Stem cell research: Hi ! New to this site, very... - COPD Friends

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Stem cell research

H2o1511 profile image
14 Replies

Hi ! New to this site, very happy to be here. I was diagnosed 2012 with Emphysema, I'm 67 now.

My question has anyone heard of stem cell therapy? I contacted the ," Lung Institute " and had consultation. They use your own stem cell from either none or blood depending on your specific situation.

They claim significance improvement, however it is,not permanent and,very expensive, not covered under Medicare or other insurance.

Just wondering if anyone has had this treatment?

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H2o1511 profile image
H2o1511
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14 Replies
Sandra1944 profile image
Sandra1944

I have not heard any thing about it.,

mikefa profile image
mikefa in reply toSandra1944

don't go to specsavers'

MaryAnne127 profile image
MaryAnne127

Fraud!!!! The place gives false hope to patients.

Articles from the Tampa Bay Times about Lung Institute

Article from 2016 - tampabay.com/news/courts/ci...

Article from 2015 - tampabay.com/news/health/ta...

Article from 2011 - tampabay.com/news/health/me...

H2o1511 profile image
H2o1511 in reply toMaryAnne127

Thank you Mary Ann, just learned of them your info is greatly valued !

MaryAnne127 profile image
MaryAnne127 in reply toH2o1511

Statement on Unproven Stem Cell Interventions for Lung Diseases (July 2016) from a Boston University link.

The below also has links for information from legitimate medical sources and legitimate clinical trials.

thoracic.org/members/assemb...

karenjordan profile image
karenjordan

I saw Dan Rather interviewing Willie Nelson. Willie said that he underwent that procedure and was pleased with the results.

I too have been in contact with the Lung Institute. I would like to do this procedure, but you're correct, it was more than I could afford.

God Bless,

Karen Jordan

Theresa-57 profile image
Theresa-57 in reply tokarenjordan

It's only for the rich. Go fiqure.

H2o1511 profile image
H2o1511

Yes,Karen, they used Willie Nelson as a reference, just trying to collect on going information about the institute and procedure.

Deb1983 profile image
Deb1983

Hi, this is jensmom. I contacted them also and the walked me through everything even told me I qualified, then gave the bad news of the expense. It should be free of charge. They are funded and basically using guinea pigs to perfect a maybe cure. They do have a awesome success rate. I wish I could afford it too. We just have to do our best withwhat we can afford. My dr Says I need a lung transplant. I'm only 54. I have not much hope.

Fryier profile image
Fryier

I looked into it a few years back. Was in Florida. Want to say it would have cost around 5000 or so. It's a hit or miss thing. Of course for around 12000 or will freeze your stem cells and you.get treatmeant in Mexico. Did not go through with it.

H2o1511 profile image
H2o1511

I believe they've a way to go , I do understand we all respond differently to most treatments,,,,I hope this can be something that will help us in the figure and Medicare and insurance companies will recognize cover it,,, big doubt on insurance companies !!

mikefa profile image
mikefa

I blame the press for all the false promises.stem cell therapy will i am sure become a leading method of treatment but by the time it reaches your local clinic having passed all the required safeguards we will be long gone.(at least me at 81)

Paying large sums of money for untested or unauthorised treatment just undermines our excellent health service .

tradermiketX profile image
tradermiketX

I have had 3 stemcell treatments from the Lung Institute--each increased my Lung Function by about 25%, but started around 16% and now at approximately 25%. However I went into hospital shortly after each treatment, and lost what I had gained.

So far am holding my 25% lung function.

Mike Furman

tradermiketX profile image
tradermiketX

Hi again. The Lung Institute does have a VA Discount!

Mike Furman

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