A not so good update : My husband was admitted... - CLL Support

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A not so good update

Nikkij81 profile image
37 Replies

My husband was admitted to icu yesterday he is not doing so good now but just hoping all this turns around

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Nikkij81
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37 Replies
Newdawn profile image
NewdawnAdministrator

I’m sure we all share your wishes too Nikki. It’s a worrying time for you but let’s hope they can stabilise your husband and get him back home as soon as he’s well enough. I see he’d started Acalabrutinib a month ago. Do they think this is implicated?

Newdawn

Nikkij81 profile image
Nikkij81 in reply to Newdawn

It certainly is they are not too sure but he had to stop taking them he started rituximab think that's how it's spelt had his first but he has auto immune problems so I don't know how this will go

Newdawn profile image
NewdawnAdministrator in reply to Nikkij81

Sending huge best wishes and hope there’s better news soon.

Newdawn

Nikkij81 profile image
Nikkij81 in reply to Newdawn

Thank you but looks like it's not

gardening-girl profile image
gardening-girl

So sorry to hear that hubby is back in the hospital. Was it again low hemoglobin that caused him to be admitted? Has he has a second blood transfusion? We are all thinking about the two of you, hoping for a fast resolution of his condition.

Nikkij81 profile image
Nikkij81 in reply to gardening-girl

Thank you yes it was he has had some many transfusions I have lost count thank you so much

Sanders9 profile image
Sanders9

Sorry to hear this Nikki. I hope they can get things under contol. Thinking of you at this difficult time and hoping your husband can be home soon.

Nikkij81 profile image
Nikkij81 in reply to Sanders9

Thank you

Thursday45 profile image
Thursday45

Just wishing you some good news and sending love

Nikkij81 profile image
Nikkij81 in reply to Thursday45

Thank you but looks like end of life care now

Milla15 profile image
Milla15

Sending enormous hugs and best wishes. Don't forget to look after yourself also xx

Nikkij81 profile image
Nikkij81 in reply to Milla15

Thank you

Tpdnotts profile image
Tpdnotts

Sending thoughts and prayers x

Nikkij81 profile image
Nikkij81 in reply to Tpdnotts

Thank you

Lilsa profile image
Lilsa

Dear Nikki, Thank you for keeping us up to date.

Having you there with him, asking questions and advocating for him must be reassuring and strengthening for your husband. It is a very tough time for you and I hope, like everyone else that there is some good news soon.

Do take care of yourself.

Lilsa

L

Nikkij81 profile image
Nikkij81 in reply to Lilsa

Thank you so much but unfortunately it looks like end of life care now

Teresa252 profile image
Teresa252 in reply to Nikkij81

I am so sorry to hear this. I will keep you both in my thoughts and prayers. I wish you strength to get through this and peace and comfort for your husband.

JerrysGirl3 profile image
JerrysGirl3 in reply to Nikkij81

Is he able to talk ? Let him talk about his feelings about end of life. I know I am facing something similar and I have one friend who I talk to about it and knowing she is listening makes me feel better 🥹❤️

Sepsur profile image
Sepsur

You may find this a useful resource :

cc-sn.org/information

Floxxy profile image
Floxxy

So very sorry to hear that. Sending best wishes an I hope he recovers soon x

Nikkij81 profile image
Nikkij81 in reply to Floxxy

Thank you but unfortunately I have to sort end of life care now

Floxxy profile image
Floxxy

I'm so sorry to hear that. Sending love. X

Muddywater profile image
Muddywater

Thinking of you both at this time.

Mtk1 profile image
Mtk1

Just sending my support to you at this stressful time, the whole community on here will be here for you.

Dave x

JEEA profile image
JEEA

Oh dear Nikki, You've said "end of life care". Those words must have been a lot for you to take in. So hope that you have family / loved ones with you both, who can give you support as you go through this difficult time. And that hospital staff are caring and supportive.

Is your husband conscious? Does he know that they are thinking 'end of life care'? I'm wondering how he is in himself about what is happening. If it's come suddenly, are there things that he might want put in place, although he may have little energy to do so ?

I'm wondering what will help you both as you go through this--what we as a community can do to support you? Of course, all of us are surrounding you with hugs and love and prayers and wishes for things to go as best as they can given what is happening. Eleanor

We are all sending you love and support. End of life is difficult. Your husband is lucky to have you. My wish for you both is to find peace and comfort. 🙏

Wendy328 profile image
Wendy328

Sending prayers!

Toothdoctor profile image
Toothdoctor

Nikki extending my support as always. One question has he been given EPO injections to raise his hemoglobin? Dies he get just blood transfusions or platelet transfusions too?

Wishing you all the best

Nurseq profile image
Nurseq

Prayers for you and your dear husband as you face tough decisions in the days ahead.

Sojomama13 profile image
Sojomama13

Nikki,

Was so sad to read this, sending prayers your way and many virtual hugs. I had many transfusions, both blood and platelets, when I started treatment. Hoping things resolve quickly and this is only a setback.

Sandy

Nikkij81 profile image
Nikkij81 in reply to Sojomama13

Thank you but my husband has now passed

thompsonellen2 profile image
thompsonellen2

Sending big hugs and hopes this turns around. xo

Nikkij81 profile image
Nikkij81 in reply to thompsonellen2

Thank you but he has now passed

Txkate profile image
Txkate

So very sorry to read this. There are no words for such heart pain, only strong and lasting hugs. 💞💓💞

Analeese profile image
Analeese

Nikki this is such sad and terrible news. I am so sorry that you’re going through this. Sending prayers for both you and your family as well as your husband that you are able to spend this time together to comfort one another.

Nikkij81 profile image
Nikkij81 in reply to Analeese

Thank you my husband has passed

Newdawn profile image
NewdawnAdministrator

Turning off replies to this post now given the circumstances to avoid people sending further advice.

Newdawn

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