Is It Time to Treat Your CLL? What You Need to... - CLL Support

CLL Support

23,253 members39,949 posts

Is It Time to Treat Your CLL? What You Need to Know

lankisterguy profile image
lankisterguyVolunteer
12 Replies

Topic: Is It Time to Treat Your CLL? What You Need to Know

Description: When it’s time to move forward with a chronic lymphocytic leukemia (CLL) treatment plan, what determines the best therapy for YOU? In this webinar, Dr. Susan O’Brien, will review key decision-making factors, current CLL treatments and emerging research.

-

Watch online on Tuesday, August 18 at 1 PM Eastern (10 AM PT, 12 PM CT) for a 30-minute virtual webinar.

-

Time: Aug 18, 2020 12:00 PM in Central Time (US and Canada)

-

Registration Link: us02web.zoom.us/webinar/reg...

-

Following the airing, the program will live here:

powerfulpatients.org/2020/0...

-

Len

Written by
lankisterguy profile image
lankisterguy
Volunteer
To view profiles and participate in discussions please or .
12 Replies
ButterflyRose profile image
ButterflyRose

lankisterguy Thank you so much for sharing

cllady01 profile image
cllady01Former Volunteer

Len, do you know if a video or scripted version will be available on a later date?

lankisterguy profile image
lankisterguyVolunteer in reply tocllady01

I just got the official answer from LLS:

Hi Len,

I was able to confirm that the program will be posted online, but not on the LLS site. It is not an LLS program; we are just helping to promote. Here is what I learned:

Following the airing, the program will live here:

powerfulpatients.org/help-b...

Thanks so much!

Jennifer Shah

Patient & Community Outreach Manager

The Leukemia & Lymphoma Society

Voice: (212) 376-4656

Email: jennifer.shah@lls.org

-

So if you miss the live presentation, you can catch a replay.

Len

cllady01 profile image
cllady01Former Volunteer in reply tolankisterguy

Thank you, Len. You are one who goes out of his way to get what we ask for, and you have so many great contacts. I appreciate your vim, vigor and vitality along with your kindness.

lankisterguy profile image
lankisterguyVolunteer in reply tocllady01

Aww Shucks, Thanks

Your note and sentiments are greatly appreciated. Len

lankisterguy profile image
lankisterguyVolunteer in reply tocllady01

I added the replay link to the original posting and here it is again: powerfulpatients.org/2020/0...

cllady01 profile image
cllady01Former Volunteer in reply tolankisterguy

Thank you, Len, for the extra effort.

I like having the script that follows --easier to find spots I want to reread at another time.

cllady01 profile image
cllady01Former Volunteer

Thank you. I'd love the chance to see the presentation, and it would be great to have it available for all to view at a convenient time for each. Hope it can happen!

lankisterguy profile image
lankisterguyVolunteer in reply tocllady01

From LLS.org/webcasts lls.org/patient-education-w...

Chronic Lymphocytic Leukemia

Chronic Lymphocytic Leukemia (CLL): What Are My Treatment Options? (May 21, 2020)

lls.org/patient-education-w...

Fact or Fiction? CLL Treatment and Side Effects (September 17, 2019)

lls.org/patient-education-w...

Update On Chronic Lymphocytic Leukemia (CLL) (May 3, 2019)

lls.org/patient-education-w...

What’s on the Horizon for Chronic Lymphocytic Leukemia? (May 8, 2018)

lls.org/patient-education-w...

Living with Chronic Lymphocytic Leukemia (CLL) (July 12, 2017)

lls.org/patient-education-w...

Information for Patients with Chronic Lymphocytic Leukemia (May 19, 2016)

lls.org/patient-education-w...

Treating Chronic Lymphocytic Leukemia (CLL): Evaluating and Managing Options (June 11, 2015) lls.org/patient-education-w...

-

Len

Emerfly profile image
Emerfly

Thank you Len , I’ve registered but whether I’ll be able to watch it will very much depend on how my 95yr old mother is . It’s information I’d love to have before I see my new CLL consultant . My body is telling me it’s time for treatment but according to my bloods it’s not (I think) . I am so utterly exhausted from repeat infections , unintentional weight loss , bone and nodal pain that if I did not have my mother to care for I think I’d cover my head and stay in bed ! Emer

lankisterguy profile image
lankisterguyVolunteer in reply toEmerfly

Hi Emerfly,

I just got the official answer from LLS:

Hi Len,

I was able to confirm that the program will be posted online, but not on the LLS site. It is not an LLS program; we are just helping to promote. Here is what I learned:

Following the airing, the program will live here: powerfulpatients.org/2020/0...

Thanks so much!

Jennifer Shah

Patient & Community Outreach Manager

The Leukemia & Lymphoma Society

Voice: (212) 376-4656

Email: jennifer.shah@lls.org

-

So if you miss the live presentation, you can catch a replay. powerfulpatients.org/2020/0...

Len

Emerfly profile image
Emerfly in reply tolankisterguy

Thank you Len much appreciated .

Not what you're looking for?

You may also like...

Dr. Neil Kay: CLL Society Webinar, Just Diagnosed: What Do I Need to Know?

HI, Please join us for a CLL Society Webinar, Just Diagnosed: What Do I Need to Know? on Tuesday,...
bkoffman profile image
CLL CURE Hero

“MRD: What Should It Mean to Me?” Ever dreamed of coming to a point where your CLL treatment could be safely stopped? View CLL Webinar.

Instant replay! In case you missed it, here it is! CLL Society’s latest Webinar — “MRD: What Should...
bkoffman profile image
CLL CURE Hero

Learning to Decode Your Blood Test Results for CLL

Learning to Decode Your Blood Test Results for CLL - Presented by CLL Society Tuesday, June 29,...
lankisterguy profile image
Volunteer

Tuesday! Nov. 17th CLL Society Webinar "The Future of CAR-T Therapy: Can CAR-T Cure CLL?”

Tuesday! Nov. 17th CLL Society Webinar "The Future of CAR-T Therapy: Can CAR-T Cure CLL?” Claim...
bkoffman profile image
CLL CURE Hero

CLL Society COVID-19 Virtual Community Meeting Part II is this Friday! Our expert panelists answer your COVID-19 questions!

CLL Society COVID-19 Virtual Community Meeting Part II is this Friday! Our experts are back for...
bkoffman profile image
CLL CURE Hero