Eliminating Sinemet: I'm 75 years old and... - Cure Parkinson's

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Eliminating Sinemet

tarz profile image
tarz
87 Replies

I'm 75 years old and was first diagnosed with PD by a neurologist about 15 years ago. At that time the only symptoms I remember having were that I sometimes stepped a little bit funny, and I didn't swing my arms when I walked. Anyway, the doc immediately prescribed 3 Sinemets per day, with which I complied, and the symptoms gradually increased over the years. But because I also began experiencing occasional motion impediments, occasionally accompanied by anxiety attacks, which I hated, I soon began taking some actions of my own, such as micro-nutrient-intense smoothies twice daily.

I have been taught from childhood that, given the proper tools/nutrition, both the body and the brain are able to heal themselves from injury and illness, and even to become immune to disease. So obviously, my diet must be lacking something, which surprised me, since I have never in my life been even 1 pound overweight, nor ever lacking in energy, nor experienced any of the symptoms common to diabetes or arthritis nor any other disease commonly associated with the defective current lifestyle.

The challenge when we become ill, then, is to figure out what it is our body is lacking, and what to do to provide the best therapy, to support our system while our body is trying to heal itself. With these thoughts in mind, in my smoothies I included such things as fresh, live fruit and vegetables, to provide enzymes, the “life-force” that is so important to providing a healthful diet. In addition, I put in such things as powdered alfalfa leaves, kelp, turmeric, cinnamon, cacao, ginger, etc. as I gradually discovered their fundamental nutritional potential. All of these things are available on line, in organic, powdered form, in one pound bags and sometimes one kilo bags.

After beginning my smoothies, I have never experienced another anxiety attack, and over the years, my symptoms have gradually lessened until I don't need sinemet at all during the day, but found that I still needed the tablets at night, in order to have restful sleep. Then I eventually discovered that I only needed two sinemets at night to sleep well. When I awaken each morning, however, I still find myself disabled, shaking and practically unable to balance or walk much, but I associate those symptoms partially as symptoms of withdrawal from the effects of the sinemet, because without taking sinemet, they gradually disappear, as I begin to go through my daily routines.

Now I have found that the key to suppressing the symptoms during the day is to become more and more active, as much as possible, as the day progresses. For me, due to the fact that I have been living alone during all of these years, I have no choice but to be actively engaged. My situation requires that I must continue to be able to take care of myself, or I shall lose my freedom, and possibly end up living in the street, as many hundreds of thousands of other inhabitants of this nation (United States) are having to do.

This is the ideal therapy for me, as it requires that I must prepare my own meals, clean up after myself, wash my own clothes, organize my living space, and do many other little details from day to day. However, I never do anything more demanding than I can face at the moment. For the first few years, I was so disabled that I could only begin each day by playing spider solitare, which I could barely manage. But I discovered that while engaging in this activity, time passed quickly and within an hour or two, the Parkinson symptoms had all but disappeared, and I could then get on with my other daily activities. (BTW, my win rate for the most difficult level of spider solitare, after 537 games, is an unbelievable 81%!)

Anyway, my ultimate goal is to eliminate completely, the dependency on sinemet, and thus become free from its accompanying withdrawal symptoms, so I was very excited when I read about the mucuna bean as a good source of L-dopa. But once obtaining the powder, I had to figure out how to use it to replace the two night-time sinemet tablets. At first, I had tried replacing both sinemet tablets with the mucuna powder, but it turned out that the second dose only provided me with about three hours additional sleep time, and it sometimes made me sick to my stomach.

After weeks of experimenting, I have discovered that the best way to consume the mucuna powder seems to be by mixing it into a cup of matcha green tea. And I also discovered that if I just replace the first tablet with two tablespoons of mucuna powder, and then take one sinemet about two and a half hours later, I will experience the best nights sleep I've had in years. So now I'm currently down to just one sinemet per each 24 hour period.

If I understand correctly, sinemet is effective because of its C-dopa component, which protects much of the L-dopa from being broken down into the unabsorbable dopamine form, by an enzyme abbreviated AADC. Since the powdered mucuna bean lacks this C-dopa protection, it is less effective than sinemet in transmitting the L-dopa to the brain, without much of it being broken down first. However, the matcha green tea has a polyphenol abbreviated EGCG, which apparently can also protect the L-dopa from being broken down.

