Hi All,
So the "No worries", "She can go 10 years without treatment" are in the past just 10 months after the CLL diagnosis. We are doing the bone marrow next week.
The doctor said that her CLL progressed to prolymthocythic leukemia. And Ibrutinib treatment only does not seem to be an option. I dont want to put her through chemo.
I am devasted. I didnt tell her she needs to do the bone marrow because I know she will be so scared. She lost her memory during an anesthesia and I know she wont accept another one.
Anyone with a similar progression, what treatment you required?
Please help me, I need more info to stay sane.
I try to act like everything is normal in front of her, but I just hide to cry my eyes out, I feel like I am dying. To see our loved ones suffering is so much more painful than bearing the pain yourself.