I still do experience hunger, although my sense of thirst is reduced and requires a more subtle awareness. The key question - are you maintaining your weight?
"If I drink, it won't be long before I go to the toilet "
This is a big red flag for me, because it 'may' mean that your body doesn't retain liquid anymore. I'm not a doctor, I've got zero medical experience and so don't want to sound alarmist but please do see a doctor
husband with Parkinson's is not hungry very often and initially I think this was due to a digestive issue seems to have resolved by visiting a GI and using other methods including digestive enzymes - it does seem logical that food would be less appealing when the sense of smell is less but there does seem to be some possible connection between Parkinson's and a reduced appetite that may not even be related to taking medication
I think the reduced intake is because the gut moves slowly in pwp so there isnt room for big meals. Small and often I was told, obviously they didn't have to juggle protein and meds.
I was also told that we mistake thirst for hunger and also as we age we dont have the same thibrsty feeling. As to going to the toilet often that is very common.
They did the evaluation that showed that his digestion was not slowed but he did have SIBO and GERD which were treated and then he felt better and did not feel too full all the time. He is on some natural treatments for both but did take medication to get rid of the GERD initially. SIBO seems related to a problem with the microbiome. He was given 2 rounds of rifaxin which did nothing then metronidazole which worked. There are natural methods of improving the situation IF the person does not have the slowed digestion. He takes a probiotic that is specifically formulated for him based on his needs. There is a protocol that addresses GERD that involves taking B6, tryptophan, methionine, melatonin, methylfolate, B12, and betaine. He takes all of these but the betaine.
Regression of gastroesophageal reflux disease symptoms using dietary supplementation with melatonin, vitamins and aminoacids: comparison with omeprazole
The reason you have to rest after breakfast is because you ate grapes for breakfast. these are high in sugar and cause an insulin spike to control the resulting raised blood sugar but when that raised blood sugar has been dealt with you will have excess insulin until the body has had time to react and the excess insulin will cause low blood sugar for a while which will make you feel tired.
For breakfast you should be eating protein like bacon, eggs or fish. Fruit, cereal and toast are the worst things to have for breakfast.
My specialist told me to take my medication wait 2 hours then eat. That didn't work. Tried not eating at all until mid day. Same outcome sitting down for 3-4 hours because the strength has gone from my thighs is not productive I can tolerate half a slice of toast without butter etc OR half a dozen grapes OR a teaspoon of coconut oil. Just very small amounts.
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