Hello all! I am a healthy 43 y/o male with a very recent diagnosis of SLL via lymph node biopsy. I suspect this has been going on for a few years as I have had a lymph node enlarge on my neck 3 yrs ago that everyone brushed off due to me not having any other symptoms. Axillary lymph node swelling started 5 months ago. Saw local hematologist last week and he ordered bloodwork, FISH and CT scans. Recent ct scans show bulky lymphadenopathy in abdomen. Spleen is at high end of normal size but not classified as spleenomegaly. Largest lymph node is periaortic and measusres 8.5 x 3.5 cm. I work in medical field and had a general surgeon friend look at scan. He said the lymph nodes are not impeding or pressuring on anything.
My follow up was not supposed to be for another 2 weeks but local hematologist called yesterday and moved up my appt saying he needs to start treatment ASAP. I am having no other symptoms except very rare mild night sweats and a feeling of fullness in my abdomen after I eat. I am very healthy and active. He said lab work was fine. FISH testing not back.
I am trying to coordinate seeing a CLL specialist and have reservations about starting treatment until I see someone. I am trying to be seen at Ohio State University cancer center abs should be able to make it there within the next few weeks. I am treatment naive and while I am on board with treatment I’m just not sure what the best approach is. I also don’t want to limit my possibility of joining a clinical trial should the hematologist suggest it. Kind of confused and would be grateful for you opinions.
Thanks in advance