It looks like many of the supplements recommended on HU plus a few more have been used to treat Alzheimers for some successfully. For instance to restore balance btw glutamate to GABA with valerian, B6 and lemon balm. We have never supplemented with several such as PQQ which might be good for pain. Suggest tyrosine and phenylalanine to dopamine production.
I am not recommending the book Bought it on Amazon kindle $10 or used for $6. It may be available through kindle lending library (public library ebook). Cheaper than some of the scientific articles I have bought. I will update, although I am not as educated as many of the other members about scientific credibility, hopefully, research is annotated in book.
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Sydney75
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Yes that's why I have to do so much research before I buy supplements. Everything reads like the magic pill. I skimmed Harold Shifke book Fighting Parkinson's and Winning and while I don't doubt he was healed, I am not sure if what he did would work for anyone else. I follow the threads. Blessings to you!
Summary: recovery/healing stories should be taken with a substantial serving of salt. Statistically speaking, anyone apparently free of PD at the present time is far more likely (and my back of napkin math suggests we are talking thousands of times more likely) to have never had it in the first place than have recovered from it or "healed".
"Accordingly, we performed a qualitative review on the misdiagnosis issue (table e-2). Among clinic-based studies, 3,11–25 MSA (range 0%–9.8%), PSP (range 0%–6.5%), dementia with Lewy bodies (DLB) (range 0%–8%), AD (range 0%–7.2%), and VaE (range 0%–7.7%) were the most frequent final diagnoses associated with false-positives"
Three of the five most common conditions associated with false positives were Parkinson's plus conditions - alpha synucleinopathies that are even worse than Parkinson's. So, even though these are misdiagnoses according to the study, recovery from these conditions, if such occurs, is even more impressive than recovering from classic Parkinson's. Therefore, for the purposes of recovering from alpha synucleinopathies the accuracy numbers furnished by the study considerably overstate the number of misdiagnoses.
There's plenty of articles on this. I suspect that you are willing to acknowledge that at least a small percentage of false pos dx are in actual fact a much more benign condition that could readily be subsequently interpreted as a recovery.
If there are 5m people on earth that have a pos dx, and 2 percent are false pos (the number is certainly higher than this) and only 1 percent of that 2 percent have a self resolving condition (i.e not PD or a syn condition or alz)
Then that is still 5m x 0.02 x 0.01 = 1,000 people at any given time.
It only takes one to write a book about how they healed..
Dr. Dale Bredesen, the author of the book founded the very credible Buck Institute. He has over 30 years experience researching ALZ. He has been interviewed by very credible doctors like Dr. Rhonda Patrick. We must of course remain cautious and diligent but also, do not be discouraged by the chronically negative responders on this forum.
Discouraging the pursuit of evidenceless theories and protocols is not negative. PwP have limited time, energy and money. Not everyone wants to spend their entire existence obsessed with PD, even if some here very clearly do.
“Evidenceless theories and protocols”. That’s quite an accusation. Are you able then to discredit all the evidence and research he sights? How about try and discredit ANY of it? Part of his “evidenceless protocol” includes recommending bacopa , Citicoline, Ginko Biloba, stop exposure to mold, and reducing sugar intake. Perhaps starting with some low hanging fruit will work for you? What about those is “evidence less” as you said? Your response will predictably be attempts at insulting and minimizing me. 😂 😂 😂 which is such a small and sad thing to do with your time.
Flippantly denigrating doctors like Wahls and Bredesen is easy. Backing up your accusations is not. I know you won’t because you can’t.
So, the same treatment that you gave Marion, then. Ad hominems.
Havent you repeatedly demanded that I "leave you alone"? Haven't your supporters/enablers repeatedly echoed this plea on your behalf?
Yet now you engage me? Have you really got such poor impulse control?
Once you present evidence that Bredeson's pricey protocol has been well documented as showing a meaningful efficacy in Parkinsons Disease, we can then discuss the specifics. Until then, its up to him. Or you. Or whoever. Of course, in a fortnight you will have a new shiny toy that you discovered by watching YouTube. Sorry, I mean "researching".
