If you haven't yet joined your local CLL Society through cllsociety.org and are getting their emails about events, this weeks' email announced 2 upcoming events that seem especially interesting.
Health and Wellness: Beyond the Medicine Cabinet
Monday, April 25th at 10:00 AM PT / 1:00 PM ET
Immunocompromised: Navigating the COVID-19 Pandemic While Living With CLL
Wednesday, March 30th at 3:00 PM PT / 6:00 PM ET
They have also announced a "New Watch and Wait Support Group Interest Survey" which I would encourage people on W&W to take.
For those unfamiliar with CLL Society, please check it out. There is a wealth of knowledge to be obtained about Chronic Lymphocytic Leukemia at cllsociety.org. Thank you Dr. Koffman!
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SofiaDeo
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No interest/political movement, just a trusted internet source that generally doesn't pop up readily in Google searches of things. It costs $$$$ to be at the top of search engine searches, and the "Sensational" sites with advertising tend to float to the top compared to trusted medical/educational ones. Harvard, MDAnderson or Cllsociety aren't going to spend $$$$ like the for-profit websites do.
as well as a section on Covid. It's non-techy, not a hardcore medical speak site.
I find the American Cancer Society (cancer.org) and the Leukemia and Lymphoma Society (lls.org) also have good basic introductory information. IMO CLL Society delves deeper into our specific disease state, but still easy to learn & understand for non-medical people. And it has the downloadable template, to make it easy to start tracking your labs. You just enter the data listed on your lab reports in the appropriate field. Then you have a single source document to review what your labs were at any given time.
You can join any of the support groups here and the signup process allows you to subscribe for all future email notices: cllsociety.org/events/2022-04/
They are a non-profit organization that Dr. Koffman (who has CLL and contributes here) with his wife, devotes much of his time to. This organization is responsible for arranging the "free second opinion" of our disease state our Pinned Posts refer to.
Unlike AARP which requires your to spend money to join, and isn't tax deductible, CLLSociety is a non-profit that offers services to all, no charge, to access the information. Contributing to them is totally voluntary.
If you purchase items on Amazon in the US, their smile.amazon.com program has CLLSociety as a listed charity, and Amazon will donate a small percentage to them. IDK if the Smile program works in other countries other than the UK, whose link is "smile.amazon.co.uk". Just go to "smile.amazon.com" if you're in the US and sign up, and type this in your browser, instead of "amazon.com". If you use the Amazon app, there is a way to toggle a setting so using the app enables the donation.
I had a post with links to do this for Amazon, but for some reason I can't access my Posts right now. I'll add the link when I am able.
You are on the CLL Society website? Lankisterguy gave the link to cllsociety.org in the previous post, just above your question. It's under Support Groups/Education tab of the main website page. You sign up for it. Not sure where the Survey link is; I am not in W&W so skipped over that.
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