Orkambi

[christina1947]

Only now heard the story of the 4 year old boy who pronounced his condition cystic fibrosis as 65 roses in 1965 and that’s what it’s reffered as today . I hope the government make orkambi available to all who would benefit from it ASAP xxx

[Hacienda]

Hi Hun, I Received an E.mail informing me that the Petition I had signed for Orkambi to be available for all Children who need it in the UK, it Has now been presented to Downing Street. Lets Hope it doesn't go to the Bottom of the Priority List, Fingers crossed for the Children who will live longer because of this Medication. Best Wishes. xxx