Experiences with

Orkambi

I hear today that Orkambi has been given the go-ahead to be used on the NHS at a more reasonable cost than originally. Is there a chance that this drug could help those with Non-CF Bronchiectasis? That would be interesting to know.

In adolescent and adult patients with cystic fibrosis taking lumacaftor-ivacaftor (ORKAMBI®), the combination drug appears to improve lung function and body weight and reduce the need for intravenous antibiotic treatment, according to a French study published online in the American Thoracic Society’s

I hope the government make orkambi available to all who would benefit from it ASAP xxx

Watched "Lucy" on BBC 1 News this Morning. She like Thousand other Young People who have CF, are being Denied this Amazing Medication as The Cost is aprox., £100.000 per person. It has been proven to have amazing results for CF. I did sign a Petition for this Med to be introduced here, ( The petition