For years my blood tests have come back showing very excessive B12 levels in my blood. When the tests were taken I was a vegetarian and I wasn't taking any vit B12 supplements. I only found out about this recently. Apparently my tests have shown this for a very long time, but nobody's mentioned it to me because they're only concerned if your levels are too low... In fact one GP said "with vitamin B12, the higher the better".
However, if you google "excess vitamin B12 in the blood" you get a whole load of worrying suggestions, like liver or kidney disease and a long list of leukaemias and cancers. The GP assured me that I don't have any of these things, as my kidney and liver function tests all come out fine and so do my white blood cell counts. Of course this doesn't stop me from being worried and I'm not convinced that blood counts tell you the whole story about these things.
I'm going to pursue it further, because I tend to have a lot of symptoms that you get with vit. B12 deficiency, despite my high numbers, (indicating that even though B12 is circulating in my blood it's not being taken up and used correctly by the cells in my body??)
Does anybody else have really high levels of B12 in their blood? Could this somehow be related to Parksinson's?
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Not heard of a link between B12 and PD. Sometimes people talk about a shortage of vitamin D but I believe that is all just speculation.
Regarding the idea that the more B12 you have the better. That cannot be said of all vitamins, some of which can have a toxic effect. Vitamin supplements should be treated more seriously than is sometimes the case. More can most definitely mean less.
I have high levels of iron, no folic acid or Vit B 6 in my system I was told this is a birth defect, and Parkinson people (Like myself) Have high iron levels . I stop eating red meat which help my balance greatly, having people comment on how well I m walking, I also take a Vit B complex daily. I take a night time and sleep better and can get out of bed in the night by myself.
That's interesting that Parkinson people have high iron levels. I had no idea. I do take an iron supplement when I'm feeling tired, maybe I should stop this. To be fair I haven't had my iron levels checked so maybe I should. I'm glad that knowing which vitamins to take has helped you so much. Thanks for your answer.
That's interesting Kadie, how your balance improved by reducing iron in your diet. I understood that the toxic iron in the brain has little to do with iron in the diet. Toxic iron occurs when cells lose their ability to regulate how much iron they contain. Maybe I only got half the story. I'll have to start thinking about diet again.
Well all I know is how much better I am and how people have noticed this also. SO I feel this is part of the answer but as we all know this can be just temporary. But I will take it for now!
Although my blood test show I am in the correct range B-12( Their chart), My MDS states with Parkinson's disease, B-12 should be higher to combat fatigue . I am given monthly B-12 injections.
Even though your serum B-12 is elevated, the cell may not be getting it. I encourage you to look up Dr. Ben Lynch or Amy Yasko who go into great detail about genetic anomalies and how proper forms of B-12 and other B-vitamins can be utilized.
I really do not think you have much to worry about unless you are manifesting physical symptoms from B12 overload. Consider this: ALS patients are treated with 25 mg/day and 50 mg/day (intravenous) of methylcobalamin - the most potent form of B12 (intravenous), and it is good for their them. I have read Bells Palsy patients have been treated with 60 mg/day (intravenous) methylcobalamin. 60 mg/day is equivalent to 5,000,000 % of the daily dose!
I know this because I had a very positive response from taking methylcobalamin.
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