Just back from pnumonia flu jab.. nurse still insisting I might not progress any further..emphysima and asthma any thoughts any of you know of anyone who hasn't...she said mikd/moderate.
Progress or not : Just back from pnumonia flu... - COPD Friends
Progress or not
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73 Replies
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Looking at your post to see what people say very interested to hear. I also want to know x
• in reply toVonnie50
How are you doing
Vonnie50• in reply to
Hello hun, not to bad just started pulmonary rehabilitation last week will keep you updated x
• in reply toVonnie50
My second day today
Vonnie50• in reply to
Where are you doing yours ? Mine is sutton valence
• in reply toVonnie50
Sandwell hospital? How you finding it..I did an update post on my PR today
Vonnie50• in reply to
Ok she kept adding for weights on me lol. I am 20 years younger than everyone else so feel embarrassed at being ill so much younger
• in reply toVonnie50
You are not ill you have a lung condition..I am 57 there are people in their 70s and near 80s there the 70 year old only been diagnosed 8 years ago xx
Vonnie50• in reply to
Find it frightening that we have it so much younger or is it that we noticed symptoms earlier and diagnosed earlier ?
• in reply toVonnie50
Mine picked up when I had severe breathing difficulties and was hospitalised December last. I think coz I had asthma first had that not happened woukd not have known. Honestly don't know...I find it all still scary...my group well nearly didn't go back as last week everyone seem to be gasping for breath
Vonnie50• in reply to
I only found out as working at vets at time my breathing was getting harder after a few hours and vet thought I was allergic to the parrots. Dr had given me a Copd test which they said I passed and was fine ( obviously that was wrong) ct scan at Royal Brompton showed emphysema had given up smoking years earlier and was vaping instead. Gave that up straight away but still use nicotine gum costly stuff. Don’t give up group we need to give it a try both of us x
• in reply toVonnie50
If it's your first time I can tell you it really does help...and wow on how you were diagnosed
Vonnie50• in reply to
It is my first time diagnosed 2 years ago. How long since you were diagnosed?
• in reply toVonnie50
May this year..properly
Vonnie50• in reply to
So is this your first too pulmonary rehabilitation?
• in reply toVonnie50
I went Jan you will gain a lot
Vonnie50• in reply to
So how come another one ?
• in reply toVonnie50
The physio therapist invited me back..as I was on a low after proper diagnosis, they have really looked after me to be fair. Doesn't change what we have, but I can say our respiratory nurses hca physio are second to non. Although it's a packed group
Yes my resp doc said if I gave up smoking I could stay the same for at least 10 years.. Was diagnosed 1 year ago with mild copd and asthma..still having the odd few trying so hard to stop...
• in reply toHollyhops
Have you got emphysema
Quitting was the hardest thing for me to do. I tried 6 times before I was finally able to. So hlad I stuck with it.
I was diagnosed copd/emphysema about five years ago. I was using the ellipta inhalers and watching spots in chest on cat scans. I turned 50 quit smoking and started walking and going to gym. Just had my year exam and spots on lungs are minimal and I was taken off all inhalers except emergency one. He said my pft test results improved 39 percent and I am feeling great.
• in reply toVicky68
Wow how are you in yourself
Good for you Vicky. It's encouraging hearing good reports, especially when you put the effort in to improve your health.
• in reply toVicky68
What do you mean spots sorry
Vicky68• in reply to
I am feeling great and can feel a big difference in my breathing. He was watching these dark spots that showed up in my ct scans. I’m not sure what they are but he did tell me if they got bigger he would have to test further
• in reply toVicky68
Oh I see did you not ask and glad you feel great
I totally agree with this
All I know is I have copd. Emily61 it's 1 year ago since I had spirometry test and was told I had it haven't got appointment for respiratory clinic yet..i take Spilotto respimat once a day for copd and flixitide twice a day for Asthma.
Hi on Facebook this may be one for you ..lady diagnosed 30 years no oxygen emphysima
Hollyhops• in reply to
My dad is 93 got copd when he gave up smoking at 65 I think he is still mild he does get the odd chest infection but not too bad.. He is on 2 inhalers and uses the blue rescue inhaler occasionally.. Hope I take after him.. Lol...
• in reply toHollyhops
Wow which emphysima or bronchitis wow
Hollyhops• in reply to
Not sure il try find out and let you know..although he probably doesn't know himself 😂 he's so easy going he doesn't ask questions when he goes to doc's.. Wish I was like him.. Lol..
• in reply to
Daughter said she walks at her pace and doesn't really get out of breath..redsox it is indeed a personal disease
Hi Emily, thinking back, I was diagnosed
with copd in 2016 but was told that it showed up as mild in 2014 but I wasn't told about it. So actually it's 5 years & it's still mild. I panicked at 1st but with time, I realized that the best decision for me was to go forward, 1 day at a time & make the changes that would keep my healthy. I had quit smoking at least 25 yrs ago, which I'm so glad of. I started walking daily, drinking a lot of water & making healthy food choices. Some things are out of our control but I made my mind up to control the things I could. It freed me up from a lot of " what ifs".
