Introduce yourself to the community - Crohn's and Colit...

Crohn's and Colitis Support

5,414 members1,719 posts

Introduce yourself to the community

LuciaHU profile image
2 Replies

We’re excited about what you can go on to do for those affected by Crohn's and Colitis. We hope you are too. Write something today about your experience and you’ll be starting your own online movement. And get inspiration from Nick York, another advocate in HealthUnlocked here bit.ly/hublog1

Great to have you here ;)

Written by
LuciaHU profile image
LuciaHU
To view profiles and participate in discussions please or .
2 Replies
willow24 profile image
willow24Administrator

hi, Im a chronie with 22 yrs experience lol. Current meds are humira injection and 6mp. I came off infliximab due to having a drug induced lupus. Humira seems to be doing my bowels good but joints remain an issue (idiopathic arthritis). I am also suffering from painful rash and skin splits in those intimate areas and natal cleft. mri shows no fistulas or any internal probs. strong steroid cream only works whilst using it but due to strength can only use for 1 week then stop for 2. obviously due to steroids thinning skin i dont really want to use it. oral steroids are a no-no as i get steroid psychosis. anyway i have appointment with dermatologist in feb, but was wondering if anyone had or heard of same thing.

cheers

willow24 profile image
willow24Administrator

hi, Im a chronie with 22 yrs experience lol. Current meds are humira injection and 6mp. I came off infliximab due to having a drug induced lupus. Humira seems to be doing my bowels good but joints remain an issue (idiopathic arthritis). I am also suffering from painful rash and skin splits in those intimate areas and natal cleft. mri shows no fistulas or any internal probs. strong steroid cream only works whilst using it but due to strength can only use for 1 week then stop for 2. obviously due to steroids thinning skin i dont really want to use it. oral steroids are a no-no as i get steroid psychosis. anyway i have appointment with dermatologist in feb, but was wondering if anyone had or heard of same thing.

cheers

Not what you're looking for?

You may also like...

Budesonide advice please

Hi.I'm new to this forum.So thank you in advance for any advice .I'm asking for help for my son who...

Did you ever tried alternative treatments for Crohn's disease?What treatment were these and what were the results? Answer me please!!

I'm from Brazil, and here medicine on terms of Crohn disease are not very evolved. I was reading...

Been told it's your diet?

How many doctor's have urged you to change your diet to see if your symptoms go away? Have you?...

Pentasa

Hi not been on here in a while but would like to ask is anyone one Pantasa 500g I take 4 in the...

Struggling to get a diagnosis?

I just thought I'd share my 18YO daughters experience here, you never know it may help someone...