UC flare up

[h_elen1wolf]

The past few days my ulcerative colitis has flare up. I'm going to the bathroom about 5 times a day, 3 of those just blood and mucus, the other two I pass stool but after intense cramping which makes me feel like I'm going to be sick and pass out, also accompanied with blood. I then feel very tired and cold and this can last for about an hour. Does anyone else experience anything similar? My consultant said to take double of my medication for two weeks when I have a flare so that's what I'm doing.

[misty14]

Hi helenwolf.

Sorry to read of your ulcerative colitis flare. It sounds very simikar to me when i flare up. It does make you feel rotten and this is such a stressful time for us so its not surprising we can flare.

Can i ask what treatment are you on for it?. Glad your gastro said to double your treatment dose. Hope it starts to work soin. Is it budesonide?.

Take care and keep safe. Xx

[h_elen1wolf in reply to misty14]

Yeah I think its stress! I'm on mesalizine, only started taking double a few days ago so I'm hoping they start working, I feel rubbish!

[misty14 in reply to h_elen1wolf]

Mesalazine is a good drug so fingers crossed the double dose works soon. Its awful how ill colitis can make us feel. Hope you feel better soon. Does your gastro dept have an IBD nurse you can ask ?. Xx

[h_elen1wolf in reply to misty14]

Well today it's the same symptoms but no blood so I'm taking that as a positive! I'm just soooooo tired, do you find you get like this? I'm not aware of an IBD nurse, always just been told to get in contact with the consultant if I have any problems.

[misty14 in reply to h_elen1wolf]

Hi h_elen

That's definitely a good sign the mesalazine is working. You can feel very tired and washed out with it. Your gp can check your bloods for anaemia as that can happen. How long have you had U.C?. Its good you can contact the consultant directly if you have a problem. Nurses can give differing/confusing opinions sometimes. Do hope you feel even better soon. lots of rest and tlc. Xx

[h_elen1wolf in reply to misty14]

I was only diagnosed with it last year but was misdiagnosed with IBS about 9 years ago so even though I've suffered for a while I'm still trying to get to grips with it!

[misty14 in reply to h_elen1wolf]

That must have been a shock helen. I know mine was when i was diagnosed 10 years ago. I havent fully got to grips with it either. Im learning about it still! Its easy for it to be misdiagnosed ibs as these conditions are very similar. Sorry though you've been suffering a long time. Do hope your feeling better today. Keep safe. Xx

[Kcox]

When my uc flares are very bad I can be on the loo 20-30 times a day. Your symptoms sound very familiar.

[h_elen1wolf in reply to Kcox]

What do you find helps?

[Kcox in reply to h_elen1wolf]

I have a specialist at my local hospital who sees me every six months. I also use the IBD Line at my local hosoital - you should have access to an IBD Line at your local hospital. If you google 'Irritable Bowel Disease Line' it should come up.

[Bazmack48 in reply to Kcox]

I have tried to find an IBD line but failed. Can you post a link or similar please.

[Kcox in reply to Bazmack48]

If you google 'IBD Clinic' then add the name of your closest hospital it should come up. I don't have a lonk I can add - I just have a phone number for my local Ibd line but it's in hemel Hempstead in Hertfordshire

[Bazmack48 in reply to Kcox]

Thank you. I have just looked at my local hospital, Chichester, unfortunately they don’t appear to have this service. I suffer from Lymphatic Colitis and Coeliac Disease, diagnosed two years ago and for the last few days have been having upset stomach. I was given emergency supply of steroids by the consultant but GP said not to take them! Will give it a few days and if it doesn’t improve I will fill out the e consult form and hopefully will get a phone appointment.

[Crnalves]

Hi! Are u doing better? My boyfriend has exactly the same symptoms. He's now in a flare up, sometimes he doesn't know what to do anymore. How are u feeling lately?