Progression Free Survival: Sorry if this is a... - CLL Support

CLL Support

23,335 members40,038 posts

Progression Free Survival

Research123 profile image
6 Replies

Sorry if this is a stupid question. We are told CLL is incurable. Just saw something saying there was good progression Free Survival 3 years after venetoclax and obinutuzimab. So does this mean that basically the disease has been knocked out and can't be seen 3 years later? How many years do you need progression Free to survival to say you've been cured - if you have treatment at 20 and still no sign at 70, is that still progression Free Survival or a cure? Or is 10 years a cure?! 20?! If not then my aim is 100 years progression Free Survival which should take me to 153.......

Written by
Research123 profile image
Research123
To view profiles and participate in discussions please or .
Read more about...
6 Replies
AussieNeil profile image
AussieNeilPartnerAdministrator

See my recent reference to an article exploring why doctors are reluctant to talk about cancer cures:

healthunlocked.com/cllsuppo...

Research123 profile image
Research123 in reply toAussieNeil

Thank you that was very interesting.

Sushibruno profile image
Sushibruno in reply toAussieNeil

Why do they hesitate to talk about a cure? I always wonder this. My doctor mention to me that she'll be out of a job. I thought to myself... "then get another job".🤭

AussieNeil profile image
AussieNeilPartnerAdministrator in reply toSushibruno

It's bad enough receiving our first diagnosis, so you can understand doctors not wanting to tell us our CLL had returned after saying we were cured!

I'm sure your doctor was joking!

bennevisplace profile image
bennevisplace in reply toSushibruno

🤣

Sushibruno profile image
Sushibruno in reply tobennevisplace

😅

Not what you're looking for?

You may also like...

Progression Free Survival

Hi. Can someone explain Progression Free Survival (PFS)? Here is example. I am 54 years old. I...

del17p CLL? Overall Survival and Progression-Free Survival Are Improved With Ibrutinib

Ibrutinib treatment for chronic lymphocytic leukemia with the deletion of chromosome 17p (del17p...
AussieNeil profile image
Partner

Response and Survival Rates for FCR and Ibrutinib

Those of you who waded through my post yesterday on clonal evolution will be glad to know this is a...
AdrianUK profile image

Adding Venetoclax to Obinutuzumab Prolongs Progression-Free Survival in Previously Untreated CLL

Dated 1st September 2019 In a phase III trial of patients with previously untreated CLL...
Jm954 profile image
Administrator

Younger, Fit Patients With CLL: Goal Remains Undetectable Minimal Residual Disease and Time-Limited Therapy

This article looks at the interim analysis of E1912, a U.S. randomized phase III trial comparing...
Jm954 profile image
Administrator

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
Newdawn profile image
NewdawnAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.