Painful flare

[dkljj2020]

I have had uc for 30 years, 70 years old. Because of failing kidneys I have had to reduce my mesalamine dose to half on Doctors advice and this is probably the reason for this flare. This is a very painful one No blood yet, just a very painful feeling in my whole colon. A mesalamine enema two times a day gives a lot of relief. Walking around and trying to do normal activities make it so much more painful. If i sit and be still I have much less a pain. Does anyone else have this experience or symptoms? Tell me your story please! I am afraid and can not

go to hospital if I get worse. There are no hospital beds in my state due to Covid. I will have to cope with this at home. I have talked to my GI, all he has to offer is a scope in the hospital (which is not available anymore) or predinsone.

[Bulldoguk]

Hi I had a very painful flare a few weeks ago no blood but left me with pain in the rectum mostly on sitting. I took my usual mesalamine which cleared the Iv flare. I am now going to start a gtn cream ( same as the spray you use for angina) apparently it helps with colon pain. I start this Friday so fingers crossed .

[Mini-S8]

I’m sorry to hear you are in pain and please know you are not alone. Do you have an IBD nurse you can speak with? There’s also a helpline on Crohns and Colitis UK where you can speak to someone for emotional and practical support. I’m not sure if they have one like this in the US or other places but I’m sure they will do.

The pain and fatigue can be so difficult to manage alone so I hope you can get all the support you need x

[dkljj2020 in reply to Mini-S8]

I am not alone and my husband has been taking care of me It is so nice to have caring people across the world thinking of me. Thank you. I do not have anyone to call except my Gi and he said to call back immediately if I get symptoms of megacolon or see blood. It is a hard time in US, in my state. you can not go to emergency rooms or hospitals unless you are dying, there are no doctors to spare and no beds. My GI told me to use Miralax every day and increase my Mesalamine to 2400 mg temporarily to try to get this under control. I am relying on his experience and using valium for pain and spasm, miralax to get things moving, tylenol for pain, and heating pad. Just being still helps too. I hope increasing my mesalamine does not damage my kidneys further. It seems like a bad choice either way.

[Mini-S8 in reply to dkljj2020]

I hope you feel better soon and keep reaching out if you need to. Glad your husband is looking after you. X