So now, I am experimenting to discover the best quantity of mucuna, along with the right ratio of matcha tea to use for my middle-of-the-night dosage, so that, perhaps I can finally replace the last remaining sinemet tablet. I feel that this is important because in my opinion, once we discover medication in its natural, herbal form, it is always more desirable for healing than the man-made artificial substitute, because Mother Nature always seems to be way ahead of the understanding of man.

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tarz
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87 Replies
Juliegrace profile image
Juliegrace

What form of MP do you use?

tarz profile image
tarz in reply toJuliegrace

I use the powdered bean/seed provided by Z Natural Foods, in Florida.

Juliegrace profile image
Juliegrace in reply totarz

What is the listed l-dopa content?

tarz profile image
tarz in reply toJuliegrace

It says 100% pure mucuna pruriens with 5% L-dopa. That's its natural ratio. I know that the extract powder, containing 15% L-dopa is also available at this website - znaturalfoods.com/mucuna-pr...

enjoysalud profile image
enjoysalud

On the HEALTHUNLOCKED search bar (top of page) write in SILVESTROV. Scroll down to a post by MDanderson titled "21 excellent videos from Silvestrov". View them all.....each no longer than 30 minutes, some less.

Many of your questions will be answered and much information garnered.

tarz profile image
tarz in reply toenjoysalud

I'll do that. Thanks for the tip.

Nice commentary. Can you please elaborate on your experience with reducing your Sinemet dosage? How did you deal with the withdrawal symptoms of balance issues etc? Are you functioning better now with less Sinemet?

tarz profile image
tarz in reply to

Thanks, malayappan. Yes, since I'm still experimenting, I sometimes/frequently must face the withdrawals of poor balance, difficulty in movement and shaking. But this is usually only when I first get up in the morning. I deal with these symptoms by thinking and acting very deliberately and carefully, telling myself that if I should fall it would possibly be the end, but also reminding myself that there so many paraplegics, quadriplegics, amputees, ms's, als's, paralytics, etc., in this world who are so much worse off than I, yet they have learned to cope and overcome, and so can I, if necessary. I'm not sure whether my functioning has improved with less sinemet, but it certainly hasn't gotten worse, and that's a victory as far as I'm concerned. I express my gratitude to my Heavenly Parents every day, for preserving my life on these and so many other occasions throughout my life.

Erniediaz1018 profile image
Erniediaz1018 in reply totarz

I recommend getting Mucuna pruriens with 99% extract from nutrivita, which will make a world of difference for you.

tarz profile image
tarz in reply toErniediaz1018

Does that mean 99% pure mucuna powder? Because that is what all of the herbal companies are selling.

Erniediaz1018 profile image
Erniediaz1018 in reply totarz

That means 99% ldopa extract from Mucuna

tarz profile image
tarz in reply toErniediaz1018

In other words, you're talking about virtually pure levadopa. I don't think so, and I don't know where you got that interpretation, but even enough of virtually pure levadopa to fill just one capsule would probably be lethal! Plus, there would be no accompanying agonists to help it cross through the brain barrier. Besides, if mucuna were refined to such a degree, as in other highly refined substances, it would have lost all of its naturally occurring miraculous components.

To illustrate what I mean, you can read the report of Dr. Maldonado, from Chapter 6 of his book, Mucuna and Parkinson’s Disease: Treatment with Natural Levodopa - “To date, 50 substances have been identified in the powder of its seeds [2]. Other still unidentified components must exist in Mucuna, such as portions or mixtures of alkaloids, proteins, peptides, polysaccharides, glycosides, glycoproteins, and several phytochemicals including tryptamine, alanine, arginine, glutathione, isoquinolone, mucunine, nicotine, prurienine, serotonin, tyrosine, etc. [3].”

“These substances, identified or not, confer special powers on Mucuna, perhaps boosting the levodopa or adding some kind of dopamine agonism and even extended its effects. We need to continue investigating them.”

So, Ernie, This is why the only logical application of the 99% must be to the mucuna powder, rather than to the levadopa.

MBAnderson profile image
MBAnderson in reply totarz

Your quote is from 1 of the better websites re Mucuna P.

intechopen.com/books/parkin...

MBAnderson profile image
MBAnderson in reply toErniediaz1018

Ernie,

How much L-dopa do you take in a day? Do you take pure levodopa because you feel carbidopa might be harmful? What do you feel is the advantage of taking pure levodopa compared to carbidopa/levodopa?

Thank you.

Marc

Erniediaz1018 profile image
Erniediaz1018 in reply toMBAnderson

The pharmaceutical does not stop the tremor the Mucuna does.

