has anyone had trouble with finding words or switching numbers and or letters around?

[dubdiva]

[Hidden]

I had difficulty finding words before my meds were changed.

I taught school and at times could not remember the names of my students...and one of them was my granddaughter!

[Odette in reply to Hidden]

I´m teacher too and I ´m not teaching much anymore. And i am starting to lose my selfconvidense because of my speach being so weak and monotone and having difficulties with spelling.. i´m interested what was the meds that caused you these symptoms and to what they were changed? Did your speach really come back by the change of the meds?

[Hidden in reply to Odette]

I started on Mirapex, switched to Requip, switched to Sinemet, then 3.5 years later to Carbidopa/Levedopa.

Finally, 10 months ago, to my currect meds: Stalevo (100mg) 4 times a day and Carb/Levo once a day.

I had the side effects until switching to Carbidopa/Levedopa. Hope I didn’t give the impression I am now back to “normal”…I just feel soooo much better.

My thinking is much clearer and I don’t forget names, as often.

I think my speech must be getting softer, my husband is always asking me to repeat myself. I thought it was his hearing…had it checked and it is fine.

[mccshe in reply to Hidden]

Hello.,

Wanted to share a few things with you such as the volume of speech , I find that I must repeat myself often. I have always been softspoken, but more so now. I feel stupid sometimes dealing with people for I frequently need to repeat myself. Some things lose their value it seems when they need to be repeated...do you know what I mean?

Do you know that Carbidopa/levedopa is the generic name for sinemet?

I am on Mirapex which has some difficult side effects, such as severe sleepiness. You are probably familiar with that. My doctor tried switching me to the Sinemet otherwise known as Carbo/Leve, but I cannot be without the Mirapex due to aggravating endless restless legs while trying to sleep.It is all so troublesome.

I have had to take Ritalin to counteract this side effect, which in itself has side effects!

I also have experienced difficulty remembering names of coworkers...people I have known for many years. Eventually they come to me but it is frustrating to say the least!

I have always had a good vocabulary but often have trouble retrieving the words I want to say.I think i will mention Stalevo at my next neuro appointment, thanks for that idea!

[SherriW in reply to mccshe]

MCCSHE -

I could have written that reply word for word (except for the part of being on Mirapex - been there but I fell asleep all day long and couldn't handle it. Thanks for reminding me we're not alone in this!

[nene1]

Good morning, I find that sometimes I know what word I'm supposed to say, but it doesn't come out! and yes mine get all mixed up too, I think its just another one of them things that comes with pd or meds for it!!

[Hidden]

Hi,

I have terrible trouble with words, writing, spelling and some times speach, i know what i want to say in my head ,but the words some times come out all jummbled up

Al

[jillannf6 in reply to Hidden]

hi al

same with me

i am fine in what i wnat to say ijn my brain then it all comes out garbled andinabloodyrush

not the meds as i have PSP and no meds for it

BUT it si embarrassingf 4 others when htey cnant understand em

\hang on in there and

smile

)read your other blog about feeelign sh""te

love jill

[jillfd]

Definitely. Not sure if it is the meds or condition. It's like the connections in my brain work sometimes but not others,

I can proof read something but later see obvious errors,

[srarndt]

Dissiculty finning werds and wsitching lettrs a round ? No plobrem four me!!!

(jk!)

[jazzfan53 in reply to srarndt]

LOL ! ! ! !

[Hidden in reply to srarndt]

your just fantastic, however most of us are not as articulate as you are so calm it down dude

[jazzfan53]

Yes, one needs to maintain a sense of humor about this one. I also have PD moments of MCI (Mild Cognitive Impairment)....forgetting words in mid-sentence, losing my train of thought in a conversation...what really drives me nutty is acute short-term memory loss. You have to be able to laugh about it.

[srarndt]

Hello Al,

Wow, I cannot believe that I was taken for being serious with that comment. I truly apologize fo aggravating you and anyone else. I was not making fun of you or anyone else on this site. I was not trying to comment about anyone's educational level, either. I have no lofty degree, nor any critical attitude.

What I do have is, personally, a damn difficult time accepting the coginitive losses I have had with my PD. I am constantly typing and retyping every comment I place on this site or otherwise, due to a variety of PD related issues ranging from the MCI that jazzfan53 mentions in his comment that follows, to being unable to type even 10% as accurately or as quickly as I used to before getting PD, not being able to write legibly at all, and the memory loss issues as well. I truly do identify with DiCans problem, it has cost me my job as well as much happiness on the home front.

Please forgive me for hurting you, and this same boon asked by anyone else I may have hurt by my apparently poor attempt at being humorous. Like others have done on this site so well, whether it was the raft of hilarioius jokes over the last couple days or by humorous comments apparently executed far better than mine, my only attempt here was to bring a smile to everyone's face with my comment...and if you do not find my apology acceptable please also allow me to offer up the j/k at the tale end of the comment I typed.

