Advice on UC please: Hi. My bf was... - Crohn's and Colit...

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Advice on UC please

Katys1981zzz profile image
6 Replies

Hi. My bf was diagnosed with UC a few months ago. He was initially on an anti inflammatory and steroids but hasn't got better so is now also on immunosuppressants but still no better, he has been on them for 3 months.

Does anyone have any advice on medications/diet? Anything?? thanks

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Katys1981zzz profile image
Katys1981zzz
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6 Replies
Valbaty54 profile image
Valbaty54

Hi, Sometimes these meds take a while to work, so things may improve soon. I have been on the same sort of combination for two years and still no real results, despite doubling my dose of Humira (injected biologic). A low fibre diet helps me. Good luck to your BF.

willow24 profile image
willow24Administrator

Hi hun, immunosuppressants take about 12 weeks to build up in the system to a therapeutic levels.

Diets are different for people so its trial and error. Iv tried gluten free, lactose free, meat free but only thing that works is low fat and as Valbaty54 during problematic times low fibre (often referred to by gastro teams as a low residue diet).

This diet is easy to digest so the bowel doesn't have to work hard. its bland and boring but it definitely helps. foods include white fish, chicken, potatoes (boiled or mashed only) white rice and certain veg that need to be well cooked.

you can also find lots of advice on crohnsandcolitis.org.uk/

Best of luck to you both x

Katys1981zzz profile image
Katys1981zzz in reply towillow24

Thank you guys. He's going to try a very bland low fiber diet for a few days. He wants to top up his food with protein shakes but I don't know much about them...?

willow24 profile image
willow24Administrator

I would wait until things have settled before using protein shakes, then introduce them so if they make things worse he will know that there not helping. A lot of these shakes and things have added fats and fibre.

Angep profile image
Angep

Hi, sorry to hear about your boyfriend, I have Crohn's. You will find as you go along that we are all so different and what works for one may not work for another.i myself follow a gluten free diet, try not to eat processed foods!!! At least cut them down a bit at a time. I only have a small amount of dairy as in cheese and butter. I eat mostly white meat and have fruit and vegetables every day. I make vegetable soup with garlic, ginger, Turmeric and black pepper. I purée the soup and freeze it. I have that 3 times a week at least. For me walking and meditation classes have helped enormously!! Keeping your mind busy is a god send. I'm on Humira. I started this on 7th of march. Not without its side effects but I'm hoping things even out a bit as time goes on. I hope things improve for him soon.

AlexandriaUK profile image
AlexandriaUK

Hi this may sound gross and you probably need to run it past his consultant but I had a year long flare that just didn't react to anything, I was told by an acquaintance that a water based tumeric wash of u know where can help, I used it and within a week I was clear, have made sure since my diet is good and I don't get constipated under any circumstances, it was probably coincidence but who knows, I also take the tumeric black pepper and good quality extra virgin oil about 3/4 times a week

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