My husband was admitted to icu yesterday he is not doing so good now but just hoping all this turns around
A not so good update : My husband was admitted... - CLL Support
A not so good update
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Nikkij81
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NewdawnAdministrator
I’m sure we all share your wishes too Nikki. It’s a worrying time for you but let’s hope they can stabilise your husband and get him back home as soon as he’s well enough. I see he’d started Acalabrutinib a month ago. Do they think this is implicated?
Newdawn
It certainly is they are not too sure but he had to stop taking them he started rituximab think that's how it's spelt had his first but he has auto immune problems so I don't know how this will go
So sorry to hear that hubby is back in the hospital. Was it again low hemoglobin that caused him to be admitted? Has he has a second blood transfusion? We are all thinking about the two of you, hoping for a fast resolution of his condition.
Thank you yes it was he has had some many transfusions I have lost count thank you so much
Sorry to hear this Nikki. I hope they can get things under contol. Thinking of you at this difficult time and hoping your husband can be home soon.
Just wishing you some good news and sending love
Thank you but looks like end of life care now
Sending enormous hugs and best wishes. Don't forget to look after yourself also xx
Dear Nikki, Thank you for keeping us up to date.
Having you there with him, asking questions and advocating for him must be reassuring and strengthening for your husband. It is a very tough time for you and I hope, like everyone else that there is some good news soon.
Do take care of yourself.
Lilsa
L
Thank you so much but unfortunately it looks like end of life care now
I am so sorry to hear this. I will keep you both in my thoughts and prayers. I wish you strength to get through this and peace and comfort for your husband.
Is he able to talk ? Let him talk about his feelings about end of life. I know I am facing something similar and I have one friend who I talk to about it and knowing she is listening makes me feel better 🥹❤️
So very sorry to hear that. Sending best wishes an I hope he recovers soon x
I'm so sorry to hear that. Sending love. X
Thinking of you both at this time.
Just sending my support to you at this stressful time, the whole community on here will be here for you.
Dave x
Oh dear Nikki, You've said "end of life care". Those words must have been a lot for you to take in. So hope that you have family / loved ones with you both, who can give you support as you go through this difficult time. And that hospital staff are caring and supportive.
Is your husband conscious? Does he know that they are thinking 'end of life care'? I'm wondering how he is in himself about what is happening. If it's come suddenly, are there things that he might want put in place, although he may have little energy to do so ?
I'm wondering what will help you both as you go through this--what we as a community can do to support you? Of course, all of us are surrounding you with hugs and love and prayers and wishes for things to go as best as they can given what is happening. Eleanor
We are all sending you love and support. End of life is difficult. Your husband is lucky to have you. My wish for you both is to find peace and comfort. 🙏
Sending prayers!
Nikki extending my support as always. One question has he been given EPO injections to raise his hemoglobin? Dies he get just blood transfusions or platelet transfusions too?
Wishing you all the best
Prayers for you and your dear husband as you face tough decisions in the days ahead.
Nikki,
Was so sad to read this, sending prayers your way and many virtual hugs. I had many transfusions, both blood and platelets, when I started treatment. Hoping things resolve quickly and this is only a setback.
Sandy
Thank you but my husband has now passed
Sending big hugs and hopes this turns around. xo
Thank you but he has now passed
So very sorry to read this. There are no words for such heart pain, only strong and lasting hugs. 💞💓💞
Nikki this is such sad and terrible news. I am so sorry that you’re going through this. Sending prayers for both you and your family as well as your husband that you are able to spend this time together to comfort one another.
NewdawnAdministrator
Turning off replies to this post now given the circumstances to avoid people sending further advice.
Newdawn
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