Feel free to vent at me further if you are so inclined, but please also try and let my apology in.

I am indeed sorry.

Steve (feeling horrible in Bisbee, AZ)

[dubdiva in reply to srarndt]

For me I need to laugh and took the comment in the meaning I believ it was meant. Im impressed that folks can disagree or vent and knoe that its coming from a place of frustastration. On the hep c board there would be akin to gang warfare that would go on for days. It was like tip toeing thru a minefield. xx

[CheriH in reply to srarndt]

Sometimes laughter is the best medicine....please don't be so hard on yourself, Steve. I have trouble with my speech too; but I smiled at your comment and was not offended.

[sbtexas in reply to srarndt]

Its all good steve. I laughed to. I do the same thing with spelling. Speaking. If people get offendwd by some humor then they need to go nack to sleep cause they are still tired. Fort worth texas.

[mccshe in reply to srarndt]

Steve ..don't feel horrible! Dealing with all the cognitive stuff is tough enough! believe me I can relate. I wasn't offended at all by your comments and simply recieved them in jest...you're ok...really

[Hidden]

Sorry mate , had a bad few days with all this PD SHITE,

II have some outher issues with health , just been tood i have just a few years left on this mortal planet

sorry just feelin sorry for my self , its a glasgow thing wantin to fight with every one and any one, iv just had a few beers and am goin for a walk hope to talk soon if not have a good life

Bye

Al

[dubdiva in reply to Hidden]

Im sorry Al to hear such news,. Dont know what your issue are but or who your doctors are, but some of these with license to practice medicine thinks it give them the license to play God. You in my prayers xxx

[Parkinson_Schmarkinson in reply to Hidden]

Alsh, I hope you found a moment or two of pleasure on your walk.

I care about you.

[jillannf6 in reply to Hidden]

H I AL

PLz do not leave he site

We need ur Glasgow humour all of us

love jill

-)

[jillannf6 in reply to jillannf6]

my rpely is my smiley

[mccshe in reply to Hidden]

Al...so sorry to hear of your recent shite!! I am all too familiar with feeling sorry for oneself! Don't give in to it...and I hope i am not being too bold when I say don't accept any single diagnosis ...the mind is a powerful thing, there is always the possibility of beating the odds, you gotta believe!

I truly hope I have not crossed the line. Please be strong in your positive mind...it means everything! Sincerely

[CheriH]

I have trouble finding words too.....simple words.....words I should know! Sometimes when I talk, the words don't come out the way they are supposed to. They are all jumbled up....frustrating! However, my neurologist increased my Sinemet to 4 times a day instead of 3, and it seems to be helping. I still have my moments...just not as frequently. I also take Requip.

[Hidden]

Like so many who posted before me, I am a teacher who had word choice problems because of PD. I ended up retiring from teaching, and more problems developed. Upon further evaluation, my neurologist sent me to a speech pathologist who prescribed a medication that has helped tremendously with word finding. I also went through the Lee Silverman Voice therapy and have recovered my strong voice again. I also had to have surgery to dialate my larynz because of swallowing problems. It was followed by vital stim therapy to reteach my brain/throat to swallow. All this over three months (this past summer) and I am doing MUCH better now. Talk with your doctor for help!

[jillannf6 in reply to Hidden]

hi mathmom

good that the ops have helped iwith ur speech

i trid the lee silvermana voice therapy but it did not work for me

(i have psp)

love jill

[Dennis]

Experience this often! Dennis

[Susie01]

All the time! Another reason I can no longer work as an RN...I have also noticed that I often look at a word I have spelled millions of times over the years and cannot remember if it ends in an "e" or not!

[dubdiva in reply to Susie01]

Thanks all. I have been having bouts where I can barely type much wworse lately and its bizzare , i will sufddely be putting in 4 o's in a worjd like book and adding a consanant, I was never a great typsit or speller but I git by, but now some days I nake a terrible mess, and dont notice till i send it . writting and dialing numbers wrong, wondering if the levadopa mixed with the other med ca something is making it worse. thank gid I can come here and be nyself, ive been telling doctirs and neurologust fir years something is wrong and as my mom and 1st cousin both had it and outher aunt had MS you woukd think they would at least entertain the thought-Ihave at least 80 percent of the symptoms Iveseen discussd here, just not the masking and the gate. Thanj Gid I fiubd a good neurologust, God Bless & healthto all

[mccshe]

I just want to say to everyone here....you have all made my plight a bit easier. Thankyou!!!

[gracrn]

Yes I have been having this problem. I call it DISLEXIA but I am sure it is all part of PD. I have heard of many other PD patients with the same thing. I see different words than what is written because in my mind I have mixed some letters. I found that i need to read twice or more to be sure I got the meaning of the word correctly. Just another challenge for us. GOD BLESS YOU ALL MY FRIENDS IN "PD"

[dubdiva]

Thank you. Its srtarted for mr about 4 years ago. The dr.looked at me like I was nuts. God Boess YOU!!!