Hello everyone! Hope everyone is having a great summer. Question about pelvic pain, pelvic floor and gastric issues in relation to Parkinson’s.
Does anyone have any kind of feedback or has anyone out there experienced dyssynergia, levator Ani, proctalgia fugax, or any other tight pelvic floor issue related to the pudendal nerve and PD?
Additionally, if anyone does have experience with this do these issues make the tremors worse (meaning the more pain/more reaction and the worse the tremors are) or has there been no reaction?
Any feedback would be great. Thanks.
Written by
MissRita
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I'm not sure I understand the terminology that you use. I started to develop issues with constipation and right side aching and fullness. I had a CT scan done they came back clear except it said my intestines were full. Sometimes it keeps me up at night and intensifies the tremors. Sometimes I get a whole right side tremors and my big toe lifts up. I can sometimes resolve the fullness through massage. At times it gets very uncomfortable and I have difficulty getting back to sleep.
HekateMoon was asking about pain in the pelvic floor area a few weeks ago I believe. I've only got a teeny screen today so can't search for it to link...
i have pd rigidity in my diaphragms which makes my lungs collapse which puts stress on my heart whicgh also has pd rigidty issuees so itts failing as well. do your kagels...men and women. all physical and psychological stress makes pd tremors worse fotr me. its a vicious cycle.... hang tough
Hi Miss Rita. I did for a couple of months. Investigating at the moment. It was a weird sensation. Central nerve pain going from pubic area to spine and down my leg. It was worse when off my c/l. Still not sure it was Pd related. But sure it aggravated my Pd symptoms x 100...I went to the womens forum and found something. Possible lichen sclerotus. An autoimmune disease. I talked to dr and prescribed a cream that helped a lot. I have had two operations in the last 5 years related to a big troublesome fibroid...still not sure yet but i think my body decided to attack itself in that area...yo can dm if you want. Id like to explore more as not completely sure what im dealing with yet. Ups...reading the levator ani syndrome...i could relate. Very frequent caused by hysterectomy. Yes, definitely, lets talk more privately if ok with you.
Similar symptoms can be caused by endometrial tissue growing on the pelvic floor nerves especially the pudendal an obturator nerves which can radiate throughout the genital area and into the legs.Also more commonly are problems (inflammation, injury) of the symphysis pubis joint giving similar symptoms.
Rings a bell, Sane. In fact the whole bellfry is ringing...Its very possible for me. After of two hysterectomy operations...( Yes,two...they messed up the first one)
Can’t even imagine how one messes up a hysterectomy….Was the surgery in response to uterine endometriosis by any chance ? (Don’t feel it necessary to reply to that question).
First they ignored a massive fibroid for years, then as many women died due to neglecting their colposcopy results, they rush me to hospital and without proper MRI they proceed to operate. Surprise surprise, the fibroid had migrated from uterus and was lodged between cervix and colon. The surgeon didnt know what to do. As they didnt have a colon specialist in the operating room they extirpated the uterus but left the fibroid. Meanwhile, colposcopy couldnt say wether there was malignancy or not. This whole stress went on for a couple of years. Finally they extracted the fibroid along with cervix. It wasn't malignant but my Pd symptoms, along with the weird symptoms I've been having started right then. The Irish medical system is a bit of a disaster...Now im more inclined to believe this weird pain is due to some operation mess. When it hits me it aggravates the pd symptoms. Im seeing a pelvic floor physio tomorrow. Thanks Rita and Sane for sharing info. And the rest for getting us in touch. Isn't this a great forum???
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Tremor dominate and freezing... Does anyone have issues with tremors that turn into an off frozen state?
More off time and freezing
PD symptoms much worse after getting Covid vaccine 
