travel insurance - treatmeny

[Ukuleleboy1]

I have had watch and wait CLL for eight years but now move to treatment. I guess this is going to hugely affect my travel insurance. Can anyone give me a rough figure on what they pay?

[thb4747]

Sorry but you won’t get a satisfactory answer unless you disclose where you live.

[Ukuleleboy1 in reply to thb4747]

East of England

[LeoPa]

I would not travel while on treatment unless I absolutely had to. We can't avoid taking risks all the time but at least the ones we can we should avoid IMO.

[Fowey2009 in reply to LeoPa]

If you are on long term treatment like Acalabrutinib, you wouldn’t go anywhere on this basis. My husband is now feeling much better than he has done for the last 12 years since diagnosis and we intend to make the most of this opportunity to travel whilst we can.

Beryl

[LeoPa in reply to Fowey2009]

I see. Best of luck traveling then.

[Suzie42]

I'm on Acalabrutinib since Feb. I asked last month if I can go to Greece in September for 5 weeks and she said go, it will probably do you good. I cannot wait! 5 weeks appointment free

[Nucleusman]

where do you live?

[Ukuleleboy1 in reply to Nucleusman]

East of England

[Fowey2009 in reply to Ukuleleboy1]

Allclear travel insurance - £454 for 4 weeks in Europe - to cover OH with CLL and myself, with minor issues. We recognise that we have to build in the cost of insurance into our travel budget.

We have tried Staysure twice and they have been awful on both occasions.

Beryl

[TiffUK]

Morning - I paid about £80 for 10 days in Belgium at Easter, with InsuranceWith. They were excellent to deal with on the phone (I couldn’t arrange it on line) so would highly recommend. I’m on Ibrutinib + Venetoclax.

One point to note is they told me I couldn’t arrange the insurance more than two months in advance or take out annual cover, which would make long term planning tricky.

Chris

[Dawson21]

We pay £450 for annual cover through The Forces Pension Association. Fit for travel basis with no exclusions. 75 or under to start then continuous cover for life.

[Baz209]

I've use Travel Insurance 4 Medical few years ago

[RedDevil74]

I’m in the UK, and on Acalabrutinib:

2024: Greece (seven nights) - £67.44 with Tesco.

2023: NYC (five nights) - £265.37 with Travel Insurance Medical.

2023: Rio de Janeiro (seven nights) - £107.22 with Tesco.

Obviously age is a big factor as well. I’m 49. Note, I ticked the ‘on treatment, but not on chemotherapy’ box for my USA trip. Biologically it isn’t, colloquially it is.

Enjoy your holiday!

[Shefflass]

I used GoodtoGo via Topcashback earlier this year for 3½ weeks in Greece. I had difficulty getting insurance as I'm awaiting further investigation of another unrelated diagnosed condition and hardly any would offer to insure me at all. I have CLL and was on Venetoclax. I also have a few more minor things to declare. Cost was £340. The cover seems very comprehensive - I'm very careful over which I choose having spent time in a hospital whilst on holiday abroad in the past. I loaded up on hand gel, Zoflora, FFP2 masks and disinfectant wipes in my luggage! I hope you have a fabulous time.

[Cotswolds1]

I am on here for my husband (he avoids medical forums.... or any forum!). He is on acalabrutinib and last year (when he was 77) we travelled to Mexico for a son's wedding. His consultant was not very keen, principally because of danger of Covid but we had survived another trip to Japan (another son getting married) the year before, just 2 months after getting a DVT (after which he was started on acalabruitinib as they thought the CLL was the culprit here). He then developed atrial fibrillation which he was been treated for, also, before the Mexican trip. He is on a multitude of drugs, for blood pressure, blood thinners, heart drug for the AF, statins, antibiotics and antivirals to go with the acalabrutinib.

We live in England and it cost us on a joint annual policy (I have nothing wrong with me except osteopaenia ) £1658 in February 2023. Over £600 of that is described as "additional premium and excess" on the policy for him. This covered the USA as well (we had 3 days there on the way). This was with Insurewith on their Worldwide 5 Sapphire policy. I think I recall the single trip policy was bad value as we had a trip to Austria and Germany planned and go to Ireland frequently within the year of insurance. Currently, we risk Ireland uninsured as we have a home there.

The trouble is that you never know how good an insurance company is until you have to claim. Thankfully, on both occasions we didn't have to but the cost is going to severely impact the likelihood of going to Japan next year for the birth of a baby.