wheelchairs and welfare for pwpd

[jeffmayer]

I hate to be negative but it sounds like a load of codswallop a reason to keep us all on drugs because it's more profitable

[Todd-pw]

yes this is big only interested in big profits not the true wellbeing of patients unfortunately, i gave up on researching cures and instead looked into alternative therapies meditation, exercise and finding the rite diet if that exists.

[Todd-pw in reply to Todd-pw]

big pharma

[dkdc]

Because the researchers are too invested in a-synuclean hypothesis?

[Williemom]

it’s certainly frustrating and aggravating for all PD patients and those of us who are caregivers. My husband and daughter have PD so I’m overwhelmed some days with the frustration of all the the bureaucracy that goes on in our country for PWP, and other health issues.

We just have to remain positive and hopeful and do the best we can and remember to vote when the time comes. God bless America!

[Farooqji in reply to Williemom]

I understand your frustration. Believe me we would have found cure if the governments are seriously interested. They considered COVID as emergency and addressed it overnight. PD is considered disease of old and providing funds for research is considered as wastage of money