help colitis sufferer

[leodevlin]

hi guys..im in hospital at moment with a bad flare. their going to give you humira. can anybody let me know if good or bad? thank you. leo

[willow24 Administrator]

Hi,

Sorry to hear your so unwell

Iv had both humira and infliximab over the last 10 yrs. Both have stopped me needing an ileostomy, so for me the biologics are a miracle drug. unfortunately after a few yrs on it I develop skin probs/drug induced lupus but by time this happens I have been in remission for 2 yrs plus and bowel has healed. This lasts about 6 months before I start with mini flares but can manage this on usual meds. At least I know when big flare comes I can rely on the biologics.

Good luck x

[leodevlin in reply to willow24]

that's great news. thank you for replying. all the best for you in the future.

[Fatima_sh]

I haven’t had Humira, but I’m taking Remicade. It really helps me with my everyday life, without it I’m just a complete mess. My symptoms are all stable after taking Remicade, so yeah it’s good but of course every medicine has side affects.

[leodevlin]

thanks fatima. its a bloody minefield of differing opinions out thete. i dpnt know what to be thinking. thanks

[Angep]

Hi I’ve been on Humira for 12 months and it has helped me greatly. It has given me vertigo but baring in mind some of the things it can give you il settle for the vertigo !!😂 some people do incredibly well on it and for others it dosnt work. We are all so different. I hope whatever you do it works well for you 😁🤞