MBAnderson profile image
MBAnderson in reply toErniediaz1018

Ernie, I thought I replied to you saying, "Thank you, now I'm clear. I'm glad it's working for you." But I must not have hit the "reply" link.

KERRINGTON profile image
KERRINGTON

Thank you for a great post.

I want you to know I experienced similar balance issues.

Since I've been on HDT ( B1), I'm about 75 % improved.

tarz profile image
tarz in reply toKERRINGTON

That's great to hear, Kerrington. I also plan to look for the opportunity to try the B1 therapy in the future. Thanks for the heads-up example/reminder of your success.

KERRINGTON profile image
KERRINGTON in reply totarz

Yes, B1 is amazing..

Tarz, would you mind listing all your smoothie ingredients ?

tarz profile image
tarz in reply toKERRINGTON

I pretty much covered them in my original posting, but remember the ingredients vary slightly, depending upon new discoveries and what i have at hand.

KERRINGTON profile image
KERRINGTON in reply totarz

Thanks again, and please keep us posted !

MBAnderson profile image
MBAnderson in reply toKERRINGTON

KERRINGGTON, How long have you been taking B-1, are you taking oral or injections, and what else are you taking?

Thank you.

KERRINGTON profile image
KERRINGTON in reply toMBAnderson

Hi, I've been on *Solgar 500 mg tablets since March 2018. Currently I'm on that, either *mucuna extract, or pure bean powder,* Theracumin, Live Wise *B12 drops, NOW B complex, *Mannitol, *Tru Niagen, Life Extension Neuro Magnesium, D3 K2, coq 10 & Just added cinnamon... I take the * ones every day.

MBAnderson profile image
MBAnderson in reply toKERRINGTON

Thanks

JohnPepper profile image
JohnPepper

Hi tarz. I am impressed by your dogged determination, but there is no alternative is there?

On the subject of exercise, are you aware what fast walking can do for us? The word 'fast' does not mean as fast as anybody else. It means as fast as we can walk. As we get fitter we walk faster. I have been of all Pd medication since 2003. I was diagnosed with Pd in 1992. Only when I started doing the fast walking did I start getting better.

If you are interested to learn more then look at my website - reverseparkinsons.net and make contact with me. It costs NOTHING TO DO and I will tell you how to go about doing it, free of charge!

tarz profile image
tarz in reply toJohnPepper

Yes John, thanks for the reminder. Currently, fast walking for me is at a turtle's pace, but remember, that's with no meds during the day.

JohnPepper profile image
JohnPepper in reply totarz

Hi Tarz. If you take medication and it helps then you should do the walking when it is working. Walk as fast as YOU CAN and when you can no longer walk that fast then STOP.

Every second day repeat that same walk for the same period of time. After two weeks you should find that you can walk at that same speed, but for a bit longer.

Then increase the time until you cannot go any further at that speed and stick to that time for the next two weeks. Every second week you keep increasing the time until you get up to the magic ONE HOUR. Keep walking every second day for that one hour but continue to try to go faster all the time. After a while you should feel that you don't need as much medication, so try to reduce it by a little.

Keep it up!

tarz profile image
tarz in reply toJohnPepper

Thanks, John, sounds like a good plan. For the past ten years or so, I have avoided taking meds, except when I go to bed at night, so I can sleep. So I'll have to try to improvise. I am a very active man, and I used to walk every day, until about four years ago, when my balance became so unreliable that I couldn't risk it for the fear of falling. However I do spend as much time as I am able on my feet.

JohnPepper profile image
JohnPepper in reply totarz

Hi Tarz

Look at my website, reverseparkinsons.net it costs nothing and contact me. I can help you to safely start walking again.

tarz profile image
tarz in reply toJohnPepper

Thanks John, I'll do that.

Hikoi profile image
Hikoi in reply toJohnPepper

Really! This will be interesting to observe John. Of course you could just point out he has not tried hard enough when he (inevitably) fails at fast walking. That way you can blame the patient not your method.

