numb feet Chrins

[georgecat1]

My husband has had Chrons for 50 years. He suffers badly with numb feet sometimes it spreads up his leg.Doctors can not find a cause. Does any one out there have any knowledge regarding this?Bless you all.

[SuzyQ67]

Has your husband had his B12 levels checked, if not he should. I had to do injections for almost a year, then went on oral B12. After all these years I am still on it daily.

[georgecat1 in reply to SuzyQ67]

Hi Suzy,

I should have said he has B12 injections every 3 months as his ileocaecal valve was removed.

He has seen loads of medics about his numb feet but no cause found.

Thanks for your reply.

[Shoeysmum in reply to georgecat1]

Is he diabetic? If so it could be due to neuropathy and he needs to speak with his diabetes nurse.

[georgecat1 in reply to Shoeysmum]

no he isn’t diabetic.

[MrsEndeavourMorse]

Hi georgecat1,

As SuzyQ67 has suggested, B12 levels are the best place to start. I can see from your most recent update that your husband has his jab every 12 weeks (3 months). I started out on the same regime, but after a bit of trial & error (and a period of negotiation with the Drs), I’m now having mine every 6 weeks (Less than one metre of small bowel left & a plethora of complications, have left me & my team of experts, pulling out all the stops to keep me as well as possible), so this maybe worth considering perhaps? There is some debate that the desired result range (proper name for this escapes me, sorry), is too ‘rigid’ & that doctors sometimes dismiss results because you’re still in ‘range’ - if that makes sense!

Secondly, is your husband on any of the anti - TNF / biologics medication? I ask this as peripheral neuropathy is a known side effect and one I’ve suffered from since starting on the meds over a decade a go. However, for me it’s a small price to pay if it keeps the surgeons away! So if he is, definitely have a look at the patient information leaflet and discuss with his team. Good luck 🤞

[georgecat1]

Hi

We are big Morse fans. What you are saying is very interesting and I will will certainly consider this option. Thank you will keep you posted.

[MrsEndeavourMorse in reply to georgecat1]

Can’t beat a bit of Morse & Lewis when you’re having an off day! And now Endeavour explaining how Morse came to be the Morse we know & love! I love a good detective show - Vera, Inspector George Gently, A Touch of Frost…but Morse is just that touch above ☝️ Gone a bit off topic there, sorry 🙊

[georgecat1 in reply to MrsEndeavourMorse]

All the greats. I have been accused of dozing to them at times.

[Morganalefaye]

Hi, I too have had Crohn’s since the early 1970’s. I was in hospital on and off for over a year until I had my first resection, (18”). I’ve always had pains in my legs and feet, and the pain’s worse when I’m having a flare. I’ve spoken to many people with Crohn’s and themajority of them report the same. It sometimes seems to me to be a type of cramping of the muscles?

I’ve had B12 injections every three months since I had the first resection. I’ve been on Salazopyrin since then too. I’ve been on Azathioprine for ten years since my last resection.

I also have Bile Salt Malabsorption, psoriatic arthritis, osteoarthritis, (both hips replaced), degenerative disc disease, Sjorgren's Syndrome and osteoporosis. I have had iritis. I was recently referred to a rheumatologist about the dreadful pain I’ve been having particularly in my left foot, since I had the first hip-replacement. The answer seems to be a mixture between nerve pain from my back, osteoarthritis in my feet and the effects of osteoporosis. Has your husband been checked for osteoporosis because many people with Crohn’s will have it due to years of the bowel’s inefficient absorbtion of vitamins and minerals of all types.

[georgecat1 in reply to Morganalefaye]

Hi ,

Sorry I just read this comment.Did not think of osteoporosis but will have my husband checked for it.My initial enquiry has got a lot of interesting suggestions.

He was on Humira for a few years but stopped as he was getting arthritic pains from it. Namaste to you all.