I pray that God gives you peace as you go forward. 🙏🙏
• in reply tojoyful4u
All in God's control I am still praying
• in reply tojoyful4u
Another thing that confuses is people getting it years after no smoking but stable at mild..pray you stay that way
I suspect there are a lot of people with mild and even moderate COPD and don’t know it because their symptoms are not bad enough to be investigated, and may stay at that level indefinitely.
• in reply tojackdup
Do you know if any
jackdup• in reply to
If they don’t know they COPD because they have never been diagnosed because the symptoms aren’t bad enough then I wouldn’t know either. I read some time ago they believe about half of the people that have COPD don’t know they have COPD.
• in reply tojackdup
No I meant if you are stable or know of anyone diagnosed who are none progressive
jackdup• in reply to
Hypercat I believe has been stable for quite sometime and if you read this post they have actually improved. I have read a few posts here where people’s FEV1% of predicted has improved and others you have remained stable. You have to keep in mind even people with healthy lungs see their lung function decline as they age, so from that standpoint yes it does progress, but if it doesn’t progress any faster than someone with healthy lungs then your FEV1% of predicted remains the same.
healthunlocked.com/blf/post...
• in reply tojackdup
I think there is a difference with bronchitis and emphysima looking more on the emphysima line..
jackdup• in reply to
I think the majority of people here have emphysema but you would have to ask the particular people. I realize there are many other lung diseases represented here as well, but it seems emphysema is pretty common. I think many have both and while emphysema may be the primary diagnosis I think many also have chronic bronchitis as well. Again it also comes down to your definition. If your lung function declines at the same pace as someone without lung disease or with healthy lungs do you consider that progressing or just aging?
• in reply tojackdup
Thanks I am like redsox and like to keep the difference..Have you got emphysema I can't remember...this has been quite informative for me...it's actually dispelled some of the fears I had ...not all some
jackdup• in reply to
I could be wrong but think they started using the umbrella term COPD as often people had both emphysema and chronic bronchitis, or the didn’t necessarily know for sure. I don’t think I have ever been told, but just assumed it is emphysema. Always just been told I have COPD, and I think the treatment for both is the same.
It is probably good that we have a bit of fear as hopefully it will keep us from starting to smoke again and hopefully keep us doing the right things like exercising.
• in reply tojackdup
No mine is definitely emphysima had single breath diffusion test . You had yours years I believe..and there is a distinct difference
jackdup• in reply to
You could very well be right. I assume mine is emphysema but don’t think I was ever told that definitively.
• in reply tojackdup
You should find out how long have you had copd
jackdup• in reply to
I was first diagnosed in 2005 but am sure I had it before then as it is not like a virus where it can happen overnight. Much like a heart attack, it generally takes a long time before you get to where you have a heart attack, but to find out when the blockages in the arteries originally started would be impossible I suspect.
• in reply tojackdup
What stage are you how have you progressed
• in reply tojackdup
With emphysima that is
I can see how that can happen. They start treating according to the sympthoms.
Yes indeed. I suspect smokers will often have more difficulties breathing even if the don’t have COPD so people may not be diagnosed until it gets to the point it is worse than what you would normally see even for a smoker. By then you may be moderate.
• in reply tojackdup
I am the moderate one I think we can conclude it does progress...she is a very nice person to try to dispel.my fears though
joyful4u• in reply to
That's what happened to me Emily. Good thing is I didn't have to take meds that were not needful at the time. The doctor knew I hadn't smoked in so long & that's what could affect the progression of the emphysema. Terri
• in reply tojoyful4u
Do you think so...I am mikd/moderate so already progressed just not sure about me getting no worse...but
Still looking to hear from people I think my nurse may have a point but not sure time alone will tell
I was told approx 5 yes ago that I had mild Copd , she did say very mild. Anyway I am now 73 and walk about 2miles with the dog everyday, eat well, mostly healthy stuff . I still am breathless on an incline or up steps and have a nasty cough but overall my nurse says my test shows improvement, hardly anything there at all. I find using a preventer inhaler everyday helps and keep pushing yourself, I walk fast up a hill or go up a few fights of steps everyday, sometimes feel as if I can’t do it but I am hoping it keeps my lungs expanded and not too stiff. Good luck
Hi, I totally agree with you. After quitting smoking happens, the best thing we can do for ourselves is to walk, drink a lot of water & eat healthy. I find that exercising helps keep the mind focused on what's best for us & what we can do to advance.
It helps me to feel proactive in doing my part. Terri.
Respiratory nurse said she looked after someone who didn't progress for 25 years
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