JohnPepper profile image
JohnPepper in reply toHikoi

Why will he inevitably fail? There are ways of going about doing things, Rushing into doing fast walking will definitely fail, but doing it slowly will succeed, for everybody, not only in making us fitter but also helping us to start producing GDNF in our brain, which, as the name GDNF implies, it repairs or replaces the damaged Glial cells.

akgirlsrock profile image
akgirlsrock

You're not experiencing Dystonia from backing off on the sinemet?

tarz profile image
tarz in reply toakgirlsrock

maybe, slightly, in the form of shaking arms when I first awaken, but that soon becomes minimal once I'm about my daily activities.

hanifag profile image
hanifag

Thank you for the information how can I connect with you I am desperately trying to get off medicine

tarz profile image
tarz in reply tohanifag

I'll help you all that I can. Just continue studying the information posted here, and follow the leads to educate yourself and to find out what your body needs and what works for you, personally, because we are all different. This is due to the fact that each of us has bodies in different degrees of disrepair, based upon the choices we have made in life, as well as the DNA our parents gave us, which has been influenced and changed by the choices they have made in their lives.

tarz profile image
tarz

Thanks for your positive words. Yes, I think most MD's have come to recognize that stress is a major contributing factor to the causes of disease. It seems to me, then, that any emotional trauma could also bring on some kind of disease, due to the resultant mental stress. I certainly recognize that this has applied in my own situation.

GymBag profile image
GymBag

Self medicated . I know of no one else who takes 2 Sinemet before bed . Spread it out like your doctor told you to. What a wonderful thing to be able to ignore the advise of professionals and prescribe your own medication. If you are ever in court you should be your own Lawyer also and financial advise well call me if you have any.

quote :" once we discover medication in its natural, herbal form, it is always more desirable for healing than the man-made artificial substitute, because Mother Nature always seems to be way ahead of the understanding of man."

Is this supported by any studies or repeated by any University or just a warm fuzzy that it is the way things should be and the more you say it the more it seems real.

tarz profile image
tarz in reply toGymBag

Yep, its a great blessing to be given the confidence and the wisdom to take responsibility for your own health. But then, while the typical professional 'doctor' spends all those years being brainwashed by those representatives of the pharmaceutical seducers, I have spent my time learning about the mysteries of immunology and biological transmutation, etc

Just to bring you up to date, i'm now down to zero sinemet per night (or day).

BTW, I can't count the number of times I've represented myself in court and won, and helped numerous others to do the same thing.

But only the truly Sovereign Man knows how to defend his rights against these 'professional' lawyers upon whom the ignorant masses have been dumbed down to rely.

Hikoi profile image
Hikoi in reply totarz

I’d like to see a video of you walking after 15 yrs since diagnosis and no meds.

GymBag profile image
GymBag

In the words of ancestors

Bulls**t

tarz profile image
tarz in reply toGymBag

Oops, you just revealed your level of intelligence and education. So it is understandable why you cannot grasp or even recognize truth when it is revealed to you. But if you keep trying, I'll Help you.

MBAnderson profile image
MBAnderson in reply totarz

How do you spell curmudgeon?

MBAnderson profile image
MBAnderson in reply toGymBag

Over the years, 9, I think, thousands of PWP have posted comments explaining benefits from various non-pharmaceutical regimes. What do you make of that?

Hikoi profile image
Hikoi in reply toMBAnderson

Some things may help a little and Placebo effect. And who are these thousands? Thats wishful thinking like a placebo I believe. The desire for success in them selves or others blinds people to the true picture.

Give them 5 more years and they are not so great, not improved. The coconut oil fad on here proved that.

MBAnderson profile image
MBAnderson in reply toHikoi

Yeah, thousands is fanciful. You could of told them they're being silly re coconut oil . Although, some PWP have slowed their progression.

Hikoi profile image
Hikoi in reply toMBAnderson

Tell me one?

MBAnderson profile image
MBAnderson in reply toHikoi

"Tell me one?" Is a trick question because no matter who I identify, it can always be said there is no way to know how fast they would be progressing otherwise, but I don't need to name a person.

We know with certainty that exercise of a certain kind and at a certain level slows progression.

Therefore, we know some people have slowed their progression.

Hikoi profile image
Hikoi in reply toMBAnderson

OK

so we know with certainty about exercise slowing progression. Can you give me references? I know exercise does me good (as it does everyone) but I have yet to see the proof it actually slows progression. I am serious about this. I read all the time that exercise slows progression and hear it anecdotally but I don't see the studies.

MBAnderson profile image
MBAnderson in reply toHikoi

Can't swing a dead cat in 1 of the research websites without hitting such a study.

Hikoi profile image
Hikoi in reply toMBAnderson

Can you direct me to the website please

MBAnderson profile image
MBAnderson in reply toHikoi

OK, will do.

MBAnderson profile image
MBAnderson in reply toHikoi

I figured out you're not serious. Someone who is as focused on proof and evidence as you have shown yourself to be has read a lot of studies.

It is not possible to read studies about Parkinson's and not read a study that shows PWP decline slower who maintain a vigorous exercise program.

