I just got this result today... Even thouhh no lower limit shown, should I get worried for such a low IgE?
Background: I am having monthly IVIG ingusion after 6 months of chemo due to low immunoglobulin levels... today gave blood sample ans waiting for the results..First time seeing IgE result...Previously only receiving IgA/G/M
Yes, I am fully able to identify with the issue you describe as well as the timing you described. I have been on the same med for 15 months. The stools are never firm but no longer extremely loose and no more cramping. Because I have an issue with maintaining a normal hemoglobin I take a heavy Rx for iron and the binding effect of the iron it has sort of evened things out a little but not totally.
You have done the right thing by checking things out as we must always be our own advocate.
I like you have dealt with CLL for years, going on 34 years for me and life is so very special!!! Just a week ago I had my Aorta Valve replaced via a procedure called a TAVR. No pain, no blood transfusions and no pacemaker needed just the new valve. Unreal what they can do these days!!!
Be alert and be safe! All the very best to you!
Panz🙏👍🙂🌴💕☘️🌈
Thanks dear Panz! Encouraging to see you are doing well after 34 years 🙏All the best 😀
Hi Panz, could I be so bold as to ask what your IgG levels are and also how long you have been having your infusions.
My regards
Aerobobcat
You are not being bold at all….we are here to support each other in any way we are able. I continue to have keyboard issues most likely of my own making! About 2012 I started IVIG every 4 weeks. At that time these were my numbers:
IgG 158
IgM <4
IgA <6
IgD and IgE Both zero and they no longer test for those as the take a separate test and after repeated testing I never had either one more the an unmeasurable trace.
Now they test about every 3 months.
Last test results in January of this year:
IgG 986
IgM <10
IgA <4
Any more questions I am here for you!
Panz🙏☘️🙂👍💕🌴🌈
Hi Panz, thanks for the information regarding your IVIG history. This subject is one of my main concerns, I’m now into my 10th year of IVIG infusions.
I have been responding to the thread regarding a post from Peggy4 about IVIG levels and my own interest is in how long people have been having infusions and their levels.
More importantly at what levels people are being withdrawn from the treatment.
My own levels UK ratings, are IgG high at 10.1, IgA .3 and IgM.18.
It should be noted that my IgG level is the highest it has been but I do receive my infusions every 3 weeks.
My regards
Aerobobcat
I have been told I will remain on IVIG the remainder of my life and most likely the same dose and every 4 weeks. Here was a period where the IVIG’s were hard to come by and I questioned how that would be handled and they told me that I was at the very top of a list of patients in most needed of IVIG and that was far at the top and I came close to a reduced dosage but it didn’t happen fortunately…..I have been so very fortunate all these years. I am currently recovering from a TAVR procedure to replace my Aorta Valve and have never felt better. No pain, no blood transfusions and no pacemaker that they thought I might need. Life is truly very special! All the very best to you!!!
Panz🙏☘️🙂👍💕🌴🌈
Hi again Panz, it’s good to hear you are feeling so well, long may it last.
My best wishes
Aerobobcat
An inspiring story; thanks for sharing. One question, if I may. Where did you have the TAVR done? I have aortic valve insufficiency and maybe facing the same procedure.
I had mine done at a Cleveland Clinic owned hospital just down the road from us about 12 miles in Stuart, FL. My cardiologist had suggested I have an Aorta Valve replacement but that was 3 years ago and he would have sent me to JFK Hospital in West Palm Beach but as that was miles away I chose not to do it….then 2 years ago the Cleveland Clinic took over our local hospital. Then six weeks ago my cardiologist told me I was nearing the possibility of a major heart attack or stroke and must make a choice….well there really was no choice. They moved me to the top of the TAVR list and I had it done on March 8. It was a very straightforward procedure…no pain, no blood transfusions and no pace maker ! I was in the the hospital just one night and home in a suggested house arrest for 5 days due to all the Covid in our area. I did have bruising but no pain whatsoever!!! If I were you I would give it some serious consideration. I have just never felt better!!! All the very best to you and please keep me updated if you care to
Panz 🙏💕👍☘️🙂🌴🌈
Than you very much for your response. Your experience eases my apprehension. Uninformed projections of future events had me depressed. I'm happy for you, and I hope I have similar experience.
Thanks again.
Regarding TAVR, I did a lot of research 5 years ago when husband had his hemithoracotomy for aortic valve replacement. I researched TAVR a lot but because he has unregulated atrial fibrillation that did not respond to cardioversions or ablation, I wanted him to have the left atrial appendage capped which is the place most strokes originate because of clots forming there. Also I was concerned about the length of time a TAVR would last and if replacement was necessary was worried about a TAVR on top of TAVR. We were fortunate that a doctor from New York was coming to Miami to take over chief of cardiology at Baptist Hospital and he performed a successful procedure for my husband. He now heads up the cardiology department at Mercy Hospital here in Miami. His name is Allan Stewart, M.D. The owners of the hospital group is called HCA. The incision was less than 4 inches long in the sternum. At that time Ibrutinib was what our doctor wanted to be his next treatment and I hoped with closing off the left atrial appendage would make it less likely that he would have a stroke due to his atrial fibrillation especially with atrial fibrillation possibly exacerbated by the ibrutinib. So far it is 5 years and he is doing great. He will be 84 this year. For most people TAVR is a wonderful procedure but each case has to be weighed as to pros and cons. So happy you are doing well.
I forgot to add that I receive IVIG every four weeks and IVIG addresses only the IgG levels and doesn’t do much for all the other Ig levels….mine being very low and a couple are zero…but that has been a non issue.
🎈Panz😍☘️
I believe IgG is the key immunoglobulin.
As far as I know only IGG is given with the IVIG nfusions the others cannot be supplemented
I don’t think I can give you anything that will be encouraging as one of my meds Obinutuzumab was withdrawn from my treatment because of the terrible side effect it caused me , and my second medication Venetoclax had only been able to go up to 200mg instead of the maximum dose of 400mg per day and that also has been a struggle because of all the pain I’ve been having
I am now on my final cycle of Venetoclax and will find out in May what the plan is after being on it for a year
I wish I could tell you something to cheer you up but it’s been very very hard for me and I had CLL since 2005 and only started treatment last year
Wish you the best and good luck with your treatment
Neutrophils staying low
Not injecting IVIG due to low IGA
High neutrophils low lymphocytes low IGg
platelets low
low neutrophils 
