Today after eating his breakfast at 9.45 my husband said he got a cold tingling sweaty feeling and had to lie down. He had his sinemet and uridine an hour or so before so I don’t think it was that. Do you have any idea about what that feeling might be? He thought it seemed like when you get a stomach bug and feel like you might pass out or vomit.
He has whole grain oats for breakfast with a spoon of milk whey, stewed plums and small amount of milk, with tea.
He is getting hard to get up in the morning again Now it’s winter and has not been feeling as well as he had been for the last 3 months after starting the Hardy’s. I’ve tested his blood vitamin d, b12, b6 and folate levels just in case the high doses of vitamins are too much and all are at the top or just over normal ranges so not way off the top of the charts or anything.
I’m just starting out testing blood glucose in case that’s the problem. Today they were 7.6 half hour after breakfast and 5.3 two hours later so I think that’s ok. ( I checked mine too and I was 6.6 and 5.1 on the same food).
Does anyone know what the cold sweaty tingly feeling might be? It last for about 10 minutes but was enough to send him back to bed.
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LAJ12345
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To me it sounds like a fainting attack (his GP might call it vasovagal syncope). His BP would be low especially on standing. You say he had his sinemet an hour before so it is likely he was at peak dose then, that is, it was at maximum effect. Add food which can also cause lowering of BP while the food is digested and you feel like you will pass out. It is an awful feeling and resting until it passes is the best idea.
Thanks that sounds like it might be it. I have bought a blood pressure device so I will measure it next time he feels that way. He has fainted before and his DNA analysis said he could be prone to it.
Well I am not sure if I am using this machine correctly but it was 148/91 before eating the 137/ 75 straight after eating. Then he lay down a while and it stayed lower at 138/ 75. I will get a nurse friend to check I am doing it correctly. It seems high.
One of the "joys" of PD is that most of us get involvement of the Autonomic Nervous system and one of the signs is Orthostatic hypotension, that is a drop in BP when you stand after sitting or lying. The American medical people defined it as a decrease in systolic (top figure) blood pressure of 20 mm Hg or a decrease in diastolic (bottom figure) blood pressure of 10 mm Hg within three minutes of standing compared with blood pressure from the sitting or supine position.
Often this is without symprtoms but sometimes you may experience symptoms at peak dose or after eating etc.
I guess it is the Sinemet... On several occasions, when I took instantaneous release Sinemet on an empty stomach, I would feel very sick... and I would have to lie down... and I have even passed-out... and when I came to, I was cold and sweating heavily... If you are using Sinemet instantaneous release, try eating a low-protein snack right before you take your dose, and/or split your dose in two, and take them 30-60 minutes apart, or switch to Rytary or Sinemet CR...
Edited to Add: The time to maximum concentration of Sinemet (i.e., IR) is roughly 60 minutes, whereas it is Sinemet CR is 120 minutes (i.e., a much slower release of the C/L into the bloodstream)...
Thanks. I think you might be right. I wonder why suddenly it is making him feel like this. The uridine seemed to stop the nausea when he started taking but maybe the effect has worn off.
Sinemet doesn’t seem to do anything for him so maybe he should try leaving it out a while. He only takes one in the morning.
I’m not sure what symptoms it is supposed to relieve. At the moment his problem is not wanting to do anything again. Would it help that? At the moment it just seems to make him nauseous.
It helps my lethargy. I can tell when I need more sinemet because my energy plummets. I think you have been adjusting his anti depressant anti anxiety meds too. I would be very wary of stopping such meds because we cant help not having enough dopamine which is the feel good hormone, it is a chemical imbalance in the brain. Our type of depression is usually an anxiety depression. I think he had a psychotic episode too which is very common and is caused by the disease or by meds or a mixture of both.
Ok I will try him on an extra sinemet though the only thing he thinks it does is make him nauseous. He has been on the same amount of depression meds all year so I don’t think it’s them. He was doing so well with lots of energy and feeling good, then suddenly back to square one.
This happens to me frequently, and in my case, it’s GIRD (GI Reflux Disease). It comes in bunches and when I am in a bad time, I take derhyzinated licorice 20 minutes before eating and a simple Antacid 20 minutes after. Eating less and not too much cold stuff also helps.
This is a problem that I've been having, also. I've been meaning to post about it myself. It can happen at any time of the day. I feel light headed and wobbly, sick to my stomach, and afraid to walk. I have to go to bed and rest and within an hour or two it's completely gone and I feel very tired.
I hope some of your replies will be helpful to me, as well
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