I am on W&W since 2017. I was just wondering would it be safe to take ProArgi9 as an immune booster. It says one of its side effects is blood abnormalities. It is hard to get to see my doctor due to covid scan you please advise me. I am 66yrs. Old.
Thanks
Personally I would not.
The amount of vitamins and extracts look pretty irrelevant. You can easily do better for vitamins with a healthy diet and perhaps a moderate strength food based multi vitamin for insurance.
The D-ribose is VERY questionable. I looked into this regarding cancer cells, and Dr Rhonda Patrick included a short section on one of her videos about NAD+, and it's associated supplements (of which D-ribose is one). It can potentially promote stimulation of lymphocyte proliferation, exactly what we do not want having CLL.
Your CLL cells are B-cells. B-cells are part of your immume system. Anything that potentially stimulates the immune system potentially stimulates B-cell growth and proliferation. This is a maddening thing for those of us interested in natural or supplemental therapies to potentially slow down CLL.
As far as I know, the jury is out on grape seed extract and resveratrol in regards to CLL, but once again antioxidants can stimulate cell's immune hardiness, so boosting the CLL cells hardiness would not be desired.
Unless these concepts are flipped on their head from future research, I don't take any claim of immune boosting as something good in the context of having CLL.
And finally, I would not take it if nothing else because it is loaded with additives and flavorings, which give me migraines.
Thank you very much for your reply. I certainly wont be taking it now. I suffer also from irritable bowel which is a nuisance.
Good to hear you have reconsidered. I lived with chronic neutropenia through 11 years of Watch and Wait, so have been very interested in anything that could potentially boost my immune system, checking out all the recommendations others have shared in this community. Confirming Hawkeagles's repy, when I've checked for the science behind why each supplement might boost immunity, in every case where there is any supportive evidence, the supplement was reported to boost lymphocytes - the very last thing we need with CLL!
Neil
Thanks AussieNeil for your reply. Hope all goes well for you. Maybe some day we might get an immune booster which wont be harmful and will do the business.
My hematologist prescribed 5000 IU of vitamin D. I read where B12(5000mcg) is a good “partner” with D. I added milk thistle(250mg)for enhanced liver function and COQ10(100mg) for my heart. I see that the COQ10 is an antioxidant. Any comments on this vitamin regimen? I am not on any prescriptions , not even blood pressure medicine. Sandra(71 yrs and active)
Dear Hawkeagle & AussieNeil. Great comments from you 2 & understood antioxidants are helping the good & bad cells. I'm curious on your thoughts regarding supplements such as Vitamins B, C, E; supplements like Turmeric, CoQ10, prostate formulas with Saw Palmetto, etc.
include. Alpha-lipoic acid
Not much I can add to Hidden 's reply other than adding to only take supplements if you are low in them when you can be sure that they won't make your CLL worse and that the best way to obtain nutrients is through your dietary choices. Time after time after time, studies show negligible benefits from taking vitamins and supplements and occasionally doing so can worsen your health. The evidence for supplementing touted in marketing (or promoted on the Internet), is usually not all that convincing, generally based on in vitro testing and if there has been any in vivo testing, it's generally in rodent models, not clinical human trials.
Neil
Thanks AussieNeil
I have taken an Elderberry syrup for 20+ years. Advertised as an immune builder. My acupuncturist suggested it. My oncologist didn't have a problem with me taking it. I was dx 15 years ago. Never effected my W&W but did skip it during my chemo. Back on it during my remission.Best to see what ur hematologist says.
As I have said many, many times before, whenever I look into supplements that claim to boost immunity, I inevitably find evidence that they boost lymphocyte production - if there is any reputable evidence to be found. Per this PubMed abstract:
pubmed.ncbi.nlm.nih.gov/113... from the first international symposium on Elderberry in 2003, the commentary on this paper stated, with my emphasis:-
"This in vitro study demonstrated elderberry’s positive effects in stimulating immune response in human lymphocytes at (sic) all kinds, including innate and adaptive classes. It improves immune response pathways to T-helper cells, apparently balancing the body’s response to infectious agents."
Neil
The biggest question remaining to me is how does each of these substances potentially affect healthy lymphocytes vs CLL cells? If there is actually differentiation against CLL's favor, it would be nice to know. I doubt that we will see much of that question actually answered through clinical research.
Hi, I’m taking daily 1000 Vitamin C and 2000 IU 2 times a week vitamin D3 1 tablet Zink + curcumin daily
Hello al444
You may want to research Chris @ cllcanada. His research on vitamin C showed that it was not good for CLLers, as it increased lymphocyte production.
Hi tkx for your advise, but what the best to use ? Any ideas.
Hello al444
I would suggest you ask your CLL doctor. I tried every thing you could imagine and some no one in their right mind would try to slow my CLL. I was tested for vit D levels and was slightly low, so I take vit D3 and calcium per testing. I also take small doses of magnesium for leg cramps, but have to limit that due to diarrhea.
Hi al444, To answer your question you may want to read this Pinned Post (they are in a box on this page)
healthunlocked.com/cllsuppo...
Especially you may want to read the long reply by AussieNeil it has lots of links to valuable information.
Len
Thanks Hawkeagle. R U on Imbruvica for CLL?
Thanks. I'm fairly new to the site, so want to get in depth. Is there a simple way to see your profile?
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