MissRita in reply to Thal

Thank you!!

MissRita in reply to park_bear

Right I know that the tremor is a motor symptom but my thought is if it’s coming from the Gastro intestinal track which is a non-motor isn’t there a correlation? I think for me it’s really based more around the enteric nervous system all together.

park_bear in reply to MissRita

I understand that the G.I. tract events can trigger or aggravate your tremors, but the nerves that control your muscles and that can cause tremor come from the brain.

In any event this involves muscles moving which by definition is a motor symptom.

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MissRita in reply to park_bear

Ah ok, thx.

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MissRita in reply to ion_ion

I realize that but gastrointestinal is under non-motor symptom. So I guess my point is when my gastrointestinal tract is symptomatic or having issues than the tremors get far far worse. To me there is a definite connection because when my Gastro intestinal track is not or is digesting food or having gas or whatever, then the tremors are virtually nonexistent. Mind you when I’m hungry I tremor, when I have anything that disrupts the digestive tract I tremor. It’s a conundrum for sure.

ion_ion in reply to MissRita

My tremor stopped when my digestive system was empty. It started to come back gradually after filling up. It looks backwards then yours.

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MissRita in reply to ion_ion

Yeah that’s pretty funny that you mention that because I go through the actual same thing. When I empty it I get far more tremors and then they subside for quite some time and then I feel better throughout the day and don’t eat nearly as much if at all. I do know that as soon as I do eat the tremors come back. So we’re sort of the same.

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Hikoi in reply to MissRita

Sorry miss rita, but are you serious,? You are not trying to see how gullible we are? Having a laugh?

I have never heard of non motor tremor and neither has Dr google.

In PD your gut mobility affects the absorption of levadopa which in turn affects tremor.

You are asking about medication to treat non motor symptoms. Do you mean one medicine to treat them all!

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MissRita in reply to Hikoi

Lmaoooo I know I have to laugh too but it just seems so odd that a non-motor issue can affect a motor issue doesn’t? I mean I can’t tell you how frustrating this is because I don’t understand it! Lol

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MissRita in reply to Hikoi

Well it would be nice if I had something to control the non-motor issues that are affecting my gastric issues. Such a conundrum!

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MissRita in reply to DHPSR

Funny that you ask that. I just bought cats claw, the powdered version. I’m not sure how to take it. Sleep for me has never been an issue. I could sleep my life away. But what I’m finding is either I am taking too much L/C or my body might just be resisting it. I have read that many patients don’t always react to L/C very well. For instance I took two tabs of 25/100 this morning and I took it about 2 1/2 to 3 hours ago and I’m starting to sweat already and the tremor hasn’t fully gone away and it seems to be slowly coming back. Mind you I’ve had this tremor since 2015 and was formally diagnosed in 2017 I get anxious about this because I keep thinking maybe it’s progressing faster then I know. I just recently was able to secure an appointment at Strong Memorial in Rochester New York in May so that should be interesting to see what they have to say. I see a doctor where I live now in Syracuse New York and although they are good they don’t seem to be very well versed in the current knowledge of PD and seem to be stuck in the textbook mindset of what PD is and how to treat it. I will see them next Tuesday and that should be an interesting visit.

DHPSR in reply to MissRita

I take a 1/2 tsp cat's claw powder in the am dry on a teaspoon, seems to help some

2 tabs of 25/100 L/C would be a lot for me to take at 1 time, I would probably react too!

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MissRita in reply to DHPSR

I have tried NAC and although it started to show some improvement, it consistently did not work.

DHPSR in reply to MissRita

It's the combination of Ambroxol with Acetyl L Carnitine and adding NAC, & Ubiquinol that I'm testing now

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MissRita in reply to DHPSR

I bought the Ambroxol and I am curious as to how it’s working for you?

DHPSR in reply to MissRita

Just over one year now on Ambroxol and it's still working very well to keep me clear of brain fog, reduce the number & severity of my freezing episodes, as well as some small motor improvements (typing, facial gestures for example), & reduced meds (no more ropinirole for me). Starting now to wonder if some larger motor movements aren't benefiting from it now too, like getting out of our deep couch (have noticed has gotten a lot easier for me). So all in all, very happy with how its working for me.

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