Hope

I have been chasing researchers hoping that we would have a breakthrough for emphysema a treatment that would halt this disease. I feel I need to apologise for being so naive as I truly believed a breakthrough would be with us soon. Having had a discussion yesterday I realise maybe I was wrong. I have posted about research and got excited for us. I apologise and assure you I will not be chasing a dream anymore. Sorry for wasting your time with my naive post.

[Davidatp]

Please don’t ever stop dreaming! Emphysema is a wicked disease and hard to handle. That doesn’t mean it can’t be conquered. Dream on!

[Hacienda]

Morning Dear Emily, Please Don't give up, You are not naïve Hun, you are thinking of everyone else, That is being Kind , We all have Dreams and this one for you is so imperative for all of us with Emphysema. Just take a Rest, & come back with The Gusto you have had for awhile now. Lots of Love Em, Thank you for being our Research Queen along with 2greys. Top People on our Forum. Love n Hugs C. XXXX

[Charliebear44]

Keep going Emily xx

[Damon1864]

Emily please don't ever be sorry for having hope and dreaming about a break through, I have done the same many times. We have to have hope or we might just give in and let it get the better of us. You keep hoping and dreaming, and if at any time you want to share your thoughts just private message me. Have a wonderful day and take care of yourself 😊 Bernadette xx

[powderpuff]

Dear Emily,

There’s nothing naive about having hope & I think it would be quite wrong for you to loose the faith & belief you’ve mustered in the last few months.

With incurable disease I think it’s healthier to combine that hope with realism & patience, but also to not be surprised should treatments or even a cure suddenly transpire - discoveries almost by accident, it happens all the time!

You’ve seemed more ‘alive’ & animated lately, don’t give that up, you need the focus.

[joyful4u]

Hi Emily, please don't even consider giving up on hope. You sharing all you learn with us as you research is not wasting our time.......it's spending time with us & we welcome that.

[megshafer]

Don't ever stop believing in hope....its changed the world...hope has cured more diseases than we even know of. Researching and reading is far from naive....hope is a special spark in you!! Keep it shining, it's pure it's what makes you, you!! Keep up your good works!!

💐💐💐😊

[Livefor]

Dear Emily emphysema is a very complex desease to science and much much more to us ..you should not give up because of a discussion or whatever. I think many of us pretend to understand a lot about how a cure will be or what works or not but fact is..we don't now that much and most times science have proven most opinion are wrong,so don't loose hope.

Good day to you dear👊🌟

[R2B_Bonnie Moderator]

They are learning more and more every day / week/ month and new treatments m both meds & treatments .... never give up the Fight

[Hacienda]

I'm with everyone of these Comments Emily, never give up Hun, You are doing an Admirable Quest for us All. Love n Hugs. C. XXXX

[Azcowboy]

Emily...I'm 79 last December. Was told by my Pulmonologist I had the beginning of emphysema back in 1989. Lots have developed over time to HELP us being inhalers and psychologically . My later as important as the first. Now do yourself a favor. Get off your butt, find things you enjoy doing and DO IT. Don't let anyone try to get you riding the pity wagon. They don't help. LOVE life sweety.

[megshafer in reply to Azcowboy]

You have a most beautiful soul Azcowboy. 💞💞💞

Meg

[guytane]

y do pharmersuticble companys want a cure they make trillions on sick people you have to find your own cure do you think we have to pay for gas and electricity its free if you no how its all about making mony

[megshafer in reply to guytane]

guytane, have you not seen the advancements in cancer, HIV/Aids...Cystic Fibrosis now has wonderful new medications....a disease that is a very close in biology to emphysema. Hepatitis, now has a cure. I am going to put my hope in science and all that is good in the world, and the researchers who want to cure us...because they are good persons. Yes, there is greed in all things, but...kindness always wins....it always has.

Meg✌

[guytane in reply to megshafer]

ok but when theirs a cure for male pattern baldness you think it will be free all that mony they will make off bald men

[megshafer in reply to guytane]

I think there will be a charge, my friend, but think of all the hair....and trips to the barber! Lol

[guytane in reply to megshafer]

yes it will be great quick releife for breathers etc etc

[grannyk3]

You haven't wasted anyone's time and there's no reason for apologizing for having hope. You're not naive, you're human and it's normal for wanting better for yourself and others. You're a joy to have in this forum. Please keep posting whatever you like, your thoughts and feelings have value.

grannyk 🌨😺💞

[R2B_Michele_RRT Partner]

Emily61, There is nothing wrong with bringing hope and new research information to the group. It is very hard to keep up with everything that is being researched and new information comes out all the time. This group is wonderful because members are from all over the world.

[Mimibx3]

Emily we should all live with hope for ourselves no matter what may be happening....you just never know sometimes researchers come across something that may not be working on lung disease but find something out the blue that may help us suffering with lung disease! So never think you are wasting someone’s time it sounds like all the folks on this site feel the same. Sending you love and blessings ♥️🤗

[RobRuss]

Hi Emily,

I like yourself research every possible option available out there in the hope of finding something that is not common knowlage.

What I have found is there are currenly clinical trials under way in the UK and Europe with some very promsing results.

rbht.nhs.uk/first-uk-patien...

nuvaira.com/technology/

Keep going and never give up.

Regards

Robert

Cape Town

South Africa.

[Hidden in reply to RobRuss]

Hi thank you. I did ask about this trail but it's purely for emphysema and I have asthma also a hernia so was unable to access this, but thank you.

[SquirrelsHolt]

Oh dear Hidden , there's never a reason to apologise just because you wanted a breakthrough trial to tell us COPD'ers, that a cure or something along those lines was going to be made available. You just wanted your wishes to come true. Again, never apologise for wanting us all to be better !!!🐿💕

[PamDerouen]

Never give up!!!

We are all with you.