How my Parkinson started

[Wojciech_Author]

I call it the The Last Supper

The doctor looked me straight in the eye.

”Your cerebellum is damaged. You’ve got maybe seven days to live.”

No emotion. No hesitation. Just that.

I nodded. Walked out. And went to eat.

No, seriously. I took my family out for what I thought might be our last dinner together. We laughed. We ordered dessert. We took photos. I didn’t tell them the truth. What was the point?

If I was going to die, I didn’t want to spend my final hours in a hospital bed. I wanted to taste life, not mourn it.

Then came the beep.

My phone lit up: hospital number. Urgent.

“Come back. Now.”

New scans. New eyes. New confusion.

”Actually… there’s no cerebellum damage. We don’t know what’s going on.”

I wasn’t dying. Not yet. But something was wrong.

And so began my story with Parkinson’s.

Not with a tremor. Not with stiffness. With death. Or at least the illusion of it.

[Bolt_Upright]

You are a very good writer Wojciech. It is interesting as English is your second language. Maybe being a second language gives you clarity? I know ABBA were great writers in a second language.

I just wanted to share that. You have a gift.

[Wojciech_Author in reply to Bolt_Upright]

Thank you so much. i speak English and Spanish. But never wrote in Spanish.

[Charaf1959]

Bonjour, quel choc terrible. Le médecin devrait il faire frontalement une annonce pareille ?

[Patient100]

”Your cerebellum is damaged. You’ve got maybe seven days to live.” This sounds like a weird prognosis for cerebellar damage. What made the doctor say that, what were your symptoms?

[MarionP in reply to Patient100]

Boy I'll say. Sounds like some really lousy doctors.

[MarionP]

Sounds like you have had some crappy doctors.

[Wojciech_Author]

I had bad luck. But happily i am alived

[Gioc]

What type of scan was it?

[Wojciech_Author]

MRI. Later, I was diagnosed based on a DaTscan. But at that time in Poland, it was hard to get one.

[Gioc in reply to Wojciech_Author]

And so what was the doctor's diagnosis to give you 7 days to live and see you walk away on your own two feet despite having cerebellar damage,

then you write something hard to believe: "I nodded. Walked out. And went to eat...".

In my opinion this is a text generated by an AI given the unreal and generic context of the episode.

Furthermore you answer as if an MRI and a DaT scan are two equivalent tests while in fact they are two completely different tests and both necessary for the diagnosis of Parkinson's.

[Wojciech_Author]

Haha. All is truth. Let me explain.

I remember it like it was yesterday. It was almost 10 years ago. That neurologist – during a private visit – looked me in the eye and told me I had seven days to live. Seven. Days.No test, no scan, just fear. I do not know why he said this? He told me to go to the hospital immediately. He kept calling. At the hospital, they ran only one test: an MRI.

The doctors were confused. Surprised. And then they just sent me home. Bcos the MRI was ok. Nobody could tell me what was wrong. Then someone floated a bizarre theory: psychogenic parkinsonism. That’s right – they suggested it was all in my head. A condition that makes up maybe one percent of all parkinsonian syndromes. Then after some time, I had a DaT scan. And finally – Professor Andrzej Friedman, a leading neurologist in Poland – looked at the evidence and gave it a name: Parkinson’s disease

[Wojciech_Author]

And while that crazy neurologist kept calling me, I was in a restaurant with my family, having something that felt like a last supper. Getting a DaT scan in Poland ten years ago was hard — it was expensive and not easily accessible. How I managed to get that DaT scan — I’m not going to tell

[Wojciech_Author]

I wanted to share the drama of the whole situation. I just have one request for the future: let’s respect each other. Why would I lie

[Gioc in reply to Wojciech_Author]

This new version of the episode is slightly different from the previous one, but it still has several illogical points, such as omissions, for example,what was the diagnosis that gives you seven days to live. Your paid for that! Also, I understand that you liked to eat and go out to dinner as if nothing was wrong, but it seems a bit out of context to me.

I also think you’re using an AI to help create and write the scripts. This is easily deduced from the incorrect relative importance assigned to things, typical of someone unfamiliar with the real scene and its purpose, as happens with AIs. For example, advanced cerebellar damage puts you in a wheelchair and you cannot walk.Every one knows that, AI apart.

For this reason, no, I don’t believe you.

I don’t buy anything!

[Wojciech_Author in reply to Gioc]

Do I sell you something? No. So please stop it.

The first doctor suspected **brain damage** – that’s what I was told.

If there are small differences in what I said, it’s because one version is **medical**, the other **literary**. That’s all.

I don’t owe you any explanations. And honestly, I try to avoid toxic situations—because they only feed Parkinson’s. So let’s leave it here.

[Gioc in reply to Wojciech_Author]

Medical,literally, bah!

You change your story and expect me to believe you?

You should change the second part of your name to be credible and from your posts I see that they have already banned you once.

[Wojciech_Author in reply to Gioc]

i did not change what i changed ?

[Wojciech_Author in reply to Gioc]

i understand its unbelivable but such a cases exist. so do not belive

[LAJ12345]

I have a friend here who has not really got noticeable PD symptoms except depression and arthritis, she has been on risperidone for 25 year after a marriage breakdown and them diagnosing bipolar back then and never reviewing it for 25 years!

She was put on 100/25 levodopa3x perday which had no effect. She has just had a datscan which shows no sign of any problems in the dopamine area. Then Specialist has doubled her L/c! Same guy who nearly killed my hubby by overdosing him.

They have weaned her off risperidone over a couple of months and onto quetiapine. She is not feeling good. Very weepy and sad.

What do you think they are up to? Why double the levodopa if no problems on datscan and no effect?

Risperidone side effects are PD ism symptoms.

[Gioc in reply to LAJ12345]

Who is he? A psychiatrist? . Neurology is the correct specialty for PD.

Greetings from Italy LAJ 🤗

[Wojciech_Author]

he was a neurologist

[Gioc in reply to Wojciech_Author]

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