Long time no write

[Bridielena]

Diagnosed 2005.

On Madopar since then

Symmetrical and Zadago added

Exenatide Injections on and off weekly for last 2 years and again (off). Monitor my own daily usage of Madopar

Yesterday began the daily routine at 6.00am of Madopar 125 X 1.

As I had special arrangements for the day decided to keep up swallowing it every 2&1/2 hours , last one at 4.30 pm.

I was mobile all day, using my stick, just in case, little Dyskenesia, still going strong by 10.00 pm. Woke today at 1.30am😩sat up looking at emails for roughly 45 minutes when bathroom visit essential, hobbled as usual with frame, then after 20 minutes started feeling stronger. Became more confident of my mobility and set about starting chores. It’s now after 4.00am and I’m still UNMEDICATED.....almost 12 hours since 4.30 am yesterday. Some Dyskenesia though.

Why !

[Astra7]

Sounds good!

[jeeves19]

Sorry. I don’t understand!

[Bridielena in reply to jeeves19]

I wasn’t enjoying Health Unlocked which is the reason for the Title.

I was trying to say after all the years of being on Madopar and getting worse , suddenly yesterday and today it’s practically turned around. Without thinking I could get from A to B unaided. I was wondering why.

[honeycombe3 in reply to Bridielena]

Hi Bridielena, good to hear from you again. We seem to have shared experiences over the years. If you fathom out the answer about mobility improving please let the world know. Like you I have had an extended break from this, and many other sites. I am intrigued by your meds regime. When I was dxd in 2004, 15 years ago I tried Madopar but had a reaction to it. I was involved in Birmigham Unversity's long- term study of drugs -of- entry to PD which he been published some time now. The only drug from that time I still take is Requip. There have been many other meds alongside it and I am now into yr 3 of Using the Apo go pump. On a (rare) good day people still do not realise that I have PD.

[Bridielena in reply to honeycombe3]

Hello Honeycombe3

Things have changed dramatically. This condition is so mysterious. I’m relying on Madopar every 2 hours through the day. Yes I’ve reduced dosage and get through the day from roughly 4.00 am to 7.00pm on. 5/6 X 125.25 tablets. Seems to suit me.

I was diagnosed nearly 15 years ago too. Re that Pump......have been offered it but it had no appeal for me.

I’m in a nursing facility now at 72 as I became a Widow 12 months ago. I do need support but still independent here although not enough stimulation for my ever enquiring mind. Fellow guests are mainly 10 years and more and on the path to dementia so management cater to them with such childish activities it makes me shudder.

I use a walking stick but do need a walking frame at times. At least this place is very modern opening only 6 months ago.

I had to leave my home town though which has been a kick to my stomach . Am closer to my Son. I wait for a change in his partners attitude as he try’s to keep me in the fold. She has issues too and one day will need assistance so Karma is resting on her shoulders.

I believe that food plays a big part in efficacy of Madopar though. I’m really at my strongest before starting with breakfast. Strength starts to wane then.

Each day is different. One cannot stop the ageing process which makes this condition a challenge to maintain.

I’m over hoping. It’s a useless emotion for me, to uso I just get on with it.

I have a Son only with a partner who prefers to keep me out of her life. Difficult lady.