Several months ago I posted a question regarding whether my response to initial obinutuzumab treatments were normal. I received dozens of helpful, thoughtful replies.
Now I'm three months into the treatment regime, with three more monthly infusions to go. For the last two months my numbers have been normal with rare exception, and now even those exceptions (e.g., platelets) are very close to normal.
So I'm wondering if the fatigue I continue to feel is normal. I used to have to fit my day into the hours between 6:30 am and 2:00 pm, when I would absolutely have to take to my bed. (Poor, poor moi. Picture me with the back of my hand weakly touching my forehead, a la the Masterpiece Mystery intro, known to US PBS viewers.) Even during my non-bed hours I was sometimes exhausted.
Today I have decent energy in the morning, and I can extend my days to 4:30 or 5:00 pm. I'm still not at the stage where I can attend evening events.
I would love to hear from others who have had or are familiar with Gazyva to find what their experience has been this far into treatment. I've been able to find nothing on the web beyond standard drug manufcturer warnings about potential nausea, fever, chills, etc.--none of which I have, by the way. Nothing from people who have actually gone through the full treatment cycle, with the exception of Skincade on this site, whose experience has been somewhat different from mine.