The Parkinson's Foundation;

“Exercise and physical activity can improve many PD symptoms. These benefits are supported by research.

The Parkinson’s Outcomes Project shows that people with PD who start exercising earlier and a minimum of 2.5 hours a week, experience a slowed decline in quality of life compared to those who start later. Establishing early exercise habits is essential to overall disease management.”

parkinson.org/Understanding...

Michael J Fox foundation says,

“The universal benefits of exercise in helping everyone feel better and improving overall health are well-documented. There is evidence, too, that exercise may hold specific benefits for people with Parkinson's disease (PD): … : Studies have linked exercise to reduced risk of Parkinson's and slower progression.”

MBAnderson profile image
MBAnderson in reply toMBAnderson

PS.

Parkinson's News Today.

"Symptom management — First, exercise reduces stiffness and improves mobility, posture, balance and gait. Besides increasing oxygen delivery and maintaining neurotransmitters to keep the heart, lungs, and nervous system healthy, exercise also helps reduce depression, stress, and anxiety.

Slow disease progression — Improved mobility decreases the risk of falling and other complications associated with Parkinson’s. Vigorous exercise, such as running or riding a bicycle, can ward off changes in the brain caused by aging and Parkinson’s."

Hikoi profile image
Hikoi in reply toMBAnderson

You may think Im not serious but I am and I havent done research or been on HU much for a while - couldnt be bothered with JPand his followers. Also the same issues as 12 yrs ago when I was diagnosed are recycling.

You will expect this but the measure was quality of life. Thats a no brainer. Exercise for anyone improves qol. The final sentence I will check out.

MBAnderson profile image
MBAnderson in reply toHikoi

Oh, well, if you have not done the research that explains it. So, I'll save you a lot of time. Exercise slows progression.

Hikoi profile image
Hikoi in reply toMBAnderson

Prove it lol

PS afraid I find Parkinson’s News today full of hype and headline grabbing. Not my favourite site for accurate reporting.

MBAnderson profile image
MBAnderson in reply toHikoi

I just posted the positions of 3 major Parkinson's organizations with saying exercise slows progression.

So, I need to be clear. Are you saying there is no evidence proving exercise slows progression?

Hikoi profile image
Hikoi in reply toMBAnderson

Evidence is minimal. Some animal studies and some improvement in symptoms and improvement in quality of life is not evidence of reversal of PD or even conclusively of slowing progression? It is possible even probable but I still await firm evidence before I tell the world it definitely does. As to the three orgs saying exercise slows progression i think they are careful to use qualifying words.

So where here does it say it slows progression? IT doesnt it says slower decline in QUALITY of life.

"Exercise is an important part of healthy living for everyone. For people with Parkinson’s disease (PD), exercise is more than healthy — it is a vital component to maintaining balance, mobility and activities of daily living. Exercise and physical activity can improve many PD symptoms. These benefits are supported by research.

The Parkinson’s Outcomes Project shows that people with PD who start exercising earlier and a minimum of 2.5 hours a week, experience a slowed decline in quality of life compared to those who start later. Establishing early exercise habits is essential to overall disease management."

Re read the link you quoted. nowhere in that link does it say “exercise slows progression”

If you'll notice, which I hope you will do from now on, I use qualifying words like, "may... likely... probably...could" in every single place I opine.

MBAnderson profile image
MBAnderson in reply toHikoi

I agree about PD News Today.

There's a lot that the PD healthcare community doesn't agree on about PD, but the one thing everybody (except you?) agree on is that exercise can slow progression.

It's like the earth is round.

I know you know that and you're just pulling my leg.

MBAnderson profile image
MBAnderson in reply toHikoi

And I have a question for you. If, you had a physical and the blood panel showed you were severely deficient in vitamin D and vitamin B12, would you correct the deficiency?

Hikoi profile image
Hikoi in reply toMBAnderson

Yes,

i dont know if I have Vit D deficency, but I take a supplement already

MBAnderson profile image
MBAnderson in reply toHikoi

Why?

Hikoi profile image
Hikoi in reply toMBAnderson

Research (my own) discussion with a lab technologist and my GP. Living in a town where i got low sun exposure particularly in winter

MBAnderson profile image
MBAnderson in reply toMBAnderson

Because a healthy person is better equipped to cope with illnesses, Parkinson's being one, then is a sickly or unhealthy person.

