what is normal.

[jakelayla]

Hi everyone, I'm so glad I have found this post, it's helping me a lot as I have only recently been diagnosed. In the nine months of illness Iv'e had about six flares, they have lasted three days maybe, where I go to the loo day and night about 20 times, feel so weak and feverish. Between these "flares", I feel better but not normal like I used to. Still have to go to loo urgently but not through the night, maybe three times daily,but not so feverish and mentally a lot happier. Is this my normal from now on? Or will I feel normal like before the diagnosis? I do feel grateful that I have been diagnosed later in life. Must be so tough for younger people! Thank you.

[FRreedman]

Life will never be the same again...… Not a threat, a promise. I was diagnosed at 11, and there is nothing that can be considered normal. I go to the loo between, 4 times a day and once every 3 days. However it is always with a sense of urgency. I no longer feel tired all the time, but suggest you keep a check on your B12 levels as well as vitamin D. (Get your GP to check for you). My biggest bug bear is that I get pain a lot of the time, and the only way to relieve it is to go to sleep(which fortunately, I do fairly frequently, anyway). By the way I am now 62, so have had time to get used to normal being anything but. Good luck

[Issycarter]

It’s hard to say what normal is. Normal for some is extreme for others. What’s important is you find your pattern and manage your health. Your way.

[bantam12]

Once you get settled on meds you can lead a "normal" life in between flares. I was started on Asacol 21 years ago and touch wood I've not had any major flares since 🤞

[jakelayla]

Thank you for the honest replies. I feel I can cope as long as I understand what's going on. Have noticed before a flare my eyes are very red! Also felt rough for a few days and just ate chicken and rice, all bland foods. Then on Saturday night through caution to the wind and ate a mild curry and 3 glasses of wine....woke up feeling so much better! This is a tricky illness for sure. Best wishes to you all, and thanks.