Booster or 3rd Jab

[Ellim]

I had a covid booster in Scarborough on Saturday, tried to explain that I had CLL and wanted it noted as a 3rd vaccine but they where not interested, showed them my letter that I was a CLL sufferer. How can I get it changed on my medical records to show a 3rd vaccine?

[kitchengardener2]

I saw my consultant in Scarborough on Monday. I explained the difficulties you and I had had with the boosters and getting it noted on my notes. She has agreed to write a letter to my GP and request this is done. Let you know how I get on. Have you been ok after the jab?

[Ellim in reply to kitchengardener2]

Yes, just a achy arm.

[kitchengardener2 in reply to Ellim]

Just rest. Stay safe x

[CLL23 in reply to kitchengardener2]

I got a full dose of Moderna as a booster on Saturday.

Other than that, no problems. I feared much worse after the side effects I got from Pfizer two, the the booster has been uneventful.

Best of luck with your treatment!

[Panz]

I got my third Moderna on last Friday and I asked if I could have a third full strength in place of the Booster and they said yes by simply saying I had cancer of any kind it was a done deal. I am very grateful!

Panz 🙏☘️💕🙂

[annmcgowan]

I got mine a while ago they recorded it in my notes as NHS system has no facilities for this yet. I was told booster and 3rd does were the same thing. They were only differentiating on paper as we will get a 4th jab a booster 6 months later.Ann

[Annie1920 in reply to annmcgowan]

That's what I was told.. But.. I was subsequently called for a 3rd.. So who knows

[Suzie42 in reply to annmcgowan]

Yes that's true but boosters for us need to be in 8 weeks not 6 months after 3rd dose otherwise no different from those who have had boosters

[annmcgowan in reply to Suzie42]

Thank you for that information I was not told booster should be 8 weeks after 3rd shot.Ann

[Suzie42 in reply to annmcgowan]

My gp booked mine in at same time as my 3rd primary, so have a date in Dec. I cannot believe that there is so much confusion with all of us. NHS need to be clear on guidelines

[annmcgowan in reply to Suzie42]

Thank you for that information Suzie 42 I will contact my GP. I agree re the confusion, unbelievable!!Ann

[Suzie42 in reply to annmcgowan]

Hopefully you gp may know about it

[annmcgowan in reply to Suzie42]

Hopefully. 🤞

[mrsjsmith in reply to annmcgowan]

Anne and Susie,

I asked my GP last week about whether I was registered as having third or booster vaccine. She said there is only one code so in a word no. She said hopefully in 6 months they will contact the same CEV group, but as so many of you had problems put a big ??? in your diaries.

Colette

[annmcgowan in reply to mrsjsmith]

Thank you Collette. That is what I expected as there was no way the system could differentiate between booster or 3rd jab. In my case they put a note on but that’s likely not going to do the trick.Ann

[Psmithuk in reply to annmcgowan]

I was told 24 weeks after 3rd primary!

[annmcgowan in reply to Psmithuk]

Thank you. I assumed it would be in 5 or 6 months. I have e mailed my GP practice for advice.Ann

[JEEA in reply to Suzie42]

Dear Suzie, Gosh I didn't know that the booster should be 8 weeks after the 3rd vaccine. Is there a link somewhere that tells us that so that I can let my GP know. My GP is not good on knowing these sorts of things!

[Suzie42 in reply to JEEA]

Im afraid it was my gp who told me this and it makes sense. They must have got info from nhs. My husband had his booster the same time as my 3rd orimary as its exactly the same dose, just recorded differently, but was not invited like me for a booster 8 weeks later, im on haematology list

[JEEA in reply to Suzie42]

Thank you Suzie. I've searching on line for the 8 week booster information but can find it no where. Sadly, I know that my GP will not know about it, although I did manage to get Shingrix. I'll put a separate post on here in case anyone else knows where the 8 weeks is referenced. Eleanor

[mrsjsmith in reply to Suzie42]

I think the 8 weeks comes between 2-3 as an ideal time lag I seem to remember ( but horse /stables springs to mind ). The last webinar I saw with Helen Parry she said the suggestion is for all CEV to have a booster 6 months after 3rd but that wasn’t definite.

Colette

[Suzie42 in reply to mrsjsmith]

I have definately had my 3rd primary and have booster in 8 weeks. Everybody will be getting another booster in 6 months so why have a 3rd primary now, you may as well have had the booster which is exactly the same dose. There must be some guidance out there somewhere

[mrsjsmith in reply to Suzie42]

Read the CLL society October newsletter which explains the situation.

Colette

[Newdawn Administrator in reply to mrsjsmith]

images.cllsupport.org.uk/wp...

cllsupport.org.uk/third-cov...

Doesn’t give guidance on time between third vaccine and booster however.

