This is Idahoangel55

Hi, I am Tina, and new here. I was diagnosed with COPD 11 years ago, was showing signs 6 years before being diagnosed. it's been rocky road with ups and downs and good days and not so good days. I have learned a lot about COPD and the medications that I take and them some, but at times I am still confused and lost. I am so glad to find a place where I can talk to folks that are going thru the same things and understand what I am talking about.

9 Replies

  • That's why I joined this group. If you don't have COPD, then you don't understand why we get so tired,so out of breath. We are called lazy because we don't move around enough. I simply get too out of breath to do anything. It's a very hard life. Here everyone understandsand knows what I'm going through. Thank you for listening

  • Hi Tina; glad you joined the group, it seems that copd is a constant game of up and downs. I make the most of the up days, that is when I grab my oxygen and do my walking, I'm slowly increasing about the amount I can do. Have you ever done Pulmonary Rehab? I'm on the waiting the list, I have talked with others who have done it and say's it helps a lot, makes breathing easier. What meds are you on? I have Combivent respimat as my rescue inhaler, Dulera and Tudorza Pressair plus Daliresp which is a pill. I also have Heart Failure and Systemic Lupus and type 2 diabetic. Have a nice day.

  • They have videos on you tube and the internet on pulmonary rehab you can do in front of your tv, they also have low pace yoga on pulmonary .ive been to Classes and these videos are the same.Dont wait start excise from home

  • That's a great idea. I never thought about trying youtube for pulmonary exercise. I was in pulmonary rehab for 2 days before I had a pulmonary id like to do them at home at my pace. Thanks for the idea!

  • If you go to Youtube on computer and search for pulmonary rehab serval videos come up. You can watch and follow in the comfort of your home anytime you feel like it. Also you can buy a video..

    I find the best on YouTube but web has some too. Don't wait start now.

  • Where are you in Idaho? I have been through pulmonary rehab twice and it teaches you a lot about this nasty illness. It also improves your strength and mental attitude. My son thinks I am evil now because I am tired and I don't want to do activites with the grand kids like I used to. I wish I could....gave up my job, my hobby, and most of my friends because of this illness.

  • It can be so hard for others to understand. My husband of 20 years left me saying I was just lazy. He just couldn't understand and wouldn't go to the drs with me to even try. I also have given up everything. It's hard...hugs my friend...I totally understand how you feel

  • Hi Tina, so glad to meet you. I've only been here about a month myself but find it really interesting & informative

  • Welcome Tina!

    Thank you for sharing your experience and thoughts. It not only helps you but can also help many others as well 🙄