Does anyone have trouble with speaking? - Cure Parkinson's

Cure Parkinson's

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Does anyone have trouble with speaking?

Eileen9 profile image
25 Replies

I am new to this site, so this question may be a repeat. I have difficulty speaking as the day goes on. By afternoon and early evening I have a severe stuttering problem...can barely get a word out.

By 8:30pm my speech returns to almost normal. Tried speech therapy,but it did not help. I am thinking of asking my doctor about muscle relaxers.

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Eileen9 profile image
Eileen9
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25 Replies
tmhiggs profile image
tmhiggs

yes i do at times my speech is slurred and my voice is soft almost as if i cant let out enough breath to speak. only happens when meds are not wrking

Odette profile image
Odette

Yes, i have had troubles with talking and that is bad for a teacher. It started about two years a little by little. That has been the most frustrating thing in this decease. My speech varies during the day. In the afternoon my medication effects too strongly, so I have some kind of dyskinesia in my lips, i walk as i was drunken and my speech gets blurred. I ´m asked to repeat my speech all the time as people don't hear or understand my speech.

I have had speech therapy, too, but i think it can't help if the nedication works in another way, so you can't relax your lips and muscles of the toungue and throat. Have anybody tried voice massage. Does it work?

jillannf6 profile image
jillannf6 in reply toOdette

Not voice massage

Had lee Silverman treatment which didn't work 4 mme

Loljill,

:-)

S70AWD profile image
S70AWD in reply tojillannf6

LSVT didn't work for me either. And I think it only addresses the problem of volume, not the tongue tied slurring of words.

grammieof3 profile image
grammieof3

Its hard to explain but just yesterday it was so hard to talk, like if i had a sore throat or was just to tired to get the words out. This doesn't really explain how it feels either?

PatV profile image
PatV

Yes, I do get this. In the evening sometimes I'm asked to give a lecture. At those moments, I have the group discuss a subject until meds kick in :)

Beachdog profile image
Beachdog

I'm fine ...but everyone around me is losing their hearing :)

Eileen9 profile image
Eileen9 in reply toBeachdog

Hahahaha. We must know the same people.

bawford profile image
bawford in reply toBeachdog

Yes Beachdog, I have the same problem here in this house. hehe

Annie81963 profile image
Annie81963 in reply toBeachdog

I agree with you Beachdog. :)

cinziagiannni profile image
cinziagiannni

i'm going to try botox shots on oct 5th

slg1213 profile image
slg1213 in reply tocinziagiannni

why ?

Eileen9 profile image
Eileen9 in reply tocinziagiannni

A year ago I asked a question about speech difficulties. You responded that you were going to try Botox shots on Oct. 5th. Did the Botox help your speech at all?

Dennis profile image
Dennis

i replied on a past post but would like to ask what medications help with this. I have it all day and night and shortness of breath, shaking and finding it most difficult to walk when I get

up. It gets better but by 5 or 6 pm. I can hardly walk again. Any help I thank you. ~Dennis

JourneyzPath profile image
JourneyzPath

Yes, It usually happens latter in the day when my meds are not working as well and I am tired. I sound and look as though I have had a stroke. Everything slows down to a snails pace including the muscles needed to articulate words. I use to get very frustrated, but now just say, " I will tell you latter when my meds are working better." I have also had to write these words down when I keep getting a blank look from people.

slg1213 profile image
slg1213

yes and if I become sick and have to throw up I can't do anything but garble talk. Dr. says part of tremors. Just don't like it.

jillannf6 profile image
jillannf6

Hi

Yes ibhave PSP and my voice has got quiter any more garbled

I amembarrassed when meeting new people and find it diffiicult to express myself

Lol Jill

:-)

Ps Inhave an iPad with an app Proloquetogo -,when my speech goes completely

Melodysam1890 profile image
Melodysam1890

The slurring is a problem for me - plus, the WORDS I want are not there - it's not a memory loss, because I know what I'm going for - the words just do not follow so I'm left searching ... I find I prefer to listen these days (I've always been a good listener) rather than talk - not good I know but in some situations I prefer not to lose the words and falter during coversations- it's difficult for me to watch the other folks in the same conversation WAITING on me to catch up to speed ...

marimad profile image
marimad in reply toMelodysam1890

This is exactly how I feel, couldn't have put it better. Amazing how people just need someone to listen to them.

rjd311 profile image
rjd311

I've had issues with mumbling. From what I understand GPI may be a better target than STN if you have speech issues and considering DBS. We'll see.

marimad profile image
marimad

I thought it was just me...I have always had a soft voice, but now even tho I think I'm very loud no one hears me. I also believe other people need hearing aids. lol Bottom line...so I repeat a lot..

Speech therapist I went to immediately after my PD diagnosis used to say 'Use it or lose it.' I was a teacher and started having speech problems 20 years before I was diagnosed with PD. So I reckon the voice problem antedated the PD. Intrestingly the PD Specialist Nurse said PD was common among teachers. My voice varies in quality from normal to a quiet strangulated squwak. Worst thing is talking to my kids on the phone.

harding55 profile image
harding55

I slur my speech a lot and my husband is constantly saying "huh" to me which just makes me angry. I doubt that muscle relaxers will help but I guess it doesn't hurt to ask. I just get to the point where I refuse to repeat myself. It definitely is frustrating.

glady profile image
glady

My hubby has PD and some times I can't barely understand him. It's like his tongue is heavy. I notice when he sleeps his tongue hangs out of him mouth on the right side.

birman profile image
birman

I found this in a search so no experience with it. Probably just helps with stutters and fast speech. speecheasy.com/pd/ But something to look into.

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