Advice and information please..

[Nflanagan1]

My stomach is always very very swollen. I look like I'm going to pop a baby out! I'm not pregnant and have the mirena coil. I have also been diagnosed with endometriosis. I also cannot have sex because it is to painful. The pain is severe and leaves me screaming in pin. I have spoken to my consultant and they have said that the swelling cannot be endometriosis. I had a surgery in November 2014 to remove endometriosis. He said that he removed it, so endo can't be the issue. He refuses to do another surgery. The swelling is constant no matter what I eat or try and cut out. I also have severe pain to the point where I am bed ridden. It's in my pelvis, my lower back and the top of my legs. I have been referred to a gastroenterologist but it's just the fear of the unknown. The pain my endo brings is enough and I'm scared Of what else is wrong. My bowel movements are fine.. Any advice or knowledge on this?

I also keep getting ulcers in my mouth recently and feeling very very fatigued..

Any comments would be great.

Thankyou

[willow24 Administrator]

Hi, sorry to hear your having so much pain. If your bowels are 'normal' it is unlikely to be crohns or colitis, however inflammation from the endo may have caused adhesions. adhesions are where internally organs get stuck of fused together. adhesions can also occur after surgery. fatigue and mouth ulcers could be due to your body being in so much pain and being run down. perhaps you could ask your GP to fast track you to see the gastro. another tip is when you get appointment thru, phone the booking office and ask if earlier appointment or if you can be put on cancellation list, then you may get seen sooner. are you on any medications / pain relief?

[aseccombe]

It maybe your coil causing the problems as it releases a hormone. I actually rejected mine and it came out but I blame it for starting my bowel problems.