So I don't even know if this is polite to ask. But I'm just so curious about the Calquence that I took for 10 months and how long others are taking it.So my doc says that after the Gazyva infusions, and then the Calquence that started mid Gazyva, that once I'm done with these two medications that I will have 10 good years ahead of me. He said that I should never need to do chemo again for my CLL. I don't know what to think about that 10 year time line. Another said, "Oh 15" and the third was saying something else. But I figure if it does come back in 5, 10, or 15 years there will be another good medicine available. So I don't really think to much about it.
What I'm curious about is what others have been told on their use of Calquence. I understand that we are all different. But I'm just wondering because I'm so bored recovering and so curious on how long everyone has been told to use it.
It was a rough 10 months with the achy sore bones, sour stomach, and overall crappy feeling along with 16 hours of sleep a day. But I stopped the Calquence after 10 months of taking it, at 2 pills a day, two weeks ago. I go in for a CT scan and to see the doc this week. Overall my blood work has been good since the middle of the treatment.
I don't know if this is an intrusive question or not. I do appreciate those that answer. I'm just glad to be done with treatment and am slowly starting the climb back to being a healthy 60 year old.
One last thing if any if you are feeling blue about having to go through chemo treatment. I was feeling sorry for myself in the middle of getting my Gazyva infusions. Then an older gentleman came in and walked up to where I was sitting and said, "You are in my spot." I was all hooked up and thought, oh boy, I don't want to be rude. So I asked him if he'd like me to move. He replied that he was kidding. Then he proceeded to talk my ear off for the next few hours. Turns out he had pancreatic cancer. The weight of my feeling sorry for myself just lifted off of me and has never really (hardly, any) returned.
So, I just am hopeful that I can return to somewhat of a normal life for awhile. If anyone here ever needs to just talk, I'm listening. I know others just don't get it. Just be good to yourself when you can and ignore the noise.
Whoops, back to how long you took, or will be taking, Calquence. Thanks. Tom