His protocol hasn't even achieved widespread adoption in the ALZ treatment field. Despite the 30 years that you find so impressive.
No that seems reasonable to me. I don't want to be obsessed with Parkinson's either, and I'm not crossing a line. We can have our own opinions and we can state them... That they will be maybe you don't like people being equal.
The rest of that sentence is, "even if some here very clearly do."It was a cheap shot by kevowpd and totally unnecessary.
MP, I'm all for equality and difference of opinion. I have no patience for the personal attacks on this forum that seems to originate from the same contingent of members.
Given your background, how do you suggest we deal with what I perceive as bullying?
So you are ok, silent echoes, with your pal characterising me as "chronically negative"? Before I had engaged with her at all, mind you, and after I had simply offered my view on Bredeson and mis dx in PD? Note that she chose not to address the substance of my comments in any way, shape or form, but had the energy to deploy her ad hominem.
I guess when they swap heart emojis with you on the regular, you hold them to a different standard.
I'm more than familiar with your posting style. You frequently set yourself up as a defenceless victim by mischaracterising the remarks of others in order to gain sympathy from those that aren't paying much attention.
Let's not forget your recent now deleted thread where you dramatically characterised people asking quite politely for references as "the usual suspects demanding proof".
Shine light on it, don't let it get by, not one instance. If they riposte with more or deeper or clever bullying, like mis-stating or adding on or changing an argument or changing a premise or exaggerating, or miscast what you said to make you appear less reasonable to the uncritical reader, so that they can appear right when actually they're wrong or still attacking you with bad will or bad faith (fighting dirty), if they erect such gaslighting or other distorting or move to exaggerating or name calling or any other ad hominem, hang with it with a reply identifying with descriptive terms of what they are doing, and if during the exchange they add and create more distorting or twisting maneuvers, stop to list them all, because that removes the cover that snipers need to have, state exactly what they did, what new twist they added or piled up, list them all, purely descriptively, especially things they accuse you of whilst awarding or arrogating to themselves the use of tactics they forbid or criticize or label you for, openly describe any personal or pejorative or ad hominems they slap or add at you with, then list and describe any flaws in their reasoning. 8n whatever order you like but I prefer in the order they occur... keep it going, keep listing and don't give up until they quit it.
It also makes a record, for the administrators, so that even when the moderators are used as weapons by "being the first to complain" and the moderators stupidly allow themselves to be manipulated into punishing you and rewarding the bully you can still loop back to them about it if you like.
The Zebra hasn't authored a single post. Not one. And he hasn't independently contributed to the knowledge base on this forum. There are a lot of lurkers, but at least they don't bully the people doing the work.
Zebra can disagree with me. However, that's not what his actions are. It's seems that his interest in this forum is to hangout and act curmudgeonly towards people who don't share his point of view and therefore are targeted. To me Zebra is a stalker who hides behind his keyboard and needs to be called out on his antisocial behavior.
First you imply bullying, and when that is shot down you then make accusations of stalking and antisocial behavior because someone challenges your view and asks you to cite your statements? There are any number of people here who respond but do not put up their own posts so that is an (I would insert “ridiculously” here but I don’t want to be accused of bullying🙄) unrealistic standard. And I am done with hijacking this post. Apologies to Sydney.
“Not everyone wants to spend their entire existence obsessed with PD, even if some here very clearly do.”I find the thought that you can choose to be very enlightening. I thought from the time I was diagnosed that being obsessed with PD was an objective thing. I mean, experiencing off med anxiety, peak dose dyskinesia every four hours, let's say it fixes your attention a bit. Not to mention the tremor, fatigue and non-motor symptoms like constipation, the side effects of medication I really didn't think there was a way to live life with Parkinson's without worrying about the future. Obviously I'm doing something wrong, or my illness is different as the study you quote suggests (a bit retro 2016). Yet I have a spect datscan showing two nice round dots with little halo around ie positive to PD and respond well to levodopa. mah!
