Fading away!!!!

[jakelayla]

I am determined to stay positive, or try to! If I think about my colon I can feel myself panic. Because we can't see what's going on inside us, for me makes this worse. So am just going to focus on my mental state, as though my mind needs to heal. But alas the physical side is making itself heard by constant trips to loo. I tried to garden this morning as it's relaxing but I don't have a lot of strength due to weight loss. I know so many of you have had this for years. How have you managed to keep weight on and strength up. Wishing all of you the very best.

[FRreedman]

I remember a surgeon once told me "You know all the things you're supposed to eat, the good things? And you know all the things you shouldn't eat, like burgers and fat and greasy stuff, all that fast food? Well, I want you to go out now and have everything you shouldn't have... McD, fish and chips Chinese etc." That did two things for me. Firstly it made me feel great, but unfortunately, I felt really ill at the end of the day. There is no such thing as a bad diet. Eat healthily but, if you fancy something go for it, you will be surprised how many times you won't fancy something you shouldn't have. If you really shouldn't have a particular food, your body will tell you soon enough (vomit, indigestion, feeling bloated right through to the anaphylactic responses). Personally, I eat little and often. The most important thing as far as I am concerned is I know I can beat this b*s*a*d disease. It is not, per se, a killer, it is an incapacitator, and as such, I know I can live with it, simply because I can't live without it. It is with me for ever, wherever and whenever I go. As I have said to you before, I was aged 11 at diagnosis, and I am now 62. Yes I missed a lot of my teenage years, and the growing up that occurs then, but I am still here, the Crohn's is still here, and, despite many warnings to the contrary, the world is still here. Good luck, and don't worry so much. My Grandfather used to say "There is no point in worrying. Ask yourself, can you change the outcome? If yes, don't worry about it, change it. If no, don't worry about it, it's gonna happen anyway!"

[jakelayla in reply to FRreedman]

Thank you for the reply FRreedman. Wise words. I've had a few really bad days with this, but like you I am going to make the most of my life. I suppose because this is a new diagnosis, it is foremost in my mind. My goals now are to get it to the back of my mind, gain weight and strength. Wishing you all the best.

[FRreedman in reply to jakelayla]

Don't try to forget you have the disease. Remember it, because it is with you all the time, it is just that slowly, very slowly, it recedes and you find you are doing things differently, without trying. You don't even realize you are doing things, like planning a route with multiple toilets, or text rooms. I can almost name every McDonalds, betting shops, service stations within a five mile radius of my home. This is not because I wanted to, but because I have had to use them, and not necessarily for the purpose they were opened. Good luck.

[Angep in reply to FRreedman]

Fabulous answer!!! And you’re grandad was so right 😁🙏🏻