Newdawn

[mrsjsmith in reply to Newdawn]

Thank you Newdawn adding a link is beyond me. The suggested 6 months is in the September newsletter and possibly on the original JCVI letter, but I will never find that again.

Colette

[Newdawn Administrator in reply to mrsjsmith]

I’ve just posted the JCVI guidance on another post Colette and it isn’t specific on the recommended duration between the third vaccine and booster. It is 6 months for booster after second vaccination however.

gov.uk/government/news/jcvi...

Newdawn

[mrsjsmith in reply to Newdawn]

Wish I could find where I read it and the only bit I can find on another letter is ‘ therefore further advice will be provided on a booster vaccination in due course for these individuals ‘. I also found the note I made during the Helen Parry webinar ‘ 6th month booster is pending further notice ‘ Off to lie down now !

Colette

[Astro617 in reply to annmcgowan]

The Pfizer booster and 3rd dose are the same but the Moderna booster is 50% of the amount of the 1st dose. Very interesting.

[annmcgowan in reply to Astro617]

Thank you very interesting Astro617. Do you understand why?Ann

[Astro617 in reply to annmcgowan]

I guess that's just the way Moderna set the shots up. The Moderna vaccine has 3x the mRNA as does the Pfizer so perhaps that is why the booster is a smaller dose with Moderna. But I really don't know. Have a great day!

[annmcgowan in reply to Astro617]

Thank you, you too.Ann

[Belfastbees]

same position here, booster given on 1st nov. I didnt make much of a fuss as I reckon if a 4th is needed itll be given. Main thing is that you get a fresh shot to maximise the chance of protection into the winter.

[Annie1920 in reply to Belfastbees]

I had an nhs antibody test after the 3rd which was negative so don't count on any protection

[Belfastbees in reply to Annie1920]

Yes I understand. Even though I had a result, 189 u/ml, I concluded I didn't know squat. Unfortunately CLL affects the very blood cells which generate the antibodies so need to factor that in as well. It is a minefield, I'm still careful.

Not I tending to get an antibody test again, after my recent booster.

[JEEA in reply to Annie1920]

Just did my NHS antibody test this morning--2 1/2 weeks after my 3rd vaccine. I hadn't read the instructions very carefully--which was not clever--so had lots of difficulty getting enough blood into the test tube. I used 3 lancets in the end. I hope I have done it correctly. If anyone else is going to do it--do read the instructions very carefully as they are well written. It is also good that they give you 3 lancets! Fingers crossed for antibodies. I had some after doing a Covidence test about 3 months ago--but it was blood on circles --not blood in a test tube. Does anyone know which is a better method?

[Newdawn Administrator in reply to JEEA]

I found it to be like milking a reluctant cow trying to squeeze copious amounts of blood out of finger pricks into a test tube! Not for the squeamish! 😉

Newdawn

[JEEA in reply to Newdawn]

That is so true!! Do you know which test is 'better'--the test tube one --or filling the 4 circles? I've only ever done the circles before--both for the Covidence test and for the Birmingham research --which I've still to do tomorrow, now that I'm 2-3 weeks past my 2nd vaccine.

[Newdawn Administrator in reply to JEEA]

I honestly don’t know how they compare in terms of accuracy but the circle one has to be more user friendly!

Newdawn

[JEEA in reply to Newdawn]

Thanks Newdawn. No question that it is more user friendly! But the instructions on how to get the blood flowing (when I finally read them properly) were much better on the NHS one. I usually have trouble getting enough blood on the circle one too. I'll use those methods tomorrow

[Annie1920 in reply to JEEA]

The NHS cancer one is a spike test and a neucleocapsid and you get the results the Birmingham one doesn't tell you what sort of test it is and you don't get your individual results.. I know which one I prefer but whether one is better than the other who knows

[Annie1920 in reply to Newdawn]

The instructions to soak your hand in warm water, swing it above your head and then hold your hand below your heart worked for me.. The first time I did the circle tests for Birmingham I had a helluva job to get enough to stain them!

[JEEA in reply to Annie1920]

Thank you Annie. I think I've cracked it now--finally!

[Annie1920 in reply to JEEA]

It took me three different testing systems to crack it 😂😂

[Pageboy]

Had my booster yesterday- Pfizer - full dose but they said this was normal not an exception for me. Feel completely fine today whereas felt rough with my two AZ jabs so who knows? No consistency, it seems, in the information being given. Still, I don’t want four jabs. Didn’t even want this one after the first two so am just grateful no side effects - yet 😬

[JigFettler Volunteer]

What did you have?

Pfizer or Moderna?

Jig

[Ellim in reply to JigFettler]

I had Pfizer same as 1st & 2nd.

[JigFettler Volunteer in reply to Ellim]

Pfizer 3rd primary and booster is the same dose, same vaccination.

Not the case with Moderna.

Jig