You are more obsessed with me than you are PD. Of course your description of your PD changes daily to suit whatever reaction you are chasing at the time.
You should check out thiamine.
"Relevant improvement of motor and non-motor symptoms;
The disease does not seem to progress;
Absence of insurgence of complications due to long-term use of L-dopa;
No collateral effects or alterations of the results of blood tests."
A nice cherry picking of my posts from the last 5 years, can you put the links too? you were also very fast, do you have a database where you collect my posts? I ask? to me you seem autobiographical about obsession.
There was no need to disturb HDT and Dr Costantini to know my story: it is written in my posts here and in my bio you have always found my medicines, as well as my personal photos, my friends also have videos. Rather, in a year you have written only replies (hundreds but no, never, your direct experience), but not even a post. Free to do this, but a little anonymous, don't you think?
Your friends here are only such as long as they agree with you. Hikoi, Levod (who has left) and WTP have all been the recipients of your "warm greetings" only to then feel the cold knife of your vitriol once they step out of line. Charming.
You are very wrong as usual. This is just your point of view, unlike you I have a deep respect for all Parkinson's patients, and even those you mentioned are my friends, because I know their sufferings, too if sometimes we disagree and argue. You continue to be autobiographical, go to sleep , it's late.
If you respected them you wouldn't mischaracterise their remarks and insult them. They are not your friends. You are not a friend to pwps, you are friend to those that share your faith. In whatever it might be.
As PD and HU veteran Hikoi (who you frequently disrespect) recently astutely pointed out to you, you are here to play games.
From Mayo Clinic: Traditionally, Alzheimer's disease was only diagnosed with complete certainty after death, when examining the brain with a microscope revealed the characteristic plaques and tangles. Clinicians and researchers are now able to diagnose Alzheimer's disease during life with more certainty. Biomarkers can detect the presence of plaques and tangles, such as specific types of PET scans or measuring amyloid and tau proteins in plasma and cerebral spinal fluid.
I defend doctors like Dr. Bredesen because they empower us to make lifestyle changes that can greatly improve our health. My father has improved and I have improved by my implementing things learned from Dr. Bredesen and similar doctors. I highly recommend reading his books.
The commenters who admonish him for claiming he has “cured ALZ” have obviously not read either of his books or listened to him being interviewed. He does not make that claim!
Nor have they proven one, not even one, of his suggestions wrong.
And they won’t because they can’t.
They will respond with sarcasm and general mudslinging and personal attacks but notice, not one of Dr. Bredesens suggestions has been addressed let alone disproven.
I know you are correct Despe. I just want so much for PWP to see that they can help themselves and that diet and lifestyle make a massive difference.
Thanks, this is just the type book I've been looking for ! Not for ALZ, but for some tips, and info about Gaba /glutamate, and other things you mentioned.
Geez Folks! No need to get your pantys in a twist as my Grandmother would say. I like that people share information and hope on Healthunlocked. I have learned a great deal about neuroprotection from information shared on Health Unlocked. I am practical enough to know there is not a magic pill, but stalling the progression of PD is key. I understand the converation regarding what some call an "obessession", in my case my HWP does none of the research as he finds it all so overwhelming. Some folks do a deep dive when they or a family member get an illness. Others rely on the medical profession etc. To each his own. Happy Spring!
I happened to have posted the same thing last week. Neither then nor now have any of his specific recommendations been mentioned let alone disproven. And they won’t be. Notice I have said this twice previously and again now.
If you are going to discredit someone’s recommendations and stating it as if it is a fact, sight some proof. You can’t.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Have you had success with B1?
Exerciser
Free book on Parkinson's First Hero
Diet? Could my PD cure be that easy? I chose the Wahl’s diet. Essentially, eliminate gluten, sugar and dairy. Fill your plate with colours.