Cagey84 profile image
Cagey84 in reply toMBAnderson

Hot off the press - benefit after 6 months thelancet.com/journals/lane...

karolmilk profile image
karolmilk

This resource you may find helpful and it is written by a neurologist. Table of contents is at the end, intechopen.com/books/parkin....

tarz profile image
tarz in reply tokarolmilk

I am eager to read your referral, but each time I attempt to access it, I get the message, "This site cannot be reached". Any suggestions?

karolmilk profile image
karolmilk in reply totarz

Copy the web address and paste in your browserl

tarz profile image
tarz in reply tokarolmilk

That book to which you have directed me: “Mucuna and Parkinson's Disease: Treatment with Natural Levodopa”, is a great book, very informative, and downloadable as a pdf. Thank You so very Much.

karolmilk profile image
karolmilk in reply totarz

Yes, it is very comprehensive. Dr. Maldonado is from Granada where he has a practice but was trained in Europe. Several years ago I did a consultation with him via email since I could not find a neurologist that knew of mucuna. He speaks Spanish but uses a translator. It appears he still does consultations for a fee, see translate.google.com/transl....

karolmilk profile image
karolmilk in reply totarz

Here is the link, intechopen.com/books/parkin....

tarz profile image
tarz in reply tokarolmilk

I am bilingual with Spanish, but I do not have any questions to consult with Dr. Maldonado at this time.

Erniediaz1018 profile image
Erniediaz1018

Check this link out by Stevenmast

healthunlocked.com/parkinso...

Gzone profile image
Gzone

Hi, it’s very impressive to hear your story. After reading your post, this morning I mixed both matcha green tea powder and mycuna pruriens powder in one cup of water.

Usually with only mucuna with water will help me relieve from my symptoms in about 10 minutes. But today the symptoms were bad and it took more than long time about 40 mins to get better. Also my stomach was upset quite a bit.

Is this because of first day or something else? I am really scared to try an other day.

tarz profile image
tarz in reply toGzone

I would begin with a small amount of the powders made into hot tea and sweetened with honey. Trying something new often subtly excites the emotions, which can greatly increase the symptoms. So relax and enjoy the experience. Later you might want to increase the amount of one or both powders. But don't forget two things, each of us is different in our body chemistry, mostly due to our choices and habits, and these are two highly nutritious, healthful powders.

pdkid profile image
pdkid in reply totarz

Hi Tarz,

What is the ratio of mucuna to matcha green tea you have come to now? Just getting my dad started on all this. He has introduced mucuna but is still taking sinemet. Thanks!

tarz profile image
tarz in reply topdkid

About a full tablespoon of mucuna to about three fourths of that amount for the green tea power is what I use now. First, however, remember this only works for me on an empty stomach, otherwise the tremors and lack of muscular control seem to increase, because the ldopa cannot be absorbed as efficiently until the stomach is empty.

pdkid profile image
pdkid in reply totarz

how often do you take this dose? thank you, really helpful!!

tarz profile image
tarz in reply topdkid

Just once, at bedtime, and two hours later I now seem to need one Cdopa/Ldopa tablet to get me through until morning. It is easier than trying to make a second cup of tea in the middle of the night

Hikoi profile image
Hikoi

Tarz

It is six months since you wrote this blog. Have you followed up the fast walking and if so how is it going?

tarz profile image
tarz in reply toHikoi

Hikoi, Over the past six months I have adapted John Peppers suggested routine to my own situation, thus far, not necessarily walking 'fast' yet, but spending lots of time moving on my feet. The results? I continue to do well without any medication whatsoever, during the day.

How about you?

Hikoi profile image
Hikoi

12 years on, on meds can still pass for “normal” people often dont notice I have pd. Walking slightly affected when meds due. 2 falls in 12 years. Tremor controlled (mostly absent). I dont take meds over night just during the day.

tarz profile image
tarz in reply toHikoi

It makes me wonder why it is that you need medication during your active hours, and I do not. I wonder why I need mucuna at night, to relax my body. However, I take comfort in knowing about all of the healthful properties of that herb.

Hikoi profile image
Hikoi in reply totarz

I expect a much higher degree of functioning in my waking hours than you appear to want. I could not exercise adequately without meds.

tarz profile image
tarz in reply toHikoi

That is probably an accurate assessment of the situation, as at this time, during my waking hours, I tend to be concentrating more on studying and learning, to expand my mental data base of the seemingly infinite areas of my interests, and then I spend my energy with

tarz profile image
tarz in reply totarz

This is tarz with a continuation of the above: I spend my energy with physical activities during my breaks.

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