Waiting for Gastro App possible IBD - Crohn's and Colit...

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Waiting for Gastro App possible IBD

Endo8701 profile image
3 Replies

Hello, I'm new to this page.

I have coeliac disease and Endometriosis. Since the summer I have been struggling with constant Diarrhea, Nausea, vomiting and weight loss. To the point where there is nothing left of me. I went back to work in August after having a baby and was a size 12. Now I'm a size 4/6! Was around 9 half stone and now 7 stone 8. I've lost my appetite and constantly feel nauseous. Every time I visit the loo I have Diarrhea.

End Of Oct I had chronic Diarrhea (like water for 24hrs) yellow colour. My stool got tested positive for inflammation. So been sent a referral to Gastro. My app isn't until end of Feb 2022! That's just a telephone call. I'm at the point where I don't know what to do? I feel I can't wait until end Of Feb? I have been back to the docs and he has prescribed me antibiotics called Metronidazole for a week. Then I have to get back in touch and see if it makes a difference? He told me Gastro would prescribed these whilst waiting for a diagnosis?? I am hoping he can expedite my referral or I'm thinking of going private. My family are very concerned about my weight loss and I just don't look the same person. I'm so weak and have no energy. I have a 1 Yr old and still working part time. I'm so fed up.

Any suggestions please to help me in this situation? Does it sound like an IBD?

Forgot to mention my Endo specialist thinks it's an IBD too and doesn't think it's Endometriosis on the bowel. But I'm not convinced as I only bleed through my bowel on my period? Thanks 😘

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3 Replies
bantam12 profile image
bantam12

If your GP can't or won't speed up your appt then your only option is to go private, I personally wouldn't wait another 2+ months to be seen with those extreme symptoms.

Susiiscute profile image
Susiiscute

Has your GP taken blood tests? That would tell the GP whether there is an infection that requires antibiotics, it would also test for anaemia, protein deficiency and low iron and many other markers. That would be the first thing to do. I googled the antibiotic you’ve been prescribed and it’s used for pelvic inflammation.

rg1987 profile image
rg1987

I was in a similar situation last December, the GP did do a blood and stool test and my calprotectin level was 1400 which is a marker for inflammation. After this I was waiting for almost 2 months for a gastro phone app, which actually never happened. By then I was in such a bad condition (diaria, cramping, blood in stool and serious weightloss) that one night I called the emergency center and the doctor on call suggested me to go straight to the hospital. So I went to the ER and they kept me in for 3 days. I had multiple consultation with actual real life gastro doctors, they put me on IV, started me on a steriod course and did a camera test which confirmed that I have ulcerative colitis. A couple months later I also had a full colonoscopy.

So my advice is that if you feel like you are not being taken seriously and wasting away while waiting for your phone app, just go to the nearest hospital's ER.

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