Freedom day could come at a high price for the... - CLL Support

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Freedom day could come at a high price for the clinically vulnerable by Sean O'Neil CLL Patient and UK Times Newspaper Chief Reporter

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Jm954Administrator
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As Boris Johnson was declaring Freedom Day yesterday, I was flying back to London from a weekend in the Highlands.

Just like the prime minister I had asked myself “if not now, when?” and set off for a mini-adventure. Even catching a flight for the first time in well over a year was exciting.

In Scotland I completed a long, occasionally precipitous, ascent of Ben Nevis, took the briefest of dips in an icy loch and spent hours pedalling up and haring down vertiginous trails on a mountain bike.

Despite a near miss with a very large tree, the only time I felt in any real danger was in the crowded departure lounge at Inverness airport. I took refuge in a corner and consoled myself that everyone I could see was wearing a mask.

My risk antennae are acutely active. I have had leukaemia for more than a decade and subsequently developed a secondary cancer which required a bout of surgery and a hefty blast of chemotherapy this year.

These factors make me one of the estimated 500,000 people in Britain classed as immunocompromised (about 230,000 of those are blood cancer patients).

We were among the more than two million people who were classified as “clinically extremely vulnerable” to Covid 19 and advised to shield during lockdown.

Last year we were bombarded with letters from the government with advice on shielding: stay indoors, sit near a window, use a separate bathroom, sleep alone. It was alarmist, draconian and often impractical stuff.

Since shielding officially ended on April 1 this year, the advice pipeline has dried up. Instead we are receiving mixed messages from ministers who are variously whipping off their masks, keeping them on or using them only in crowded places.

Sajid Javid, who will be carrying a mask in his pocket and making a personal choice about when to use it, says the vaccine rollout has built a “wall of protection”.

The health secretary seems unaware that for the immunocompromised that wall is a flimsy construction. Our damaged immune systems do not respond as well to vaccines and we will have limited, if any, protection. I know my first Pfizer jab produced no antibody response.

The government’s claims that it has protected the most vulnerable are simply untrue because we cannot be fully protected.

I agree with lifting the vast majority of lockdown restrictions. My personal approach is pragmatic — I’ve been to the pub, to restaurants and I have a socially distanced gig lined up this week. But I’ve cancelled the music festival later this summer — sharing a field and compost toilets with thousands of sweaty music fans is probably an infection risk too far.

My appeal to ministers is to furnish shielders with full information about the limited efficacy of the vaccines for many and remind them of the need to remain vigilant. They should also be advising employers to allow vulnerable people to work from home or make special provision for them in the workplace.

And if Johnson and Javid really want to protect the vulnerable they should be keeping facemasks mandatory on public transport and crowded spaces. For many of us Covid-19 remains a lethal threat.

by

Sean O'Neil - Chief Reporter at The Times

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Newdawn profile image
NewdawnAdministrator

I’m nodding so hard in agreement I’m in danger of giving myself whiplash!

This line from Sean resonates hard;

‘Sajid Javid, who will be carrying a mask in his pocket and making a personal choice about when to use it, says the vaccine rollout has built a “wall of protection”.

The health secretary seems unaware that for the immunocompromised that wall is a flimsy construction.’

Let’s hope this message gets out but with the Govt accepting we may have up to 100,000 new cases a day come mid summer and the vaccinated and under 18 unvaccinated no longer having to isolate if they are exposed to Covid, I feel I may need to construct my own ‘wall’.

Newdawn

JigFettler profile image
JigFettlerVolunteer in reply toNewdawn

The carrying of an intermittently used and possibly soggy mask negates the whole benefit of mask wearing. Doh!

Happy to stand corrected though!

Heeeelp!

Jig

Fran57 profile image
Fran57 in reply toJigFettler

Hello.Yes, I, too, thought that the whole point was to wear the mask once, take it off carefully and put in a bag until you could get to a bin, being careful to only touch the ear elastic and then to wash your hands and replace it with a new one. Again, one rule for them….

Perhaps he can’t afford more than one! 😡

Stay safe,

Fran 😉

JigFettler profile image
JigFettlerVolunteer

Yeah!Yup! Yes! Bang on the money!

Thank you for raising this issue.

It must be debated.

My 23yr old double vaxxed daughter 2 weeks ago turned up to stay the night.

LFTest neg!!

She has been to an open mic night!

What do I need to do to stay safe?

IF anything...

Jig

ChristyAnne_UK profile image
ChristyAnne_UK

Wow! Superb find! Thanks for sharing. What am I going to do now, though? There’s nothing to argue with in this one. 🥺

Jm954 profile image
Jm954Administrator in reply toChristyAnne_UK

I’ve just posted something else on the subject 😊

ChristyAnne_UK profile image
ChristyAnne_UK in reply toJm954

Seen it! I’m no slouch.

mrsjsmith profile image
mrsjsmith

Thank you so much Jackie for posting such a brilliant article by a very articulate man.

Colette

wroxham-gb profile image
wroxham-gb

Thanks very much Jackie.Sue

Vindicatrix profile image
Vindicatrix

Hi Neil, a great post, and very informative. I had just sent of a post prior to reading your one, regarding the safety of travel for us. You have more than answered my concerns. In two weeks, I have planned a 2 day Hotel trip in a secluded area, in a safe part of Scotland.. I will make my final decision a day or two before departure. I will do my risk assessments at the time, and stay away from crowds both indoors and out in any event. Regards Ron

neurodervish profile image
neurodervish

Great read! (I love the word 'vertiginous')

I've been contemplating whether it's safe to go to an outdoor bluegrass festival in a couple weeks. My musician friends are all vaccinated, but there is no stopping strangers from walking up to our campsite and joining in the jam sessions. I wonder how a sign reading "Vaccinated people only" would go over? 🤔

Penkman profile image
Penkman

Thank you Sean for such an articulate description of what many of us are feeling. I was dismayed about the proposal to make mask wearing voluntary and have written to my MP voicing the same concerns as you. Prior to the rapidly increasing spread of the Delta variant of Covid, I believed there was a light at the end of the tunnel to come out of shielding in a limited capacity but now I am fearful about going out into any public enclosed environment and believe this latest proposal over mask wearing is like a prison sentence to us immunocompromised patients. I hope the government make yet another U turn on this ridiculous and ill thought out policy.

Juliette02 profile image
Juliette02

Gosh life is so bl. dy unfair ! Hard enough pre pandemic but talk about the cherry on the cake with a helping of extra sprinkles ! Sadly ‘we’re’ a minority in the grand scheme of ‘things’. Decisions are political. As it was ‘BC’ it’s about looking after your own health interest, researching & staying informed particularly around Covid treatments for folk like ‘us’. Great article which hopefully raises blood cancer awareness.

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