Got a phone call to have more biopsies today and went in to dermatology where they took six swabs for bacterial and fungal from different body sites . And 4 punch biopsies from chest,neck chin and cheek. The dermatologist told me they are considering adding Rituxabnab to my ibrutinib but want to rule out any other possible infections etc first.
She also went on to say she took up my case with her senior consultant who advised her to add my monthly MDT meeting to the regional healthcare as well as the hospital I'm treated at . And said she thinks rituxabnab would help but heamotolgy are not keen despite my bloods going the wrong way over the last 19 months consistently. But because I have no obvious b cell involvement they want to continue on Ibrutinib which I have been on for 7 years now . So at least something is being done . Will be a few weeks before results she requested emergency two week turnaround but this is the NHS so I can expect 8/10 weeks lol. And see what happens if anything.