Saw consultant this afternoon. All still good and on track. White count down again to 33 (normal being anywhere between 4 and 11. When I started treatment, mine was 250! Heamaglobin still the same but still fine, kidney and liver function both good. Neutrophils are 4.5. She will see me in another six weeks, would have been eight but that would hit Christmas. I feel so much better now that the appointment is over. Still no antibodies because Acalabrutinib being a targeted drug affects the immune system. So no mixing still, all in good time.
Stay safe and well.
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kitchengardener2
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Sounds like you are doing well, I don’t see my consultant for 12 weeks so won’t know if we are still on same path, but I’m taking encouragement from your numbers, 8 weeks on acalabrutinib and I’m feeling good.Keep safe Dave x
Thank you for sharing your updates. I have an appt Wed and feel Dr will want me to start Acalabrutinib soon. Hemoglobin creeping downward with each visit. Thanks again for sharing and glad all is positive news (except antiibodies) i guess us not mixing and practicing be careful is our new normal 👀
Question, why no mixing ? If you take precautions etc. I am on acalabrutinib in remission, no antibodies after 2 jabs and 2 covid infections. Living life to the full....with some caution..Stay safe.
BTK inhibitors are amazing. One year on from starting of Ibrutinib my bloods are completly normal. WBC is 5 and Lymphocytes are 1.9 I would suggest you will be very normal very soon. I lost 100 off my Lymphocyte count in the first 18 days, then it slowed and took about 6 months to get to a count of 4.
Can cope with that. Wonder if anyone has had pain on lower right side of abdomen? Not so much pain more discomfort. Had CT scan in January and nothing nasty showed up. Try as I may, I can't get to see a GP only a selection of support assistants and nurses. Waiting results of stool samples tests but I scared myself after reading that CLL being treated with Acalabrutinib can sometimes lead to enteritis colitis and neutrapenia. Going stop looking at Dr Google.
Probably good to have bloods regularly for your bio chemistry. When you call the GP you have to enforce you have cancer, are at risk of infection and need a physical appointment.
I’ve been on Ibrutinib for a year now. My bloods are normal, no side effects ( at least at the moment Heading into year 2 of treatment from December. I worry about resistance, I worry about transformation, but I am healthy right now.
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Heading into year 2 of treatment from December. I worry about resistance, I worry about transformation, but I am healthy right now. 
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